Just wanted to get this of my chest. Has TT due to nodules in 2008 and have been up and down (as has my Levo dose) since then. Went to see a recommended endo last year who was open to T3 if necesssary and gave me a urine test, blood tests for vitamin deficiencies and advice on what to take, cutting down on carbs etc. Went home feeling very positive. Received copy of letter he sent to GP a week later.
Went back last week and saw one of the endo team. The Endo was apparently on holiday (although he was wandering around the department! ) Well how disappointed and furious was I after my appointment...... My blood tests were normal - wouldn't give me results, but I could be slightly overmedicated - danger of heart attack, osteoporosis etc. I mentioned something the Endo had written in his letter. "Oh why are you doing that" I was asked most huffily. They obviously hadn't read his notes or knew what he had recommended. I asked whether it would be possibly to trial T3 as I was still having symptoms. The symptoms are not anything to do with my being hypothyroid but caused by lots of other things! Anyway the British Thyroid Association doesn't advise taking T3 and no longer recommends blood tests for T3. I asked if I could have a copy of any letters they send to my GP. "Oh we don't normally do that" again huffily. I said I wanted a copy. I had to have a blood test for TSH and T4 and Bone. They don't test for vitamins etc every time. It's been 5 months since my last appointment . I have to have 2 more blood tests. One in a month or so and another a few months after that. They are both just for TSH, T4 and Bone. No Vit D, B12 and the usual suspects which were all done before. Oh yes, my Vit D is okay, its always low at this time of the year but will increase in the next few months! The clinic is so busy they will ring me up and discuss results over the phone. There were no other patients in the whole of the clinic whilst I was there. Why do we bother........ Rant over, thanks for reading.