Breathlessness is reflux not thyroid nodules playing up

So after 2 years of seeing a rheumatologist, a Neurologist, Ent and my Gp countless times and being booked for right hemithyroidectomy then cancelled the week before, I now have been told I have reflux and he doesn't want to do the surgery. Reflux is causing the strangling feeling in my neck and breathlessness and my thyroid blood tests to fluctuate up and down like a yoyo despite being on the same dose of levothyroxine for years.

Doctors won't listen or help me. So I have to put up with these frightening symptoms forever. I have hashimotos which doesn't get better apparently.

8 Replies

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  • Have they done checks for:

    a.) Helicobacter pylori

    b.) Coeliac disease

    c). Hiatus hernia.

    ??

  • No they haven't, they just fobbed me off. I don't even have the symptoms of reflux. The gaviscon doesn't help at all.

    Only thing is if you keep going back then they have you down as hypochondriac when the you've actually returned as they haven't resolved it.

    Thanks for your reply.

  • These are the top three that need to be checked. You need a gastroenterologist referral.

  • Yes I think I do. It was Ent who told me I had reflux but I haven't even got the symptoms though. Think they don't know what to do with me as I've exhausted everything and it always comes back to thyroid. The minute I'm off steroids my mouth tongue and airways swell up and I end up at A & E.

    I speak to my gp about the tests. Thank you gabkad.

  • Acid reflux burns the tissues in the throat and esophagus. It can also burn the vocal cords and cause change in the voice. The scarring of vocal cords is permanent. The acid burn can cause swelling of the tissues.

    H. pylori is a breath test. Antibodies to H. pylori can be detected in a blood test.

  • Do you know what the treatment is if that is what it is?

  • Two antibiotics plus a proton pump inhibitor.

    Used to be it was thought that if the antibiotics taken for 2 weeks didn't work it was because the patient was not complying. Turns out the bacterium develops resistance and there are now several combinations of antibiotics being used.

    The other problem is with re-infection and I think the focus ought to be more on prevention in these cases. People are successfully treated and then a couple of years later they have it again. I think this is because other family members especially spouses have the infection but are asymptomatic. Most people with H. pylori have no symptoms.

    I think spouses or intimates need to be tested as well but it's not being done. When someone is symptomatic from H. pylori, this all needs to be treated the same as a venereal disease.

  • Lots to it then. The consultants I have seen don't seem to know alot. Thank you much for the info. I will talk to my gp.

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