Thyroid nodules

Hi wondered if anyone has had a similar experience to me and can offer any advice.

Last year I had problems with tiredness etc. Had blood tests anti bodies were high, they then scanned me. I had multiple nodules in my left side, they did a biopsy of the big one. They then decided it was a grade three so I had to have my left side removed, luckily they found it was benign when it came out. I felt really ill for a while after my operation in Feb. So I have now finally been put on levothyroxine (this september) feel so much better! I went back for my check up Friday and bloods were much better, however my gp found that my right side is now swollen which I can feel too and I am being sent back for another scan :(.

I just wondered if anyone knew what this could be, and if anyone else has experienced this at all?

Thanks :)

11 Replies

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  • Sophiejfisher, nodules are slow growing so I doubt you will have a palpable nodule just a few months after your last scan and hemilobectomy. I think it's more likely your remaining thyroid lobe is inflamed due to a Hashimoto's attack. The scan will show whether there is damage consistent with Hashimoto's.

    _______________________________________________________________________________

    I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

  • I just really don't want to have to have my right side removed too. Especially as I am getting married in July. They did say when they removed my left side that I had thyroiditis in that side as it was very swollen when it was taken out, but I don't really know what that means :(

  • Sophie, thyroiditis is inflammation caused by autoimmune thyroid disease (Hashimoto's). It would be very unusual to remove the remaining lobe due to Hashimoto's. Completion thyroidectomy is almost exclusively reserved for removing cancerous nodules, or benign nodules which are impacting on nearby organs.

    ________________________________________________________________

    I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

  • Just hoping it's not another nodule then :) but there can be other reasons for the swelling other than a nodule then? As obviously this is how it started last time, when they found the nodule in my left side.

    Thanks for your help :)

  • Not strictly true as I have Hashimoto and complete thyroidectomy in 1998 and I am on Levothyroxine ever since feeling fine. My only problem is reaction to very high temperature weather wise however my test are all OK and it could be due to menopause. My sister has also Hashimoto but did not have to have a thyroidectomy however her thyroid was inflamed and she is on Thyroxin too. Wishing you well and enjoy your wedding.

  • Thank you x

  • Sophie, sometimes autoimmune attacks are due to leaky gut and going gluten free might be helpful. Do you think you could try and NDT and see if that helps.

    stopthethyroidmadness.com/2...

  • At the moment I am so pretty much gluten free only eat it on a rare occasion, this was because I had stomach problems lol feel like I'm falling apart :(

  • I have nodules on both sides. Having TT In a few hours. Total right side 19cm, left side smaller but has several nodules. Very tired, weight gain, hair loss, brain fog, etc. I am having both sides removed so won't have problem and have to remove other side later. This is a terrible disease and from what I've experienced the last 10 years, it only gets worse if left untreated. I'm very concerned even with having surgery because I've learned from others that it is very difficult to find the right dosage to get your body in total balance and can take years to find the right mix. I wish you the best. I will post after my surgery. I do believe it's better to have total so no chance of future issues like what you're experiencing new other than getting hormones regulated. Best wishes.

  • Good luck with yours hope it all goes well :) I think they don't want to take it all out as I'm only 23 but see what happens x

  • I had a TT here in France 18 months ago. Had a hot nodule 3 x 4 centimeters on one side. To my surprise I was advised to have the whole thyroid removed. When I asked why, I was told that this is the recommended protocol in order to avoid the possibility of having to have a second operation later.....

    So out it came and to tell you the truth am still struggling to find the right balance of meds, but am on the good road I think. It looks like a T3 cocktail is the way to go after TT. Wish you all the best.

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