I've been suffering for over 6 years with extreme tiredness, tingling hands, dry skin, IBS, night terrors plus more. Approx 3 years ago I was diagnosed with B12 deficiency and have been on injections every two months. Was advised that I had depression and even tried Sertraline / CBT for a couple of years but no improvement.
Dec 2015 my symptoms got worse and I started to get irregular periods. Quite a few blood tests later and April 2016 GP referred me to endocrinologist as consistent T4 'slightly low' and TSH 'normal', antibodies negative. I had a scan that showed polycystic ovaries.
I started taking 50mgs Levothyroxine in May and my symptoms dramatically improved - energetic, no IBS, sleeping well and even my eyebrow grew back!
My first endocrine hospital appointment was in Oct and the consultant ordered an MRI and blood tests, he said there was scope to up my thyroxine.
In Oct / Nov effect started to wear off and now really struggling with day to day life, feeling worse than before.
I had my second endocrine appointment today and had a new doctor, I explained my situ and that my symptoms had all gone but come back. MRI & bloods came back clear apart from EBV positive. Not a very good appointment, doctor does not think thyroid related and was told to look into Chronic Fatigue and ME.
My blood test results from last week are:
- TSH: 0.85
- Free T4 : 14
Based on this, doctor did not want to up my thyroxine at all, but managed to get up to 75mg per day. She talked about osteoporosis and heart attacks. I asked for a T3 test and got a lecture on T3 prescriptions not really working. I've also been booked in for an advanced cortisol test.
The lab flagged other results - corrected calcium level 2.1, mean MCV 102.4, MCHC 312 - but the doctor said that was normal.
Looking for advice on what to do next, should I give up on this being my thyroid or be considering other things?
Felt like I'd finally started to get somewhere but now back at square one