Thought i would start a thread about thyroid hormones and what happens longer term in relation to energy and requirements.
I am pretty experienced with all the thyroid meds, but i take T4 only and a tiny bit of T3. I am generally well, but i do like to test things out and experiment a bit.
For a long time i was taking 125 T4 and doing well. Then i decided to up the T4 last year to 150. And i noticed an improvement. I had my annual blood test in December and my results were TSH 0.16 and FT4 19. All looks good, but the doc wasn't happy about the TSH. I had to go in and he wanted to take my pulse, but at 44 beats i am a million miles away from hyperT. So he agreed i could stay on 150 T4.
However, the issue with the TSH always niggles at the back of my head. It would be great to fit into that box. On 125 T4 my TSH was 0.4 and FT4 was 18.
So yesterday i wanted to see what 125 T4 felt like again. Would i feel different compared to 150 or would it be the same as 125 T4 that i was on for quite a few years.
Well the answer has hit me pretty squarely between the head at 11am this morning. I felt really tired. I have not felt like this for years. So i took more T4 at 1pm and i started to improve after 1 hour.
So what i think has happened here is that my body has gotten used to a higher level of energy input over time because the output has actually gone up over that time as well, all thanks to the new higher input of T4 at 150.
So even though my TSH is low my demand for T4 is just being matched by my 150 supply. Really it seems my body is running on quite a lowish level of fuel and without a top up it quickly runs out of fuel.
I am almost thinking i could easily use more T4 at 175.
My situation may be different to the classic hypoT patient as i am very active and play quite a bit of sport and work physically. So i am placing demands on my body and its energy supply. With improved health i am able to place more demands on the body and then i think i get into a state where i actually need more thyroid meds.
It just annoys me that the TSH is actually limiting my own treatment (and i am sort of telling the docs what i want to do).
I am thinking i am still quite far away from my optimum dose of T4. This is potentially good news. But would a GP manage to see round the TSH low level in the future ? I could imagine being on 200 T4 in the future and the FT4 is likely to be in the mid 20's, so actually in the range still, but TSH is likely to be even lower.
Food for thought i suppose.
Has anyone else experienced this sort of thing ?
ps, i take 3mcg T3 most days, Vitamin D, magnesium spray for the legs and a little progesterone (6mg).