There are helpful endocrinologists out there 😀 - Thyroid UK

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There are helpful endocrinologists out there 😀

A2C3 profile image
A2C3
23 Replies

Thought I would post a positive! My endocrinologist has increased my dose of T4 to 150, from 125 (although I experimented with 137.5 on my own), based on my 125 results in a previous post, saying as long as TSH detectable, and FT3 in range (the higher end) and FT4 might be over. He even suggested that after this if still symptomatic about combined T4 and T3 👏🏻 just wanted to post to give others hope that some people will help. As I have sometimes felt along this journey that some doctors don’t help and listen!

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A2C3
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23 Replies
Minimouse1 profile image
Minimouse1

That's great. Looks like I'm having conversion probs at mo. Going to have to source a private endo. Where are you located pls?

A2C3 profile image
A2C3 in reply to Minimouse1

Newcastle!

Minimouse1 profile image
Minimouse1 in reply to A2C3

Pooh that's not too far for me - I'm in South Yorkshire. Would you mind sending me a private message with endos details on pls? X

Moog77 profile image
Moog77 in reply to A2C3

Could you send me his details too?

Piglet1956 profile image
Piglet1956 in reply to A2C3

Could you send me his details too please.

Gummybearx profile image
Gummybearx

Thats brilliant. Im also having a good experience with my endo too. He has now put me on the t4 and t3 combo as i havent been converting t4 to t3. Its such a good feeling when one of them listens. Hope it continues 🙂

Arlenka profile image
Arlenka in reply to Gummybearx

Where is your endo located, please

Gummybearx profile image
Gummybearx in reply to Arlenka

I am in East Sussex

Sorchameadhbh profile image
Sorchameadhbh in reply to Gummybearx

Hi GummybearIt’s great to hear there are helpful endos out there! I am also in East Sussex and would be so grateful if you would private message me details of this doctor . Many thanks.

wellsy11 profile image
wellsy11 in reply to Gummybearx

Hi, I’m in East Sussex as well could you please private message me his details?Thank you.

A2C3 profile image
A2C3 in reply to Gummybearx

How do you feel on the combo?

Gummybearx profile image
Gummybearx in reply to A2C3

Early days at mo, on the first trial run i felt better less tired and drained. This time i havent felt so great so far but 2 months in

A2C3 profile image
A2C3 in reply to Gummybearx

It seems hard to get the T3 dose right! I’m hoping 150mcg T4 works for me!

Gummybearx profile image
Gummybearx in reply to A2C3

Hope it works for you. I was on 150mcg and 125mcg t4 alternate days before that was 150mcg but 125mcg was too low and 150mcg too high. Now its 125mcg t4 and 10mcg t3. Just waiting to hear back from endo for 2 month blood test.

A2C3 profile image
A2C3 in reply to Gummybearx

Did you feel over medicated on 150?

Gummybearx profile image
Gummybearx in reply to A2C3

Yes to a point but still had loads of symptoms. I just wasnt converting and it was me who found it unfortunately through private testing

A2C3 profile image
A2C3 in reply to Gummybearx

I’ve been on 150mcg for a week and feel no diff at the mo x

Gummybearx profile image
Gummybearx in reply to A2C3

Will take awhile before it actually feels a difference x

A2C3 profile image
A2C3 in reply to Gummybearx

Fingers crossed x

LynLyn profile image
LynLyn

Please could you private message me the details too. That’s not been my experience! So pleased for you!

buddy99 profile image
buddy99

That is so wonderful!!!!!!! I know there are very knowledgeable and dedicated physicians out there. The trick is to find them (or more likely to stumble across them). They are extremely rare. I'm so glad you are well cared for by this doctor (also a little jealous ;) ). Thanks for posting hope. ❤

A2C3 profile image
A2C3 in reply to buddy99

I feel so lucky and just hope it all actually happens if I need it x

Ness21 profile image
Ness21

Please could you private message me too, I'm in west sussex.

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