I have always suspected I am hypothyroid, my mother is and has been for 40 years or so and my symptoms all fit to this diagnosis, but, my levels have never been low enough to treat on the nhs despite tests showing my levels are not optimal and being symptomatic.
Basically I got so fed up with not getting any help from my GP i started to self medicate and saw a huge improvement in my symptoms and also a 30 weight loss over the course of a year. I didn't take this decision lightly and only did so after a number of thyroid blood tests, many visits to my GP to ask for a referal to an endo but without any luck. I haven't disclosed my self medication to my GP as he has never thought I had a problem to start with despite test results indicating otherwise.
A quick summary of results from previous years:
TSH 2.16 (range 0.34-5.6)
Ferritin 77 (range 11-307)
FT4 9.3 (range 7.5 - 21.1)
August 2012 (privately commissioned tests)
Total thyroxine T4 104 - range 58 - 154
TSH 1.80 - range 0.4.- 4.0
FT4 12.3 - range 10 - 22
Free T3 6.78 marked as high - range 2.8 - 6.5 (never previously tested)
FT4 : FT3 ratio 1.8 marked as low - range 2.0 - 4.5 (never previously tested)
August 2011 (NHS)
TSH 1.79 (range 0.34 - 5.6)
FT4 10.3 ( range 7.5 - 21.1)
However, I decided to stop taking the thyroxine I obtained in November 2013 and at the same time I was under the care of a gastroenterologist for chronic constipation (I think linked to my thyroid) She tested my bloods including my thyroid and it is only today that I have found out the result from my GP (prior to this I was just informed by letter my thyroid in particular was fine and of no cause for concern but without the numbers from the tests) and they are as follows:
TSH 0.33 (range 0.34 - 5.6)
FT4 14.2 (range 7.5.- 21.1)
As you can see my FT4 has improved greatly but the TSH is now very low.
Since stopping the thyroxine my symptoms are returning as before, the aches and pains, tinnitus, tiredness, depression and anxiety, ittchy skin especially my legs, hair and eyebrows falling out after recovering whilst on the meds. As I have been off the thyroxine since the time of the blood test, I feel this is proof the thyroxine did help me but I am not sure what is happening with the TSH and would appreciate some guidance.
My GP is sending me for another test this week, and I have admitted as much as taking some natural supplements to boost my thyroid function which would explain the increase in the FT4 but I am concerned now about the fluctuating TSH.
I know I will be condemned for self medicating but I was getting desperate for help and with no where to turn. I felt so much better whilst on the meds, my weight loss was the most noticeable thing, but now its 12 pound up since I stopped taking the meds but with no change to diet or exercise routine.
Any feedback on the result of my latest test would be greatly appreciated and thank you not judging me...desperate people do desperate things