Hey guys, I asked for your advice recently as was having some horrible new symptoms - full story if you want a reminder here:
Briefly, I was showing signs of hyper (hyper reflexes, nausia) and i'm still having massive memory problems. I have been on t3 only treatment for over ten years and had been on 60mcg for most of that with my tsh under 1. Since quitting gluten three years ago and fully GF since gluten trials finished over a year ago (for which I now have a diagnosis), i dropped my dose quite quickly to 40 mcg. I tried dropping dose to 30mcg a year ago and my tsh climbed to 16.85.
My labs in october were tsh 3.8, t4 <0.1 and t3 6.9 (my T3 had always needed to be over range to stop hypo symptoms and bring tsh down historcally). I dropped my t3 dose to 30 which does seem to have stopped some of the new symptoms I was having (not so thirsty, not so shakey, nausia gone, and reflexes normal). I got new set of labs yesterday and they were tsh 4.56, T4 <3.2 and T3 6.
The tsh has gone up and I feel a little hypo but there's no point increasing t3 anymore. He discussed maybe switching a little of t3 for t4 but we didn't have the labs yets and I think looking at the tsh, it's prob best to add a little t4 rather than switch. I am not seeing him again until march though so quite a while to wait for some t4. What do you guys think - switch or add?
However, the tsh has not climbed as high as it normally does since october and still kind of within range surprisingly. My results historically normally show t4 <0.1 even when my tsh hits the 30s but the last one came back as <3.2 - does this show an increase in T4 production or is this just different bottom ranges of differents labs maybe - it's always been taken at the same hospital? If it is an increase (even if still not recorded specifically, then this would be the first time I've ever produced more t4 in in over 15 years probably. Might it worth to wait a bit longer until march and see what happens with this considering the way many other problems have dsappeared or healed to some degree. I'm also on treatment for iron, so when I get my ferritin back up, maybe this would help also??
I previously spoke to you guys about my concerns with b12 which keeps dropping and vit D not seemingly optimal but the endo does not want to treat those. was defcient vit d earlier last year and was treated which strangely resolved a life long fast heart rate issue and brought it back to normal and my result in october was 51 but he says treatment will just decrease my calcium and he is happy with this as it is. In regards to B12, he is also happy with this (321) which I am aware that you guys would think is far from optimal and i'm concerned it has something to do with my memory issues so I'm thinking I should just get my own and treat anyway (i've been taking some left over vit d anyway) or do you think i should wait until I get my ferritin back up?
Thanks guys :o)