Unruly labs

[palberts01]

TSH. 0.570. Range .45-4.5

FREE T3. 3.0. 2.0-4.4

Free T4. 1.70. 0.82-1.77

Vit d. 29.7. 30-100

Can't seem to balance 11 months total thyroid rectory having lower leg swelling, leg cramps, eye twitching and hardly any weight loss, heart fluttering

Added 4000u vit d a day not really feeling very good my doctor had me on 137mq synthroid..put me on Tirosint thought I was going to DIE, now on generic levrothyroxine 125mq still having same symptoms but fatigue is better. SYNTHYROID is horrible for me feel half dead on that.. just want to feel better already

[greygoose]

Your FT3 is too low for weight loss. It's not quite mid-range. You're not converting very well, that's the problem.

[leoopard]

Does your head get dizzy standing up and relieve when sitting / laying (or your mind suddenly come alive)?

[palberts01 in reply to leoopard]

Yes what does that mean

[palberts01 in reply to palberts01]

I wake up at

2 to3 am ready to get up mind is wide awake

[leoopard in reply to palberts01]

If most of those things are true you might be suffering Orthostatic Intolerance basically that means blood pressure to your brain is falling when you're stood up causing poorer cognition and/dizziness that relieves when you lie down.

When I had it, the second I lied down, I was no longer sleepy, mind was buzzing with stuff.

The thing here is symptoms must get better when you sit (or lie) and worse when you stand for it to cause your symptoms.

[palberts01 in reply to leoopard]

Like today was walking around felt very dizzy, but no where to lie down, just told my friend if I pass out pick me up

[palberts01 in reply to leoopard]

Good morning, I water to ask you about labs. Doctor put me on new dose dropped from 125mcq to 112mcg due to FT4 level 1.70 high end of normal range 0.82-1.77..now lab went down to 1.05 but the 112mcg feel cold, heart palpitations, fatigue. Put me back on 125mcq feel a little anxiety, feel more energy, feel better till afternoon then can't concentrate, feel a little wired. But feel better on the higher dose. How bad is it to be on the high end of normal with T4

[Clutter in reply to palberts01]

Palberts01,

It's not bad at all, there was no need to reduce your dose to 112mcg. If you feel wired on 125mcg try 112mcg/125mcg alternate days.

[palberts01 in reply to Clutter]

She tried that alternating 112mcg and 125mcq still felt like crap..she has me starting this regime 125mcq x6 days then half of 125mcq on 7th . Do you have any info to share on Vitamin D3 taking 4000u a day some days get severe cramps in feet legs

[Clutter in reply to palberts01]

Palberts01,

What is your vitamin D level? Vit D should be taken 4 hours away from Levothyroxine.

Cramp can be due to low magnesium and/or lack of salt. I used to put a pinch of salt in a glass of water for 2-3 days to help with low salt causing cramps. You can supplement magnesium citrate which is best taken before bed, put Epsom Salts in the bath, or use a magnesium oil spray on your legs and feet.

[palberts01 in reply to Clutter]

Uh oh been taking vitamin d emulsion drops 2000u in am about 1.5hrs after levothyroxine level wa's 24 normal levels 50-100..I have magnesium spray oil

[Clutter in reply to palberts01]

Palberts01,

You need to get vitD to 50. You could take 6,000iu for a couple of months and then reduce to 4,000iu and retest in April.

[palberts01 in reply to Clutter]

Thank you for your advice really appreciate others that can help

[Clutter in reply to palberts01]

Palberts01,

Updates are not easily spotted so it's best to write a new post instead of updating an old one.

[leoopard in reply to palberts01]

Given your T3 level you were unlikely to be on too much T4. In imbalance of Sodium and Potassium can cause cramping, as can low Magnesium.

I remember a month ago your Potassium was very low in the normal range. I wonder whether Potassium Iodide might be worth trying?

What is your Vitamin D level like with the dose you are now taking? Also are you taking Calcium with your Vitamin D that was also low in your last tests?

[McLaughlin]

palberts01 I had a difficult time after having radiation ablation for Grace's Disease. First they had to let me become euthyroid! Eight months of weight gain, ankle swelling and fatigue. Labs all over the place...which are read and perceived differently by MD's based on their experiences and methodology. It took about a year to hit correct dose for me....another two years for symptoms to go away. Just try to keep in mind each of us is different. That is why different drugs, treatment. For some the process is straight forward, others not so easy. Hang in there! Keep journal of how you are feeling daily. Honesty with Doctor is very important! I'll keep you in my prayers! McLaughlin🍀

[Eddie83]

Driving FT4 very high (right at top of range) does not work for some patients. (Does not work for me.) You could be on too much T4; you should check how the 125mcg dose you are on, compares to the Abbott recommendation of 1.7mcg per kg of body weight. If I were in your situation, I would reduce the T4 dosage, and add in T3 (or use NDT), because your conversion is not sufficient; your FT3 needs to be higher.

[palberts01 in reply to Eddie83]

Thank you your advise is really appreciated it's a lays nice to talk it out

[Eddie83 in reply to palberts01]

Be sure to heed all the nutritional advice you have been offered, too! I am on a regular supplement program because I don't EVER want to go back to where I was. From what I've seen on this board, B-12 is the most common deficiency. StopTheThyroidMadness.com has lots of advice on supplements.

[palberts01]

Did not have Graves have not had foliate, b12 checked last time iron was checked very low