i have had hashis for four years now changed to NDT was doing well , got symptoms back added a little T3 again doing well Then suddenly became hugely symptomatic, main one as always for me being complete exhaustion. I am currently off sick from work , have paid for a private blood test and had tests from GP.
I am gluten free which has helped but with flare up out of the blue all symptoms returned They have settled a bit as I am at home doing very little but would like to go back to the way I was ,so all observations on results greatly appreciated.
This has been raised for a while I had an ultra sound which didn't show anything as a precaution but Endo said it can be an indicator of acute illness however mines has been raised for year or two ,was 215 last year so about the same. They just say we will keep checking and I am not sure why it is raised
serum ferratin 91 (15-200)
Serum Vit B12 611 (200-900)
Serum folate 8.2 (3.1-20.0)
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spacestar
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How much are you taking of each? You seem to be a little over-medicated. You could probably do with taking the T3 down a little. Too much can produce fatigue as well as too little.
If you mean the same thing as I do by a 'Hashi's Flare' - although I prefer to call it a Hashi's swing - you've recently had an attack on your gland, which has caused the gland to release too much thyroid hormone. The effect is temporary, so if you reduce your dose, remember that at some point, you are going to need to raise it again, when the excess hormone has been used up. So, it might be better to do that yourself, by cutting a pill, than by getting your doctor to change your prescription. Because, once they've put a dose down, they are very reluctant to raise it again. And, you don't want your TSH going any higher, it is perfect where it is!
I have been over medicated before (my own doing) this wasn't what it felt like at all, I felt most definitely under. I have a much longer stressful journey to work now and I was exhausted by the time I got there it now involves car to train station then train then uphill walk !before it was just car.
I know I need to alter meds but not sure where to start I was on Nature thyroid 2 and a half grains and T3 ie Liothyronine 10mcgs daily I split the naturethyroid dose up throughout the day I took one grain breakfast then three quarters lunch and 3 pm with T3 at 9.30am to give me a much needed boost as i am a teacher !
I think I might try adding a little more T3 in around 4
I'm not sure what it really is but i thought a hashis flare up meant I felt awful very quickly with a huge flare of symptoms mainly overwhelming exhaustion but Gi problems, hands stiff, brain fog the lot!! Thought it meant the antibodies were high and that caused my symptoms
Thanks again for advice and link very much appreciated at this end of a keyboard.
Well, the antibodies are high, but because there has been an attack on the gland, and the antibodies are cleaning up the mess - which is what antibodies do.
My personal opinion is that you should reduce the T3, not increase it. It is already well over-range. It's hardly likely that you are hypo. Try reducing it by a quarter pill, if you can.
I was on LDN to reduce antibodies but Endo thought that might be causing Liver enzymes Alkaline phospatase to increase so I came off it but levels haven't dropped much in a year so once again I am unsure if the LDN caused it or to go back on it and see if antibodies reduce.
I don't think LDN does that. But I doubt a GP would know about that, anyway. Just a wild guess, on his part, I would imagine. If the LDN helped, why not go back on it?
Thanks Greygose and Slowdragon for replies it means a lot.
it was the Endocrinologist that thought LDN might be causing raise in Alkaline Phosphotase so I tried stopping it hasn't really changed the levels at all as it continues to be raised after a year it hasn't changed much and even reading up about it I am no clearer as I dont appear have any of the conditions associated with a raised level and the Gp just says oh its raised we will re test in a month three months never any explanation.
There are times like this time where I suddenly feel ill exhausted hands stiff swollen brain fog and have to rest it is slowly lifting but because I have not been able to do very much at all. I am adding a little more T3 to see if lifts this exhaustion and feeling ill state
I already take Vit D as you are right Slowdragon this was extremely low two years ago and I have supplemented ever since. Thanks for links this confirms what I thought.
I might try the Vit B12 route as I tested positive for parietal cell antibody in one test last year which the Endo said "means I may develop pernicious anaemia in the future" I thought levels looked ok but that was good you looked at them and thought they were low I'll investigate this now ....
Thanks again I had this ******* condition under control for a while could work albeit part time but also swim go to zumba I was doing well and then boom it has all gone to pot again I need to look at everything change dosage of meds etc and start over its so frustrating,
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