As I said in my last post I had stopped all vit d, calcium, lowered b12 to every 3-4 days or so and stopped some other supplements. I got some of my recent blood work back and b12 is pretty high at 2800, my highest so far, last one was 1167 and I was supplementing it every day at 4000mcg then.
So I'm wondering what is going on here. It's still not high enough to be of concern according to my hematologist but a lot higher than before which is odd.
My wbc is still low and mchc is low. Vit d is 27 pth is 67.4 and calcium was 9.3. My last test after increasing vit D was vit D 30, pth 51 and calcium 10. Urine calcium 24 hour was high. I did another 24 hour urine calcium finally last week with a low calcium diet but I don't have the results yet.
I don't have a lot of other results yet but the a1c is up, I expected that since my bg has been really awful, either high for hours or crashing down low with lows coming out of nowhere since my baby boy kitty passed away. It's not horrendous but the highest I've ever had- and I feel awful my bg is sooo bad lately.. but I feel powerless to do anything since it has been so erratic and nothing I do seems to work.. I'm just struggling to have some stability. I think some of the volatility may have to do with levothyroxine but I haven't managed to stop it yet and I wish I had never started it. tsh was 2.5 down from 2.9 in February and I think it was 1.2 in March when the rheumatologist tested me. I think I was on 50mcg then, I can't remember.
I'm still wondering what on earth is going on. I'm very exhausted again and I think it could be something else wrong because I have lost about 10 lbs now over a 3 month period or less maybe.
That could also be from higher blood sugar. I feel like I'm starving all the time, but then when I eat more I have more lows and more extended highs. It is crazy and enough to put me in a looney bin for sure. Yes I am at the point where I want to give up- I'm sick of all the tests, I'm sick of starving to death and I'm sick of everything
Another thing I noticed was t4, not free t4 which isn't back yet is 8. This is the first time my doc tested this one and I'm not sure why that would be done in addition to a free t4- the range is 4.5-11.7 for that one.