So this is my second post with second lot of bloods.

[Sddixy]

Hi everyone. I haven't posted in a while as I haven't had much to say. 

I had to wait to have my bloods retested as the doc wouldn't accept my BH bloods. So he really tested and added a lot more. 

My tsh has started rising again only a small amount but I'm tired started getting headaches etc

I'm sleeping a lot  still don't feel well and I'm struggling with day to day stuff. Doc 1ont give me an increase and he wants me to wait 3 weeks and test again. 

He said he has tested me for pernicious anemia.

I was wondering if you would be able to look over my past 2 post and let me know what you think of my results. I'd be very grateful.

I don't know what to do now. Is this when I start trying other meds as t4 must not be working if I still feel crap with good thyroid function? 

Many thanks all

[Jazzw]

To help out others who respond, here are your Blue Horizon test results from a month ago on 175mcg of levothyroxine:

CRP - H 9.20 (<3.0)

FERRITIN- 131 (20-150)

THYROID FUNCTION

FT4 20.66 (12-22)

FT3 6.23 (3.1-6.8)

TSH 0.52 (0.27-4.20)

T4T 133.9 (64.5-142.0)

IMMUNOLOGY

ANTI THYROID PEROXIDE

H 37.5 ( <34)

ANTI THROGLO ULN

H 303.8 <115

VIT B12 L 193 (DEFICIENT <140)

(INSUFFICIENT 140-250)

SERUM FOLATE L 10.3 (10.4-42.4)

===

Did you start taking some B12? Your levels have come up a bit - though not much...

You do seem to be converting T4 to T3, looking at that lot, so I'm not sure that adding T3 would help. 

Do you have a Vit D blood test result? I'm wondering if it's a combination of low Vit D and low Vit B12 that's leaving you feeling a bit rough. Although that NHS TSH result of 1.95 could be better - another 12.5 to 25mcg of levo might make all the difference.

[Sddixy in reply to Jazzw]

That's exactly what I said to the docs. Thanks for addING my private bloods on.

They haven't tested my vit D for a while but my video has been surprisingly good in the past.

I seem to be converting great. I'm going to take my partner to the docs with me next time as I think he thinks I'm exaggerating how tired I am x

[Jazzw in reply to Sddixy]

At least the doctor did the test for PA (although a negative result doesn't mean you definitely don't have PA - Martyn Hooper of the Pernicious Anaemia Society had several negative tests before one showed up positive...). But really, your Blue Horizon tests were far more use that the ones your GP ordered. No ferritin, no thyroid function test other than TSH - hopeless really. Not quite sure what they'll tell him. He'll conclude that your dose is ok, most likely, which isn't great news for you.

But we always say here that symptoms precede blood test results, so looking at what's happening to your TSH it does look as though 175mcg levo may no longer be enough - it does seem to be on the rise.

[Sddixy in reply to Jazzw]

Yeah thanks jazz. Exactly what I said to him. I kept own my ferritin has always been pretty good. I have shown low b12 and low folate. I know my results for them are higher than previous times due to the fact I'm supplementing them. 

I don't know if you seen my other post from today but that has shown other tests but I don't have a clue what they all mean. I think he was trying to say with the first PA blood test combined with all the others would show I'm doing good. Think I will email dr chandy for his opinion. I managed to get my blood tests for the past 10 yes printed off as this new Dr didn't know how to print them haha. 

[Jazzw in reply to Sddixy]

Yes, I did look at the other results - nothing shouted out at me, mostly a standard full blood count which looked pretty normal. I notice he did a CA125 - that's a test for ovarian cancer (plus a few other types) - negative result of course. It's good he thought to do that (unless you asked him to specifically?). 

[Sddixy in reply to Jazzw]

I have PCOS so I guess that's why he tested that because he gave me scans too on my abdomen and pelvis all came back fine apart from a little bit of fatty tissue in my liver that I obviously need to addressort.  However he has said that since gall bladder surgery which then lead onto infection causing pancreatithis that I have shown higher results on my liver blood tests. I think he is sick of me because I had a right old go at him for not listening to me. I told him I need answers as to why I'm still so tired. I'm now getting referred to gastro because I have constant loose stools. Bloody mind field the body haha 

[Jazzw in reply to Sddixy]

Tell me about it.

So you have gut problems too, huh? Anyone ever tested you for Coeliac Disease? Cos if you Google for the full list of symptoms, you'll not be shocked to read that they look identical to low thyroid symptoms. If you're not absorbing your nutrients, that could be why your B12 is quite low. 

[Sddixy in reply to Jazzw]

Yeah they tested them twice and Ithe came back negative. I pester my Dr's haha. 

I'm planning on going onto a gf diet anyway because I tested positive for antibodies on my BH test. Though I best wait tho until I've had an appointment with the gastro team. All stool samples come back negative but the way I go to the toilet it's not normal!  

I see you have gut problems too. It's awful.

I don't know if it's worth me trying NDT or I need to stick to the levo for now. I was only diagnosed may 2015 after testing normal for years.  X

[Jose651]

Hi Sddixy,

On both tests your Folate levels are just in/out ( by the skin off it's teeth) of the normal range.

B12 needs a good level of Folate.

J

[Sddixy in reply to Jose651]

Thanks. Yes I agree  x

[Sddixy]

Thank you very much. I shall look forward to your message