Test Help Please: I have now got the results from... - Thyroid UK

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Test Help Please

DollyDuck profile image
6 Replies

I have now got the results from my GP who wants to see me, but I can't get an appointment for a couple of weeks.  I have got them printed off and would greatly appreciate some help.  I think it's obvious I need to increase my Levo (on 50 ) but also take amitriptyline 30 for interstitial cystitis.  I also have Hashimotos and Crohn's disease (Crohn's is in ilium but ok at moment). I have had real trouble in the past increasing my levo because I have felt awful so I am in a dilemma.  I felt like I was overdosing on the Levo.  My anxiety has been bad, along with feeling like a zombie, palpatations, and just no energy.  I hope it's the thyroid doing this and not my mind which my GP seems to think it is, along with my age 54!  I get the impression I am supposed to feel like this.

Results 

Tsh 4.96 (0.27 - 4.2)

Free T4 14.4 (12 - 22)

D3 40.3 (25-50 means insufficient in their range)

B12 403 (197.0 - 771.0)

Iron 11.2 (6.6 - 26)   Serum Transferrin level 2.55 (2.00 - 3.6)  Saturation Index 19% (15-50)

Ferritin 40 NGOs/m

No T3 or folate tested, cholesterol is a bit high as well.

Depending on what you guys say I was thinking of having the Blue Horizon test which includes the FT3, and now the RT3, and the Adrenal Stress Profile from Genova to get a complete picture of my health.  Do you think both these tests would do that?  I remember getting told many years ago that I had a high Prolactin level but it was nothing to worry about and that's why I think the adrenal stress test might help? 

Please could I have your thoughts.  Thank you.

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DollyDuck
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6 Replies

Hi. Your gp probably wants to see you because of your high tsh. You really can't analyse the thyroid properly without the t3 test. I went to blue horizon medical on the thyroid site and paid to have the ten tests done. If your gp won't do the t3 then I think its worth it. He probably will increase your levo with a tsh over range. 

DollyDuck profile image
DollyDuck in reply to

Thanks for info - will look into the tests. 

Clutter profile image
Clutter

Dollyduck,

I think it's a waste of time checking FT3 right now.  TSH is high at 4.96 because FT4 14.4 is a bit low.  FT3 may be quite good due to the high TSH.  You are undermedicated and need a dose increase, and possibly a further increase 6-8 weeks later, until TSH is 1.0 or lower with FT4 in the upper range.  Read Treatment Options in thyroiduk.org.uk/tuk/about_...  Email louise.warvill@thyroiduk.org.uk if you would like a copy of the Pulse article to show your GP when you request a dose increase.  Cholesterol often drops when thyroid levels are optimal.

Ferritin is optimal >100 to halfway through range.  Supplement iron and take each tablet with 500mg-1,000mg vitamin C to aid absorption and minimise constipation.

vitD is replete 75-200 and most people are comfortable around 100.  Supplement D3 5,000iu for 2 or 3 months then reduce to 5,000iu alternate days.

Iron and vitamin D must be taken 4 hours away from Levothyroxine.

PA Society recommend B12 1,000 is optimal.  Supplement 1,000mcg methylcobalamin and take a B Complex vitamin for the other B vitamins.

____________________________________________________________________________________________

I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

DollyDuck profile image
DollyDuck in reply to Clutter

Thank you for all that - you certainly know your stuff! I had it in my head to do the tests now but your right it will only show I am under medicated. If I up my dose and I continue to feel rough that's when I should do the tests because it might show if I am not absorbing properly.  It will also give me time to get the extra supplements on board which should also make a difference.  I am very grateful for your help & advice.  Thank you again. 

Clutter profile image
Clutter in reply to DollyDuck

Dollyduck,

My TSH responded fairly quickly to dose adjustments but FT4 and FT3 took up to 8 weeks, so you might want to wait until 8 weeks after TSH is around 1.0 before ordering a FT3 test.

DollyDuck profile image
DollyDuck

Thank you - that's good advice x

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