Asking this for my cousin. She has been very symptomatic for years having high-ish TSH, but normal T4. She has been told she is depressed and given antidepressants and told she cannot be tired until TSH hits 10.
She got levo three weeks ago.
Her results 2012, TSH 3.1 ( I assume the range is either 0.3-3 or 0.4-4 as those are pretty much standards in Finland) and T4 18 ( I assume range is 11-23 as it is standard in public healthcare)
19.05 2015 TSH 4.57/ T4 14.52 /T3 4.96 (range 3.0-6.5) TPOab 30 (range >30 )
01.10 2015 TSH 4.28/ T4 16.52
01.02 2016 TSH 3.16/ T4 19.3
So she has been told she is depressed, but also been told she will get hypo eventually, but medically there is no reason to give her medication, but the doctor ordered trialing as her symptoms were worsening and her mom is hypo.
Her symptoms have been quite usual, tiredness, aching muscles, asthma and so on.
She contacted me as she heard I know something about hypo. She had not been told a lot, denied benefits of dieting etc. Not even guided how to take levo.
But the worrying thing is that she is scheduled to have next test in 9 weeks instead of 6. She told me at first she felt better on levo, but as it is only 25 mcg (the smallest dosage) symptoms are creeping back. I told her that is quite normal, as at first levo on top of T4 in her system has probably made her feel more energetic, but now that her own T4 is lowering that dosage is not enough to make her feel good.
I worry she will feel really bad before next test as it is way too long? Am I right? I also worry her TSH might have dropped , but so has T4, but that is not seen as an issue and she will be told they wont continue trialing T4 and her symptoms are down to depression. Her T3 was not super good either so she might not convert properly and with that low dosage of levo her T3 could drop too and make feel even worse. I got the idea her doctor really does not understand much about thyroid issues.
I have told her to find a new doctor now and get blood tests before the time she was given as 9 weeks is way too long. I dont understand the point of trialing for 8 weeks if it is standard procedure to up the dosage every 6 weeks and have tests to control it.
I have tried to educate her, but it is hard when she has no idea and it is a lot of information to absorb. I am just wondering if I am right telling her how much damage waiting for too long might cause and this is why she needs either to find a new doctor or go to walk in laboratory and get tested around 6 weeks after starting levo to see what is going on? I just want to present the facts right so she would understand why it is necessary.
Also TPOab 30, which just on the limit could indicate it is hashimoto and she should get TPOab retested with thyglab. I assume T3 would be important to test now as well?
Oh I just cannot write short, I go on and on and on...
Almost forgot, her vitamins have not been tested nor ferritin, I told her those would be good to get tested rather sooner than later.