Hi all! Just a brief background on my situation before I get into the topic at hand.
Sept 2014 - Went to GP in Summer complaining of feeling tired all day, blood tests showed "slightly hypo" as Dr said it, started me on 50mcg Levo in Sept.
Sept 14 til Easter 15 - My memory has never been the best, but I believe I recall feeling normal or at least getting by on this dose. However by Easter I was so fed up and run down that I upped my dosage to 100mcg, so perhaps I wasn't all that 'normal'. Went to my GP to inform him and he was fine with it.
Summer 2015 - Moved up to 125mcg after complaining of symptoms again.
Now - TSH is slightly below what is considered 'normal', t4 and t3 are at the very top end of the 'normal' range while on this dosage.
Having said that, I now find myself feeling worse than ever. This current academic year I was retaking my second year of University as I was too ill to perform to the best of my ability in 14/15. I've now been forced to take the rest of this year out, meaning that in 16/17 I'll be taking my second year for a THIRD time. I know left to the hands of the NHS I'd never get better, and was beginning to think about upping my dose myself to see how it goes.
Two days ago (Wednesday) I underwent an 11 hour round trip to visit Dr Peatfield in an attempt to salvage what was left of "the best years of my life". After discussing my medical history in length Dr Peatfield was livid that I'd been so flippantly diagnosed and medicated by my GP's. Given that I tested negative for Hashi's, and was a young athletic male when diagnosed, he appears certain that I'm not hypothyroid at all and the synthetic hormone is doing me no good. His instruction was to immediately taper off the drug in the next couple of weeks, then to conduct the Genova tests he's given me forms for.
While I suppose this is good news and I'm finally having someone look at my 'condition' in a different way, I'm extremely nervous to attempt to come off my medication, particularly given the symptoms I'm experiencing. Every symptom I currently have (severe fatigue, weight gain, dry scalp, loss of drive, headaches) seems to point to hypothyroidism, but perhaps Dr P feels the drugs have made my thyroid become lazy as the t4 is being externally administered?
It sounds ridiculous that I'm asking a site full of non medical professionals to give me advice on two conflicting sides of medical professionals, but has anybody experienced any situation similar to this? Was anybody mis-diagnosed at any point? Has anybody ever attempted to get off of 125mcg of synthetic hormone?
Any advice or comments on my situation are welcome