The topic I wanted to discuss with people today, as you can tell, is ways in which people attempted to come off thyroid treatment and how it went for them. I know this isn't the most popular of topics on the forum (lifelong condition etc), but as we all know everyone is different and in a completely different set of circumstances.
To cut my long story short after complaining I was feeling lethargic and tired all the time, I was diagnosed Sept 2014 as "slightly hypo" by a GP and started on 50mcg Levo. This was fine for a long while, but eventually the symptoms would come back worse than ever. 50 led to 100, which led to 125, I was "right" on the blood test results, but my symptoms had never been worse, leading to me dropping out of University.
I eventually had to splash the student loan on a trip to Dr Peatfield at the opposite end of the country at the beginning of this month, who believes I was completely misdiagnosed, things didn't add up and not enough investigation was done by the GP's. My antibodies were fine (Hashi's negative), I was diagnosed a fit, young 19 year old male. However, Dr P believes that my thyroid may have dipped in levels at the time of diagnosis as I'd just had a severe sporting injury and had been on crutches for a long while, not really doing a lot.
I sit here having fully weaned off Levothyroxine for the last two weeks, and can say I am feeling slightly better for it. I'm being extremely cautious, and am only coming off the treatment in order to run more tests completely synthetic thyroid free. The only change I've seen within myself is regaining the ability to think sharply and function cognitively. I had no idea how ruined my brain had become until I'd gone through this change in the last few days, how I was attempting to sit University exams in that state of mine I've no idea.
So that's my story, I'd love to hear if anybody's been through anything similar in which they ended up off of thyroid treatment. I'd also love to hear about supplements and lifestyle changes people have made. I've been taking a few mood boosters, vitamins and iodine, nothing that will drastically affect this 'trial period'. I'm also looking at the idea of a 'thyroid detox' (still investigating the legitimacy), above all I'm trying to look after my diet and run every day. I figured the best thing to do right now is attempt to return to who I was pre-diagnosis.
Thanks for reading