I'm so glad to have found this site. I've been reading and learning from here since about March when I had a parathyroidectomy and hemi thyroidectomy due tumours (benign) on both.
I've only just plucked up courage (if that's the correct term!) to write a post. I have been so unwell, for so long, that I can hardly remember when it started. Tired, headachy, muscle aches and pains, depression, sore throat, dry hair and brittle nails, tinnitus, - need I go on? I was diagnosed with chronic fatigue syndrome about 12 years ago. When I looked online I did, indeed have all the symptoms - but since there was no good reason given for the onset of the condition - I was unhappy with the diagnosis. There MUST be a reason for these symptoms. I was prescribed Omeprazole for GERDS for several years until stopped taking it because I felt that not only was it not helping me, but when I took a tablet it caused me pain.
Eventually, when I went for a brain scan for the pains in my head and tinnitus, the neurologist suggested that I had my parathyroid checked because of the calcium levels in my blood. When I checked online the symptoms of excess calcium I ticked all but a couple of the twenty odd symptoms.
I felt amazingly well for a few days after my op, but after a few weeks I started to go downhill fast. When I saw my endocrinologist at the six week review he told me that I needed thyroxine because my thyroid was struggling. My TSH at the time was 3.5. He told me that my GP was unlikely to prescribe it because I was "in range", but it was clear that I needed it. I started on 50mcg.
My TSH improved initially to 2.5, but then I went back to my GP because I felt dreadful. Another test showed my TSH at 3.8 but he wouldn't increase my thyroxine because I was "in range".
He referred me back to the endo ( a different one) who told me that they only test and treat TSH levels!
I can honestly say that I do feel, in many ways, better than I felt before the op. In fact there were some symptoms that I, or the doctor, had never made a connection with my parathyroid or thyroid, that have disappeared.
However, I now feel that I have replaced one set of problems with another set of problems. I am still tired, but not as bad as I was. I still have brain fog, though not head pain as I had before. I don't have tinnitus any longer.
What I have now is joint pain. Lower back, wrists ( I've had surgery on both wrists for carpel tunnel within the past eight years), heels, shoulder, knees. When I say heels, I mean heels - not ankles.
Now I don't know if the symptoms are due to hypo or reaction to the Levo, (Mercury Pharma).
I haven't got my blood results to handy post at the moment but I know my Vit D is 72, my B12 is high ( I supplement these).
I've bought some Thyroid S but haven't started taking it yet because I'm waiting for another blood test for steroids, or something, I think.
I'd appreciate some thoughts on this.
I eat well and healthily. I take my Levo early in the morning with plenty of water. I wait until lunchtime for my supplements and don't take my HRT until teatime.
Everything in my head balks at taking synthetic T4, favouring a more holistic approach. I've got the Thyroid S from Thailand but am not sure a) how to take it, or b) if I even should.