I'm hoping for some help.
Brief background - Hyper with Graves diagnosed Feb 2012. Aug 2013 I had Total Thyroidectomy. Ever since op TSH has been ridiculously high, until 1 month ago when it finally fell into range. During this time I had specialist bloods done as T4 and T3 were both in range, and found out my T4 was unreliable due to an antibody in my blood (not Graves - something else).
I'm also on Thyroxine and T3 since February 2015. Felt great until Aug 2015 and started to feel tired, little energy, low etc. Thyroid results were all great - optimal levels, so ended up having a full blood test of all hormones/vitamin levels including Cortisol.
Results show I have very high cortisol levels. Range 171-560 - I'm 1172!!
I also have low FSH and LH
I'm now being sent back to my endo for further investigation. GP mentioned possible Cushings/problem with my pituitary. My Mum had a Pituitary tumor 25 years ago, but has no other endo issues.
I'm so upset and low about it all. I'm desperately wanting to try for baby as hubs is a fair bit older than me and doesn't want to leave it too late, and now this. FSH and LH being low isn't a good sign either.
Anyone had high levels or Cortisol? What was treatment etc.