Hi, I have posted about this before but I am really desperate now.
I have been suffering for just over a year and it is now really beginning to get me down. My hypothyroidism had been reasonably well controlled for the past seven years since having my liothyronine increased from 20mg to 60mg three times a day. I am also on 100 levo.
I had a full blood work up in July. This showed my vit D was slightly low - I was diagnosed with vit D deficiency three years ago and had been taking considerably more than the 800iu a day prescribed. I'd also been self medicating on B12 ( following what I had read on this site ) but again I had not been taking sufficient and this was a little low.
My main problem is that my serum ferritin was 29.9 ( 10 - 204 ). I saw an endo at Hull Royal on the 4th August. He said that I had symptoms of over AND under medication. Told me to continue on same dose of thyroid meds. He said that he was not aware that my vitamin and iron levels needed to be higher than non thyroid sufferers. But he said he was willing to believe that my low levels particularly of iron could be causing my problems. I was told to go back to my gp.
I saw a gp the same day, who was unhelpful but said she would write to someone at Grantham and would find out what levels my iron etc should be and how much I should supplement these.
I increased my vit D and B12 and I don't believe I've had any problems.
Unfortunately, I'm really struggling with increasing iron. I took ferrous sulphate 1 tab a day for two weeks. I stopped this because I could no longer take the feeling sick all the time.
I then took ferrous fumarate 1 tab a day for three weeks. Then increased this to 2 tabs a day. After a week of this dose my thyroid problems went a way. At last I did not have the constant head ache that I'd had for over a year. However, my tummy problems became much worse. I had bouts of constipation and sudden onset of diarrhoea. I needed to pass water both frequently and suddenly. I had constant, severe griping pains in my tummy. I put up with this for 3 weeks. I was on holiday and due to fly home and could not cope with this so I stopped the tablets. I intended to resume when I got home but thought I might as well give my tummy a rest. After three weeks my tummy was worse rather than better. My thyroid problems came back in particular the constant head ache, dizziness and shortness of breath. I saw another gp. He again was unsympathetic - basically said I am not anaemic and don't need to take iron tablets. He said there was nothing he could prescribe because my iron level is in the normal range.
There has been no reply to the letter sent by the previous gp. - he'll try and chase that up!
I resumed 1 tab of ferrous fumarate a day almost three weeks ago. Initially, my tummy was better but it did not last. I now feel really sick all the time. I'm suffering with sudden and desperate need for a toilet and don't want to leave the house. Wind is embarrassing. This dose is not enough to alleviate my thyroid symptoms - head ache, dizziness, shortness of breath etc. continue.
I really don't know what to do. I clearly need the extra iron but I can't tolerate it.
Several people on this site suggested I try sachets but when I've looked at them, they have very little iron in them and I clearly need a larger dose.
I just wondered if anything exists that a gp can prescribe if I can find a gp that is more helpful than the two I've seen. I also wondered if I'm reacting to something in the tablets rather than the iron as my symptoms are extreme.
I'd be really grateful for any help.
P/s I'm sorry this is so long but thought it was better than having to refer back to my previous post.