Hi everyone, so thankful to have found this site, like everyone the story is long, here's a ( hopefully) 😄 short history;
Diagnosed with Hypothyroidism in March 15' I have had all the recognised symptons for a number of years, however age (51) and with life challenging events ( bereavement etc) I was distracted from ' the root cause ' of why I was feeling so unwell. I assumed peri menopause grief and chronic stress were the reasons, last year I suspected something else as increased symptoms of migraines, stiff shoulders/ neck, nose bleeds, chest pain, inflamed lump in throat sensation, blurred vision, brain fog, hair loss, anxiety, mood swings, but continued using naturopathic approach of vitamin and mineral support alongside alternative therapies. I suspected thyroid issue but was caught in a cycle of denial. Jan 14' went to A&E severe chest pains all tests done, given all clear. Feb 14 severe migraines ongoing prescribed meds but didn't help so stopped. Feb took up swimming to improve health. April I requested Blood tests, results as follows;
FT3 4.5 normal no action (3.90-6.70)
FT4 10.4 (12.00 - 22.00 )
TSH 4.00 normal no action.
Thyroid autoantibodies 109 (34.00)
Vitamin D 25-OH severe deficiency
Serum Ferritin. 30 ug/l Normal no action
Serum folate 10.8 ug/l normal no action
Serum FSH 87.8 post menopausal
Also had full blood count which didn't highlight any concerns, the GP said I was subclinical and to monitor, suggested I take iron and vitamin D. I advised I would access this myself. I asked for a referral to check lump in throat/ neck region. I found a nutritionist specialising in endocrinology as i try to follow a naturopathic approach to health. Started on food elimination diet following protocol for intestinal permeability removing Gluten, Diary, caffeine and as much sugar, alcohol and started supplements, vit D2 D3. Food enzyme, probiotic, cod liver oil, evening primrose, multi vit/ selenium. Some symptoms reduced however extreme reaction after swimming, hives to neck torso and severe blistering around lips, mouth chin, GP/ nutritionist advised now ige allergy to chlorine, bromine. Left 6 wk gap and same reaction to particular swimming pool.
April; ENT ultrasound diagnosed small 5mm nodule left side and said didn't present a concern, also grazing to thyroid gland in line with a previous inflammation and Hashimotos.
April back to see different GP to discuss and who said she felt I should be taking medication as would only worsen. I advised of dietary changes all of which were dismissed alongside my concerns about neck/ shoulder stiffness and links to osteoporosis and thyroid issues. Again I was fearful of starting meds so continued dietary protocol. Agreed to monitor til may.
May 28th blood results;
FT3 not tested
FT4 11.6 low
Thyroid autoantibodies not checked.
Ferritin 22ug/l slightly low
Vitamin D still deficient ( can't find paperwork for exact figure)
GP requested cortisol / pituitary blood test.
June 3rd blood results; (I had to request FT3)
FT3 4 normal
Thyroid autoantibodies not checked.
Cortisol normal range ( can't find paperwork)
I started taking 50mcg Levothyroxine 5th June severe chest pain, palpitations, thumping heart, One week, reduced to 25mcg, still chest pain, and all other symptons on/ off erratic so reduced to alternate days.urinating more than usual. In some senses I feel better, in other ways not. I feel like I've fallen down a hole and am struggling to get out. I feel isolated and very low at times. In hindsight I believe I was hyper back last year as had lost weight also. On discussion with GP she suggested lump in throat was probably ' globulas ' more psychosomatic and imagined because I am so focused on my thyroid issue. Next blood test 10th August.
I have read extensively, Dr Kharrazian, Isobelle wentz, amongst others and look to a naturopathic approach as much as possible, using acupuncture, and healing. Taking this medication doesn't sit well with me, the obstructive nature of the health care system is all too familiar, bad experience with terminally ill mother, passed away 2012. I trained in Social Work and know how medical model of ill health, causes and treatment does not treat a persons health and wellbeing holistically. I currently work in social care dementia/ Alzheimer's, part time, giving up night work since being diagnosed. I would love some advice on accessing a natural thyroid product, possible referral to Endo, finding better informed GP, to hear from others with the disorder, some guidance and support. And likewise to offer it. I don't won't the label of having a 'disease' I just have a condition that means I have to learn to take better care of myself, something I've neglected to do for a long time.......
I know, I said I'd keep it short.........sorry😗
And a Big Thank you so much for reading 😄 and such immediate responses 😄