My endocrinologist is about to start me on a trial of T3 combined with my levothyroxine, and I wondered if anybody else had some experience of this? I'm hoping this is the end to my problems...
Some background info:
I'm male in my 20s.
Diagnosed with Hashimoto's in August last year. TSH was over 100 at the time and FT4 was less than 5. Anti-TPO antibodies were in the 2000s. I was sleeping all the time, had severe aches in my thighs, groin and stomach, couldn't concentrate at work, was wearing two jumpers (it was 25°C outside) and was having reproductive issues.
Was treated on 100mcg levo for several months during which I got puffy like a hamster, turned yellow, skin started peeling off my hands and feet, became so dizzy I could barely stand up, had spells of terrifying hypothermia, developed extreme nausea, bloating, constipation, burping, severe dental acid erosion (presumably reflux) and chest pains. I had really bad anxiety and occasional palpitations.
In December I started seeing an endo privately who had since increased my levo up to 150mcg. My last results were TSH 0.01, FT4 17, TT3 1.7. Based on this he has suggested I start taking additional T3 and I'm just waiting for him to write to my GP to get this sorted.
My current symptoms are general fatigue, depression, skin peeling off the palm side of my fingers (they are so pink and raw looking now), occasional dizziness/weird sensations, constant mouth ulcers and occasional cold feet and legs. I've also noticed that when I drink alcohol AT ALL (like one glass of wine) I feel terrible for about a week and all my hypo symptoms like freezing cold etc return. I'm worried this means there's something going on with my liver and conversion of T4 to T4.
October last year I also had checked: full blood count (fine), liver (fine), kidneys (fine), cholesterol (fine), B12 (low normal), Vitamin D (v. low), folate (low normal), calcium (fine), iron (fine), ferritin (fine).
Currently taking the following supplements: fish oil, vitamin D 800IU, selenium 100mcg. I also taken naproxen for foot pain (suspected Morton's neuroma).
Before this started last year I was a really fit, healthy 28 year old man. I used to go running several times a week... Now I'm lucky to walk around the supermarket.
Sorry for the long post but I wondered if anybody had any advice? Do you think adding the T3 is going to help me overcome my remaining symptoms? Do you think it would be worthwhile for me to investigate whether anything else (another autoimmune issue?) is going on?
Thanks for the help!