Thyroid: Hi don't know where to turn I don't feel... - Thyroid UK

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Hi don't know where to turn I don't feel well at all my bloods have just come back with TSH 0.01 Free T4 13.1, does this mean my thyroid is okay Thanx

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Clutter profile image
Clutter

Tracybet, Are you on thyroid replacement and do you have the lab ref range (the figures in brackets after your result) for the FT4 result?

tracybet profile image
tracybet in reply toClutter

Hiya no I am not on any replacement and I don't know what you men by the range Thanx

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tracybet in reply toClutter

Hi just found range for tsh which is 0.40-5.00 Thanx tracy

Clutter profile image
Clutter in reply totracybet

Tracy, I think that will be the range for TSH. I was trying to see how low your FT4 is.

I think TSH so low without being on any medication can indicate secondary hypothyroidism (hypopituitarism). This means your thyroid gland may be healthy but isn't receiving sufficient stimulus from the pituitary gland to produce thyroid hormone and you may be functionally hypothyroid.

Your GP should make a point of testing your thyroid FT3 to check the level of your circulating hormone and should also do a pituitary function test to rule out other hormone issues.

Treatment for secondary hypothyroidism is Levothyroxine but it is important to ignore TSH levels and test FT4 and FT3 when monitoring your dose and levels.

patient.co.uk/doctor/hypopi...

eeng profile image
eeng in reply toClutter

I agree. I would say that a TSH that low without treatment is very unusual. If the normal ranges apply to the T4 result it is within the normal range but not great.

shaws profile image
shawsAdministrator

You can have hypothyroid symptoms despite the blood tests. Before the blood tests came into force, we were medicated according to clinical symptoms alone.

If you have a test for the thyroid gland, you should have it as early as possible in the morning, as the TSH levels are highest then.

Labs differ, for some unknown reason, in the way they test so that's why we ask for the ranges.

tracybet profile image
tracybet in reply toshaws

So should I mention to my doctor that I am worried Thanx

shaws profile image
shawsAdministrator in reply totracybet

Your doctor will be quite happy with your results as they have been told not to medicate until the TSH reaches 10. Fortunately, for some, their doctors prescribe when around 5 and with symptoms.

I would wait a while, read and learn what you can so that you become a bit more knowledgeable. Doctors don't like us to be on the internet as they think that puts ideas into our minds. They don't have to struggle with clinical symptoms.

Go to Thyroiduk.org

thyroiduk.org.uk/tuk/

look down the column on the left for information, i.e. Getting a diagnosis etc. there is also a symptom list which you can complete and gather together information from this site.

tracybet profile image
tracybet in reply toshaws

I had only been up an hour before test so don't know if that would make a difference.

shaws profile image
shawsAdministrator in reply totracybet

No, it is best to have the TSH test as early as possible.

tracybet profile image
tracybet

Hiya Been docs my new bloods are Free t4 13.1 Free Triiodothyronine 6.41 Tsh 0.01,been put on beta blockers for my heart and ferrous sulphate for low Iron , sending me for a scan for the lump and we will go from there as he said the hospital will sort out my treatment.

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