Thyroid-S: Hi I started taking a new bottle of... - Thyroid UK

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Thyroid-S

NataliAAA profile image
55 Replies

Hi I started taking a new bottle of Thyroid-S. Batch number TA22024. But I don't feel the same as on my previous Thyroid-S. I think they're either too strong or too weak. The colour is also different. It is more green. Is someone taking this batch number who can advise me on this batch please?

Update on my post- This batch is not strong and not weak. I had a blood test recently after 6 weeks on this batch and all my results are in good range. Just like my previous batches.

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NataliAAA profile image
NataliAAA
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pennyannie profile image
pennyannie

    Brightness14

    Framboise

    mintgreenish

archipoeta

I haven't seen mention of this batch myself but have alerted the above who have posted similar questions on certain batches within the past couple of months :

NataliAAA profile image
NataliAAA in reply to pennyannie

Thank you for answering my question

Framboise profile image
Framboise in reply to pennyannie

Thanks for alerting me pennyannie :)

Litatamon profile image
Litatamon

I have had labs that were really off - TSH 32 (.32 - 4), and a lower T3 level. But my batch was TA22012. And I had nothing to compare it to as this was my first bottle of Thyroid S. The manufacturer has said they have had no issues with that batch.

I have just continued to take it as despite these crazy labs I have felt better than Synthroid. I will test again soon (on same bottle).

pennyannie profile image
pennyannie in reply to Litatamon

I've that batch 22012 but doubt I'll be opening the bottle until year end :

I think it has been mentioned by one of the above ?

Litatamon profile image
Litatamon in reply to pennyannie

I *think* it was mentioned by Maple Moose??, as potentially being problematic .

Once again, I have nothing to compare it to, and have just continued on as despite labs have a lot to be optimistic about with Thyroid S.

I also want to add that the manufacturer asked me to give them my batch number, and immediately cc'ed other colleagues. But stated they have had no issues, I am assuming they meant with that batch number and not in general as TA22006 was mentioned by more than one member and addressed with the manufacturer.

pennyannie profile image
pennyannie in reply to Litatamon

ok then - in for a ' penny ' -

here goes :-

 Hidden

archipoeta profile image
archipoeta in reply to pennyannie

I've got them. 3 bottles. All useless.

pennyannie profile image
pennyannie in reply to archipoeta

I'm your own post from 3 months past - 17 days ago MapleMoose wrote that they are now getting on ok with Batch 22012 and wanting to buy more of this same ' suspect ' batch - !!

So I'm not sure we can draw any conclusions from what has been written, and there could be inconsistency even within a bottle - grain to grain - which is disconcerting but we have no way of knowing unless we do laboratory analysis on each grain.

tahoetwilight profile image
tahoetwilight in reply to pennyannie

Here in the US it's normal for NDT to very from batch to batch nothing new to me🤷‍♀️

pennyannie profile image
pennyannie in reply to tahoetwilight

Yes, thanks for that insight -

In the UK we are not offered NDT through the conventional medical route and have to buy it ourselves and learn how to self medicate which can all be a little unnerving especially when having to buy from abroad an unknown medicine through unknown sources.

pennyannie profile image
pennyannie

 archipoeta

I think this forum member has this batch number ;

helvella profile image
helvellaAdministratorThyroid UK

See:

Problem Thyroid s

Brightness14

healthunlocked.com/thyroidu...

Framboise profile image
Framboise

I've seen this batch mentioned somewhere but I'm not sure by how many people. I'm out at the moment but will check tonight when I'm home and let you know. It seems that most of the problems concern differing potency, rather than anything wrong or new with the ingredients, but we still need to query this with the manufacturers I think. Back later!

Litatamon profile image
Litatamon in reply to Framboise

Just for information purposes, when I was inquiring about any issues with my batch number, I was given percentages of T3 & T4l, in each batch discussed, and there were very slight variations. I did not ask for that information, it was openly given in the discussion I was having about my lab results being so off.

helvella profile image
helvellaAdministratorThyroid UK in reply to Litatamon

Do you have that information available? Could you to pass it on or post it?

Litatamon profile image
Litatamon in reply to helvella

Sure. Was a bit hesitant initially due to rules.

The first excerpt is about my batch TA22012 -

"The amount of T3, T4 in this batch is normal. T4 has 107.0% and T3 has 103.0%.

Our current batch is TA22054. It has 108.8% of T4 and 106.2% of T3. "

helvella profile image
helvellaAdministratorThyroid UK in reply to Litatamon

The problem areas are glandulars which don't declare their thyroid hormone content being discussed as if they have a specific potency.

And identifying suppliers of products which are, or would be in the UK, prescription-only.

Litatamon profile image
Litatamon in reply to helvella

Thank you helvella.

pennyannie profile image
pennyannie in reply to Litatamon

Is it me but wouldn't one expect both batches to be with similar % ?

How does one read and understand this reply ?

I wonder what sort of tolerance levels they work to ?

Doesn't the 2nd batch look to be more ' strong ' than the first batch ?

Going by this I think when we start any new bottle we need to be open to small variations in content and dose as we resettle our dose according to the grains in the bottle.

Maybe I think I need to lay down in a dark room !!

Litatamon profile image
Litatamon in reply to pennyannie

I just noted it because I thought, hmmm that slight variation might explain some members saying that this batch felt stronger, this one not as much.

pennyannie profile image
pennyannie in reply to Litatamon

Well, it's difficult and confusing , isn't it,

The symptom we are treating are insidious and creep up on you overtime and we have been brain washed into thinking it's all our fault anyway and then reduced to seeking an alternative treatment option that for those on it is far superior than T4 - monotherapy.

It's not like we want thousands spent on researching anything anyway :

Just for the NHS to reinstate the treatment options that were readily available through your local doctor back in 2000 !!!

SeasideSusie profile image
SeasideSusieRemembering in reply to pennyannie

I have read elsewhere that the manufacturers do say that batches will possibly differ in hormone content and people should retest after starting a new batch and adjust dose if necessary.

pennyannie profile image
pennyannie in reply to SeasideSusie

Thank you - sounds a bit like playing Monopoly and holding a get out of jail card !!

Framboise profile image
Framboise in reply to Litatamon

How interesting, I didn't know any of the manufacturers disclosed this information. There's a percentage up and down within which the potency is considered ok, but I forget what the percentage is. When Nature-Throid had problems about 3 years ago all they would say was that all the reported batches were within the required percentages. But then the FDA recalled some of them! I think that the difference in the ones you've been told wouldn't be noticed by any of us taking them, but we probably would notice a difference if we went from a batch at say 108% to one at 94%. During the Nature-Throid problems there was also a suggestion, or perhaps it was confirmed, that manufacturers add in a bit of a synthetic to keep the percentage correct.

papayarose profile image
papayarose in reply to Litatamon

what do these %'s mean? i assume the higher is better but i'm confused & curious.

Litatamon profile image
Litatamon in reply to papayarose

I am probably not the most knowledgeable on all this papayrose, but I am assume that if each grain is supposed to have a certain amount of mg of t3 & t4 then on both of those batches they went a little bit above the target in the formulation, when tested for quality control. There is probably some leeway for it to be a doable good "normal" batch but like Framboise noted but not some more massive slide above and below.

This is only my guess.

witchcat43 profile image
witchcat43

I started a bottle with this batch number in December…so far I haven’t noticed any difference 🤷🏼‍♀️

Framboise profile image
Framboise

Hi again Natali, I've checked on this group and the only mention I can find is in this thread, where tahoetwilight is wondering about buying it and BettyDel isn't sure if it's ok:

healthunlocked.com/thyroidu...

I've also gone through the WhatsApp group I'm in, and a couple of Facebook groups, and I can't find any other mention of your batch. The batch some others here have been querying recently is TA22012 and prior to that 21079, although I know of others who did fine on both of them.

The greenness is strange. A few people have mentioned a green tinge, others have had the same batch numbers and said they were the usual colour. When I queried different colours with Sriprasit I received this response: "Thyroid S is a natural Thyroid extract. The color of the extract may vary from batch to batch. However, we certify that the high-quality raw material from Europe is the main ingredient in our Thyroid extract product.” But if you don't feel well I suggest you contact them and ask if they know of problems with your batch number.

I used to buy in packs of 250 a time, so got through them quickly, and I often noticed slight differences in the potency of different batches, but only to the extent of needing to alter my dose by 1/4 grain up or down to feel the same as before. Whatever is going on now seems a bit more of a trial than that.

pennyannie profile image
pennyannie in reply to Framboise

I think we need to promote you to the position of " King Pin " - congratulations !!

You seem much better able to liaise with all other groups and co-ordinate the information -

I'm afraid it's not a salaried position though might recompense by sharing ' dodgey ' batch numbers. !!!

Thanks for the update :

Framboise profile image
Framboise in reply to pennyannie

Thank you pennyannie, it's a liaison born of necessity years ago when first Armour, and then ERFA, seemed to be distributing some iffy, or reformulated, NDT. Some of us tried to unravel what was coming from where and which countries were distributing it. I've continued noting batch numbers ever since because I never quite trust a new batch of anything now until I've tried it for a few weeks! Some might say it's a sad way for me to pass the time 😂

pennyannie profile image
pennyannie in reply to Framboise

I don't think it's sad as it reads more like self preservation and grateful someone is looking out for us all !

You deserve this promotion and I'll look out for a badge for you !!

I'm not computer literate nor inclined to keep so many balls in the air and don't know where the emoji's live so shall just say Thank you again !!

helvella profile image
helvellaAdministratorThyroid UK in reply to Framboise

high-quality raw material from Europe

I don't remember ever previously seeing the claim that the Thyroid USP comes from Europe!

The assumption has always been that it is either Thai or Chinese sourced.

I wonder if this is where much of the Thyroid USP from Biofac, even Bioiberica, goes.

pennyannie profile image
pennyannie in reply to helvella

It does make you wonder as I'm not aware of other sources of NDT other than from those available without prescription to buy from the USA.

helvella profile image
helvellaAdministratorThyroid UK in reply to pennyannie

It would be so good if the Thyroid S manufacturer would just put up a web page (they already have a website!) listing full ingredients and, for the Thyroid USP, where it comes from!

Not suggesting that anyone is not faithfully reporting what they have been told, but it would be so much better for us all to be able to see for ourselves!

pennyannie profile image
pennyannie in reply to helvella

Even better if we weren't all made to feel like criminals simply for trying to be well when failed by the system in place.

We should be commended for saving the NHS money - we have to pay into the system but then can't access the necessary full spectrum thyroid hormone replacement if monotherapy with T4 - Levothyroxine doesn't restore health and well being.

Rather than being ' off sick and claiming benefits ' we help ourselves reclaim our lives, return and work as best we can, and soldier on as what other option is there ?

Hey Ho !!

helvella profile image
helvellaAdministratorThyroid UK in reply to pennyannie

Couldn't agree more.

in reply to helvella

I have, in the past, attempted to contact the manufacturer to query why there is lack of information regarding Thyroid S. I even challenged them stating that the pharmaceutical and food industries around the world are, and should be ethically bound to provide all ingredients and % of active medical components in their products for the health and safety of potential consumers. In most countries, it is illegal not to do this. Not surprisingly, I had no response. If it wasn't the case, that Thyroid S is the only viable option for me, I would stay clear of this company. Unfortunately, in the Thyroid disease world, we have to grab at very short straws in the hope to feel anything like well. It annoys me that considering so many people suffer with thyroid disorders, why so little research and funding is given to it.

helvella profile image
helvellaAdministratorThyroid UK in reply to

I'm glad to read that you tried. Thank you.

Framboise profile image
Framboise in reply to helvella

Yes that is what they said, which surprised me because I thought the problem with the Thyroid-S shortage a couple of years ago had been lack of thyroid raw material due to swine fever in the Far East. As ERFA is manufactured in Spain, I imagine their raw ingredient is also European. I felt somewhat happier thinking that Thyroid-S is derived from European pigs actually. It shouldn't make a difference but did. I also wish Sriprasit had a website detailing ingredients, they can hardly claim they're a commercial secret when places such as STTM list them! I may send a longer email to them soon ;)

helvella profile image
helvellaAdministratorThyroid UK in reply to Framboise

What you say makes perfect sense. But, sadly, seems undermined by what little evidence we have!

In case anyone is interested, I found this reply by Bioiberica to someone who contacted them:

Unfortunately we only sell our NDT to companies located in Germany, Netherlands and Denmark.

healthunlocked.com/thyroidu...

Trouble with STTM is they have two conflicting lists of ingredients.

Framboise profile image
Framboise in reply to helvella

Germany and Denmark I can understand, but the Netherlands is a new one to me, I wonder what they use it for. If they compound NDT that could be useful to know.

I hadn't realised that STTM has two different lists, it doesn't surprise me really!

helvella profile image
helvellaAdministratorThyroid UK in reply to Framboise

I have seen mention of desiccated thyroid being supplied in the Netherlands. I think some is Danish but suspect the rest miught be produced by compounding pharmacy-type places.

papayarose profile image
papayarose in reply to Framboise

unfortunately thyroid s ndt most likely comes from china. i researched this like crazy a while back when i was using thiroyd & 2 company's out of china make ndt. i've seen it claimed thyroid s gets it from germany which would explain the drastic price hike & make it worth it but i don't know.

in reply to Framboise

Only saw this now. This is info about NDT in the Netherlands (prescription only so should be OK to post here):

natuurapotheek.com/index.ph...

papayarose profile image
papayarose in reply to helvella

is the raw material they use from europe or do they source it from china? in my deep dive i found that a u.s distributed it but sourced it from china. it will go through a better inspection process being distributed through europe or u.s but i really suspect it all comes from china.

helvella profile image
helvellaAdministratorThyroid UK in reply to papayarose

I am fairly sure that the desiccated thyroid powder in Netherlands comes from Biofac in Denmark and/or Bioiberica in Spain. Both companies most definitely offer their own products for sale into the pharmaceutical industry.

Recently there was a claim that the desiccated thyroid powder in Thyroid S is sourced from Europe. But I am very much NOT convinced.

NataliAAA profile image
NataliAAA in reply to Framboise

Thank you very much Framboise for your help.

archipoeta profile image
archipoeta

None of my batches of 22012 work, inspite of my doubling the dose I took of Naturethroid, and the first, wonderful bottle of Thyroid S bought last year. A long correspondence with the manufacturer yielded nothing except bland assurance that they were up to the usual standard, bla, bla,bla. I'm here to tell you that they were not.

welsh_babe profile image
welsh_babe

I have this batch TA22024 and it's worked fine for me as the previous batch I had was not good. I just got a new batch TA22057 and it's completely different so am currently playing with my dose again. Its very annoying that each batch seems to be so different as I got 2 bottles of this new batch and am fed up with having to email and them tell me it's all fine again

helvella profile image
helvellaAdministratorThyroid UK in reply to welsh_babe

Thyroid S Batches

A summary of known and suspected potency of Thyroid S batches.

helvella.blogspot.com/p/thy...

welsh_babe profile image
welsh_babe in reply to helvella

Thanks have emailed with my current review lol

helvella profile image
helvellaAdministratorThyroid UK in reply to welsh_babe

Thanks - updated. :-)

mintgreenish profile image
mintgreenish in reply to welsh_babe

Hi Welsh babe. I have started batch TA22057 a week ago. My previous batch was very strong and didnt really get on with it so great. If I may ask, how have you found it ? Agree that its quite annoying and scary to play around with a new batch. I learned the hard way to start very low and work my way up. Hope it worked out well for you.

Hi, I've just come across your post. I've been taking Thyroid S for several years now and each batch is very different. I have felt awful when starting most batches but on most, the symptoms do get better when I have the right dose. I am very sensitive to medications and certain foods, so the slightest differences reak havoc with my system. I am also in the menopause which doesn't help things, as a lot of the symptoms mimick thyroid issues. I have just started a new batch myself TA22057, and getting the same yucky feelings as last time starting my previous batch (achy, fatigue and muggy head). I have come to the conclusion that I need to hold off on the meds for a day or two before starting a new batch and then start at a 1/4 of a grain, then add more in quarterly increments until these symptoms subside. It took me 2 months last time to tweak things, but I was in a pretty bad state at the beginning. Maybe it would be worth trying the quarterly test. It is a total pain, especially when you get to a good state only to have to go through it all again. This self medication malarkey is a nightmare sometimes, but there's no other option for me or many others so we have to plod on. Everyone is different and experiences things very differently so it's hard to compare with others totally, for eg. My mother has hypothyroidism and has taken Levo for years, she is 83 and has absolutely no thyroid symptoms, nor issues taking Levo monotherapy. I often feel more fatigued than her, which is crazy. Even folk with the same genetic make up can differ. I certainly envy her thyroid treatment experience, it would be wonderful and a heck of a lot cheaper. When I've queried the manufacturer about batches, they either don't reply, or they just say there's no issues with it.Wishing you all the best in getting the right dose and feeling better.🤞

🍁🦌

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