Hi everyone - if anyone can help advise I'd be very grateful.
My latest results are TSH 4.5, free T4 12, free T3 5.9 and 'wildly high' antibodies.
As background: I was first diagnosed with hypothyroidism 18 years ago (age 22) but no antibodies, TSH 126. Levothyroxine helped and I took it for years, but the dose was slowly whittled down until in the end, in my late 20s, I no longer had to take it. I fell pregnant when I was 37, still not taking any medication, and by the end of my pregnancy TSH was 3.4 but baby was fine thankfully as know this is a little high, then afterwards my TSH fell to 2.4. Unfortunately I had a very difficult time during childbirth and have had a form of trauma since although it's definitely been improving. A year and a half ago I was diagnosed with TSH of 7, I was put on levo again, only 25mg and then 50mg, at which point my TSH became 0.01, so reduced meds again, but then TSH rose back up to 3.5. As I was hoping to try for a second baby my GP said the aim was to get TSH sensibly beneath 2.5, but as we upped my dose gradually to 75mg about 10 weeks ago I became nauseous, then other GI symptoms followed which have left me in bed every day, my temperature fluctuates between 33.8 degrees and 36.8 degrees, I've lost weight (partially through feeling so sick but not enough to explain losing 10kg ie gone from 48kg to 38kg), I feel dreadful. I gradually whittled my levo down but felt so ill every time I took it (plus think I've developed lactose / dairy intolerance with whatever's going on) and with my GP's blessing we've temporarily suspended taking the levo, particularly as my latest blood tests now show free T3 of 5.9 which is at the high limit of the limits used by this particular lab. I feel so dreadful (weight loss, fatigue, nausea) every day. I just don't understand what is happening, and really what has been happening over the past 18 years in that one minute I don't have antibodies and eventually am no longer hypothyroid and on no meds, yet now I'm underactive with antibodies but highish T3. Sorry for the lengthy post but if anyone could help I would be grateful. I am also now under the care of a gastroenterologist due to my GI symptoms, waiting for biopsy results after endoscopy and got a CT scan lined up. I have also had a lump on the left side of my neck (for months), due to have ultrasound. Thank you for any help.