I am hoping I can get some advice. I have been on levothyroxine for 6 years. First diagnosed when I turned 30 and was investigated for fertility issues. It took me one year to conceive my daughter (conceived after only a month of being on levo). I have never felt entirely perfect on levothyroxine and over the years after having had two children (3 and 4 year old) it has got worse. My free t3 levels have always been on the lowish side no matter the dose I am on.
My two main issues are chronic constipation, been treated for fissues etc and now on lactulose daily and still can not go easily (I take a high dose of magnesium cheleated at night, doctors best brand). And Chronic Insomnia. The insomnia can get so bad I do not sleep at all for days and it can make me feel depressed. Yet I am a happy person, I work three days a week and looks after my young children and generally can say I look well and I am a healthy 9 stone and 5ft 5. This is the problem I look well but I am suffering.
I asked my doctors last summer to reduce my levothyroxine from 100/75 alternate dosing to 75mg as the insomnia was chronic. I did go and see an endochronologist about it but she was so rude and suggested the insomnia was due to stress and suggested I see a psychologist. Yet I know its chemical. Anyway the proof is I reduced the dose to 75mg and the insomnia went away and I started sleeping like a baby, in fact so well I looked forward to sleep again BUT my bowels more or less stopped working and I had to go into hospital and was given high grade laxatives. Anyway it was then increased again and the bowels worked a bit better but not great and once again I am not sleeping. I have noticed that I sleep well when my free t4 is mid range and I feel best when my free t3 is around 5 or slightly higher as I realised with the one result tested below taken after my second child.
My question is this:- I am now looking at a high TSH despite high free t4 and middle to low Free t3 result. I have the insomnia back but I don't want to drop my dose because of my constipation.
I do not have a lot of money. My endo didn't want to know about the insomnia and so I am now left in the realms of self treatment. I want to be well so I can look after my children and after too many sleepless nights everything suffers.
Do I purchase some t3 online. Drop my Levo down to 75mg when I didn't have the insomnia and add in 5mg of cystomel? Do I take it together in the morning and restest privately in 6 weeks time. I am nervous about doing this but I want to be back to normal again! Thank you so much for taking the time to read this and your advice.
I have kept track of all of my results
LAB RANGES TSH Free T4 Free T3
0.3-5.0 9 to 24 3.5-6.5
21st Jan 13 125 TSH 0.03 Free T4 23.5 Free T3 6.4
Feeling v well but reduced to 100mg by doc. Taken three months after having baby
28th Mar 13 On 100mg - TSH 0.03 FREE T4 17.1 FREE T3 4.1
10th May 13 100 0.59 15.1
25th June 13 100 1.3 15.1
15th Aug 13 100 0.77 19.8 Tried 100/75mg alternate dose due to insomnia issues - Varying days
4th Nov 13 75/100 TSH 1.0 FREE T4 16.8
4th Feb 14 75/100 1.2 FREE T4 15.7
1st july 14 75/100 TSH 1 FREE T4 16.6
Apr-15 75/100 TSH 0.69 FREE T4 17.9 FREE T3 4.4
Jun-15 75/100 TSH 0.11 FREE T4 21 Dropped dose to 75mg due to insomnia
Jul-15 75 TSH 1.6 FREE T4 15.3 FREE T3 3.7 Insomnia gone, sleeping well! but constipation is now chronic. Retested Antibodies and both negative for thyroid disease.
Oct-15100 TSH 2 T4 Not taken T3 Not taken. Insomnia back and still constipated
Jan-16 100 TSH 3.43 FREE T4 22.7 and FREE T3 4.6 Private test paid for - told over replaced