10 year old with underactive thyroid and coeliac - latest blood test results.

[Sharon710103]

Hi just an update on my daughter. After 6 weeks of reduced thyroxine (62.5mcg) she feels much better and tremors and other symptoms have stopped. I explained to her about symptoms feeling real but are anxiety related and she seemed to understand and is now not having the crying and panic attacks she was. Her blood tests came back today as: vit B12 528, folate 10.1, ferritin 17, serum free T3 5.4, serum free T4 16.9 and serum TSH 0.05

Her ferrotin level seems low when range is 11-307 but GP says ok. Her T4 is just within range (7 - 17) but GP now wants to reduced thyroxine again and I'm concerned this will take us where we've been before with a low T4 next time bloods are taken x

[Clutter]

Sharon, good news about your daughter's improvement. As her FT4 is within range I don't understand why your GP wants to reduce your daughter's dose further and would strongly advise you to argue the point and resist a reduction.

Your daughter's ferritin is very low. 70-90 is considered optimal. You can buy ferrous fumarate in the chemist. Take each dose with 500mg-1,000mg vitamin C to aid absorption and mitigate constipation. Remember iron needs to be taken 4 hours away from Levothyroxine.

[shaws Administrator]

Reallyfedup has made a good suggestion about your daughter being under the care of a Consultant for her Coeliac disease.

Don't reduce her levo upon a doctor's whim. If she is much better with the increased dose, he shouldn't mess around.

[Sharon710103]

Thank you. I suspected you would advise not to reduce thyroxine and it was my gut feeling not to so I've been giving her the normal amount. I've questioned her ferritin level being so low and gp said it's within range and fine. I'll get some myself for her and some vit c. She is under a coeliac consultant as well as a thyroid one but she only sees the coeliac consultant once a year now as he considers she's fine now she's on a gluten free diet! Is her thyroid consultant likely to agree with me not lowering her dose and giving her ferritin and vit c? Thank you again