Antibodies: hi all. Sorry another post from me... - Thyroid UK

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Antibodies

103 Replies

hi all. Sorry another post from me! 🫣 anyone got an advice to reduce Hashimotos antibodies and also if you manage to successfully reduce the antibodies does it make you feel better the lower the antibodies? X

103 Replies
tattybogle profile image
tattybogle

i had TPOab of >3000 [0-50] at diagnosis / starting levo

20 yrs later i now have TPOab of 102 [0-34].

what did i do to achieve this astonishing reduction ?

nowt..... apart from take levo and waiting 20 yrs , (during which time i continued to eat whatever i like)

do i feel any better now they are so much lower ?

Nope ..... (if anything i am worse , mind you, i am now 20 yrs older)

greygoose profile image
greygoose

Why do you want to reduce them? They're not doing you any harm. They have a job to do and they do it. They clean the blood of all traces of TPO after an immune system attack on the thyroid. There shouldn't be an TPO in the blood, so their job is sort of essential.

But, they don't cause symptoms. Symptoms are caused by the hypothyroidism caused by the Hashi's. The antibodies are just the result of the disease, they don't cause it. So, getting rid of them - even if it were possible - won't help.

in reply togreygoose

oh that is so informative thank you. I was under the impression that reducing the antibodies would ease symptoms. A few people on social media sell programs and state they can ‘heal’ the hashimotos by reducing the antibodies and cure all symptoms. Obviously now I know that’s just a money making thing!! I didn’t even know what antibodies were!

greygoose profile image
greygoose in reply to

What a wicked thing to do! Taking advantage of sick and desperate people! You should report them.

As things stand, there is no cure for Hashi's - if there were, we'd all know about it! But you certainly can't do it by reducing antibodies.

In any case, it's not the Hashi's itself that causes symptoms. It's the resulting hypothyroidism. The disease destroys the thyroid so that it can no-longer make enough hormone to keep you well. Thyroids to not regenerate, so the hypothyroidism is for life.

in reply togreygoose

Thank you. It’s hard to know what’s causing my symptoms, anxiety or the hypothyroidism! X

greygoose profile image
greygoose in reply to

Anxiety is a symptom, not a disease. And it is often a symptom of hypo. So, it's more than likely the hypo causing all your symptoms AND the anxiety.

in reply togreygoose

Yes I understand that but in my case my anxiety can cause physical symptoms too

greygoose profile image
greygoose in reply to

How do you know?

in reply togreygoose

Because I’ve had anxiety a lot longer than I’ve been diagnosed with hashis

greygoose profile image
greygoose in reply to

You don't start being hypo the day you're diagnosed! It starts long before that. Hashi's starts very slowly and creeps up on you. Symptoms can start long before blood tests start to show a problem. And in the early days you wouldn't notice it too much because your adrenals take up the slack. Absolutely impossible to say when the Hashi's started.

in reply togreygoose

Funny you say that, when I was 15 some antibodies showed up in my blood when I had pericarditis (inflammation around the heart) but no one ever mentioned the hashi’s!! Maybe it was then!

greygoose profile image
greygoose in reply to

Maybe that was the start but no way of knowing.

Doctors tend to ignore antibodies because they don't really understand their implication. But if you had high, over-range antibodies at that time, it does mean that you had Hashi's - although impossible to know how long you had had them.

in reply togreygoose

Frustrating isn’t it. Is there anyway of keeping it under control? Any advice for it not to get worse? Sorry for the questions but I find it much more useful on here than the GP!

greygoose profile image
greygoose in reply to

There's no way that I know of, no. But, think about it logically:

- the only treatment is thyroid hormone replacement, replacing the hormone that your thyroid can no-longer make enough of

- if you're already on thyroid hormone replacement and no-longer rely on your thyroid for your T4 and T3, then it doesn't really matter how much more of your gland is destroyed

- starting thyroid hormone replacement means that your thyroid makes less and less hormone anyway, as the TSH reduces, until it's probably no-longer making any at all, and during that time, the immune system continues to destroy the gland but you won't notice it so much because you will have the exogenous hormone to keep you going

The 'hyper' swings can be inconvenient, it's true. Especially if you have a doctor that doesn't understand what they are, but that doesn't last forever. I had my last 'hyper' swing when I was 50, although there is still some of my gland in working order, I'm now 79. :)

in reply togreygoose

Honestly thank you so much, you have really put my mind at rest. I was seeing all of these horror stories online about it and I was having sleepless nights and panic attacks thinking my life was over at 32! The GP’s seem to have such little knowledge of this type of thing. So once my thyroid is under control (with the right dosage of hormone replacement) there shouldn’t be anything to be overly concerned about should there? X

greygoose profile image
greygoose in reply to

So once my thyroid is under control (with the right dosage of hormone replacement) there shouldn’t be anything to be overly concerned about should there?

Depends what you mean by 'under control'. You do know that thyroid hormone replacement has no effect on the thyroid itself, don't you? Lowering the TSH with T3 and/T4 will put your thyroid to sleep, but it doesn't improve thyroid function in any way.

But, you're right, being on the right dose of the right type of thyroid hormone replacement is the most important thing and should make you well. :)

in reply togreygoose

Yeah that’s what I mean. I know it will never function properly without medication and I’m fine with that, I’ve accepted that. I just worried that it would cause me to be really unwell for the rest of my life while I’m a mum to 2 really little ones. I just needed reassurance that once the thyroid levels were stabilised with thyroxine, I shouldn’t have to worry about being unwell forever if that makes sense x

greygoose profile image
greygoose in reply to

It will never function properly again: period. With or without 'medication' - thyoid hormone replacement - it will never ever function correctly again.

You are living on exogenous hormone now, but if that is correctly dosed you should be ok. :)

in reply togreygoose

Are you symptom free now?

greygoose profile image
greygoose in reply to

My case is not typical and shouldn't be taken as any sort of example (see my profile). And I'm 79 so can't compare to a 32 year old in any way. But, apart from the dreaded mucin, I think I'm pretty much hypo symptom free, yes. But difficult to tell since covid reared its ugly head!

dayoff profile image
dayoff in reply to

I feel for you CAB2. I was 25 when I started feeling very unwell. I was 33 with my 2nd baby when it was finally medicated. I had 2 little ones and it still wasn't enough and the anxiety was all consuming. Having little ones makes healthy people more anxious so the double whammy is hellish amounts of anxiety. I am now nearly 48 with 3 children, 2 of which are teenagers. I am now getting peri menopausal symptoms. Let me reassure you that I feel way better than I have since I was 25. Getting the dose right is imperative. Once that is ok your anxiety will calm right down. Finding this site a few years ago has further helped me. Our bodies aren't functioning as well as they should even on meds so we have to put more effort in to our diets. This isn't a bad thing. Everybody should be eating veg, fruit, good fats and fibre and nothing else, hence all the sick people of today. I think im healthier than most of my friends! Keep asking questions on this site. I would go gluten free first. Stay away from processed anything and alcohol will send anxiety through the roof. I'm still toying with dairy free but i've cut down. I feel like I need a food intolerance test to persuade me first as i'm not feeling bad enough to make such an effort :). It's hard because it's new but you'll get back to your old self with some trial and error.

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

May I politely Pop in and ask how you know some is working 🤔

greygoose profile image
greygoose in reply toCup-cake7

I'm sorry, how do I know some what is working? I don't know what you mean.

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

Apologise. I was replying to your reply higher up 😊

...you said you still have some of your gland working so i asked how do you know this?

( I wish i knew how to highlight parts of text)

greygoose profile image
greygoose in reply toCup-cake7

Ohhhhhh ok! lol

I know because after about 20 years of thyroid hormone replacement, I came off it - for reasons I shan't go into here, but it's all on my profile. I stayed off my T3 mono-therapy for six weeks, but then noticed I'd started to put on weight. So, I asked for a thyroid test and my TSH was around 45 and although the thyroid hormone levels were right at the bottom of the range, they were in the range. So, my thyroid must have produced them. In fact, my FT4 was higher than when I was on T3 only.

Of course, that was ten years ago, so it could have packed up since then, but probably not because I haven't had an attack on my thyroid for nearly 30 years. But I can honestly say that I have no intention of trying to find out! :)

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

Wow gosh a few f words Iv read profile what a journey!!!!! Never give up is the motto

Can rt3 be tested anywhere so was it relevant to you I'm unsure?

Is it worth having X-ray of thyroid to see ?

Intrested in growth hormone. I wouldn't know where to start I relate to feeling brain foggy etc even from age 8. What a minefield

greygoose profile image
greygoose in reply toCup-cake7

rT3 is irrelevant to the majority of people - if not everybody. It gives you no information that you can't get from the other thyroid tests, and rT3 itself is a complete red herring as it doesn't do anything.

An x-ray of the thyroid wouldn't show you anything, it's an ultrasound that you need to look at the thyroid. I had one of those and my thyroid was the size of a shriveled-up pea, confirming Ord's.

I don't think brain fog has anything to do with growth hormone. But if you want growth hormone tested you'd have to smile nicely at an endo. It is possible to test it but not something you can do yourself, privately.

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

Very helpful. Thankyou. Do you know if old adults can be given growth hormones for benefit

greygoose profile image
greygoose in reply toCup-cake7

We-ell... Not on the NHS, I shouldn't think. It's very expensive and difficult to work with. It needs to be kept refrigerated at all times. And you can only get it on prescription because sources are limited. When I was taking it, I got it from a private doctor in Paris. But it had to come from Belgium because it's illegal in France. At that time, there were only three countries in the world that manufactured it: Mexico, China and Belgium. Funny story there, don't know if I told it on my profile.

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

It's a profile & a half 😊. I think you deserve commendation to be here & helping these yrs!

il not Persue then! I'm inclined to want to stop/reduce Levo if my thyroid shows up ok in a scan. Even if I have to pay. Maybe

Cup-cake7 profile image
Cup-cake7 in reply toCup-cake7

Ps. I had operation. After I lost weight in very strange area, top of chest area and really baffled when Tum etc needing it much more Do you know anything pls?

greygoose profile image
greygoose in reply toCup-cake7

A scan doesnt tell you everything. It won't, for example, tell you if you have secondary hypo, where the problem comes from the pituitary rather than the thyroid itself. The thyroid will look fine on a scan but you'll still be very hypo if your pituitary isn't producing enough TSH. So, that really doesn't sound like a good idea. Blood tests will give you more information about things like that.

What operation did you have?

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

I had a hip replaced Sadly pelvis is now tipped up so leg seems a lot shorter and no explanation so it's frustrating

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

...so there are pituitary blood tests 🤔 well I wish I had been sent that route first

greygoose profile image
greygoose in reply toCup-cake7

There are blood tests to test the other hormones made by the pituitary, not the pituitary itself. Human Growth Hormone is a pituitary hormone like TSH and ATCH, which stimulates the adrenals to make cortisol.

Sorry to hear about the botched hip replacement. That's rough. But not sure it has anything to do with weight-loss.

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

....thanks. It's a mess. 🤷‍♀️no. I didn't eat for a few days after op it's just strange that I lost weight above chest area and not in fatty places ?

So is tsh only responsible for the T4 production side.

I'd love to know if thyroid will kick in I always wondered why I had high t4 before Levo and still given Levo

greygoose profile image
greygoose in reply toCup-cake7

TSH stimulates the thyroid to make thyroid hormone, both T3 and T4. It also stimulates conversion. But, whereas the thyroid cannot make thyroid hormone without the stimulus of the TSH, people can often convert with out it.

But that's all it does. It doesn't affect bones or hearts as doctors believe.

Why do you think your thyroid might 'kick in'? That's not really what thyroids do. If Hashi's has destroyed your thyroid it cannot regenerate. It will never be capable of 'kicking in'.

in reply togreygoose

I think you’ve made more sense than my doctors have since April!! I’ve been back and forth with symptoms but every single time they say ‘but you’re in range it’s all in your head’

greygoose profile image
greygoose in reply to

Yes, well, that just goes to show how little they know about it! It is so shocking that they are not taught in med school how to interpret blood tests and what a range really is. Just because your results are in-range doesn't mean that all is well because it very often isn't! I'm sure they would be horrified if they ever realised just how ignorant they are.

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

Oh. When I read yours still had life in it I got a spark of hope Iv not had a Hashimoto diagnosis 🤔

greygoose profile image
greygoose in reply toCup-cake7

Well it only had a spark of life! I survived for six months but doubt I could have gone on much longer without restarting my T3. It was residual life, not new life. My thyroid hadn't regenerated or cured itself. It had been 'asleep' during the years I'd been on thyroid hormone replacement, but the destruction had continued and the hormone it had been capable of making on 'waking up' was much less than it had been at diagnosis. I would not recommend you stop your thyroid hormone replacement to find out.

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

But as I havnt Hashimoto it may be in good nick 😊

greygoose profile image
greygoose in reply toCup-cake7

But it obviously isn't if you're hypo! Do you know what caused your hypo? I thought you had Hashi's because this is a discussion about antibodies. :) But there are many other causes of hypo and just because your thyroid looks good doesn't mean it is capable of working correctly.

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

Eternal optimist 😊. Thanks. Well I may have been hypo-ish much of my life as no way of checking 🤷‍♀️ or, it's a menopause factor ? Taking ostregen out my tsh to 0.5 just like that so it has to be connected so you'll understand why I feel it's a possibility

greygoose profile image
greygoose in reply toCup-cake7

All hormones are connected to each other. So, if one is out of kilter, all the others tend to be. And it's thyroid hormones that have the greatest effect on other hormones. So, optimise your thyroid hormones and the others tend to sort themselves out. But just because taking oestrogen has an effect on your TSH doesn't mean it can bring your thyroid back to life. So, no, that's not a reason to feel it's a possibility.

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

Yes. I suppose im just sad to have gone Levo route and surpressed, im not sure its good for heart etc. As if I'd had hrt initially and not refused it and known about supps etc Im sure I would not have become so ill for so long. Maddening! as gps did nothing to support at all same old story. Hindsight and knowledge.

greygoose profile image
greygoose in reply toCup-cake7

If you were/are hypo then there's no other route to take. You cannot replace a hormone with a vitamin! And taking hrt would not have sorted out your thyroid. You're getting this all mixed up and topsey turvy.

And gps could have done nothing to support you because they just don't have the knowledge.

So forget your regrets and start looking to the future. :)

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

Yes I know.

I think though I may not have needed Levo if had the hrt initially as tsh went from 5 to 0.5 after a very short time so 😊 I agree to differ on that one. I can't change it but I'm human after all. In effect it b---- up my own thyroid by taking Levo. ( my T4 was excellent without Levo after all

Onwards and up 😊

greygoose profile image
greygoose in reply toCup-cake7

You cannot draw any conclusions from the time it takes levo to drop. It is totally unpredictable and uncontrollable.

And it didn't b--up your thyroid. Stop taking the levo now any your thyroid will go back to doing what it was doing before you started it. It doesn't harm your thyroid. It has no direct effect on the thyroid.

Your T4 was 'excellent' because your TSH was high, meaning that your failing thyroid needed excessive stimulation to make enough T4. But the question is: how long would it have been able to continue like that? How high would the TSH eventually have gone? At some point you would have been forced to go onto levo and better sooner than later, before lack of thyroid hormone has damaged other parts of your body.

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

😊 my point is

.... I don't know what my TSH was before my ostregen deficiency arrived through menopause - I wish I did

It could well have been under 2 and probably was as I was a fit healthy working mum with lots of energy for 13 years after childbirth

So, my ostregen went on the slippery menopause slope and it affected thyroid - I agree that the bodies hormones are intertwined together!

So, if I had supplemented oestrogen all would have stayed in place, and TSH would not have flagged up hypo , hence Levo therapy ( after years of menopause oestrogen deficiency ). In other words, something gives!

This is what Iv tried to express

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

ps.

My hope is that if I stopped Levo my thyroid would now cope ok, now that it has the ostregen/totesterone replacement ( as it did before menopause when I was very well)

Is there a way I can feel the way with it slow & easy?

- my numbers are very much in place now I take hrt, they were stuck at sub clinical previously, however much Levo I took, even to over range, and it didn't bring wellness so maybe it's not for me

..Has anyone had a corrected thyroid situation rather than taking a hormone forever. I'd love to know ?

greygoose profile image
greygoose in reply toCup-cake7

I've never heard of anyone, no. And I disagree with you about the low estrogen causing the TSH to rise. But if you want to see what your thyroid is now capable of, slowly reduce your levo and see what happens.

But I want to make it perfectly clear that I am not advising you to do this. Other people have tried and regretted it because they never quite managed to get back to the place they were before they stopped the levo, even after they started it again. The body does not appreciate being forced back into hypothyroidism.

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

Good advice. Thankyou 🥰

Regenallotment profile image
RegenallotmentAmbassador in reply toCup-cake7

There are lots of ‘claims’ of remission but my take is they are having a euthyroid phase of their Hashimoto’s, I had this between 30 and 45 but then became very hypo. Beware the snake oil sellers of remission potions 🌱

Cup-cake7 profile image
Cup-cake7 in reply togreygoose

Many thanks anyway apologies for deviation. It happens I guess one thing leads on

Sparklingsunshine profile image
Sparklingsunshine in reply to

I think the clue is the word " sell". People will try and flog any old rubbish and the wellness market is worth huge bucks.

From people with actual health issues to the worried well, we all want to feel better and these parasites prey on that desire. No better than snake oil salesmen.

redhead41 profile image
redhead41 in reply togreygoose

I'm not sure your first statement is true. High antibodies show continuing thyroid damage so surely it is better to limit this as much as possible. Gluten free and possibly dairy free while supplementing selenium and zinc brought down the antibodies. Check at Dr Izabella Wentz.

greygoose profile image
greygoose in reply toredhead41

Yes high antibodies can show continuing thyroid damage. But that's just it: they SHOW it, they don't cause it. Even if you managed to lower your antibodies significantly, the damage would continue. They are the result of the disease, not the cause of it.

Antibodies fluctuate all the time, so just because they are lower on one particular blood test doesn't mean they won't go up again. But they will reduce naturally with time as more and more of the gland is destroyed, meaning less frequent attacks, meaning less cleaning up for them to do.

I am not a fan of Izabella Wentz.

66olives profile image
66olives in reply togreygoose

So antibody levels continuing to rise while on thyroxine is not something to worry about? Phew

in reply to66olives

I worried about this too!!!

greygoose profile image
greygoose in reply to66olives

Not at all. And, in any case, the levo isn't going to change anything.

Levo is not a cure for anything, not a drug. It's thyroid hormone replacement, replacing the thyroid hormone T4 - your thyroid can no-longer make enough of. It doesn't have any effect on antibodies. :)

Carysta profile image
Carysta in reply toredhead41

I totally agree. Following a gluten free diet, was vegan anyway and my antibodies have reduced significantly and are now within normal range.

My initial symptoms were loss of balance and kept landing in the ground without knowing how I got there.

I listened to a podcast by an endocrinologist ( unfortunately I cannot remember her name) who explained that the elevated TPO antibodies attacked the balance centre in the brain so for me that was incentive enough

in reply toCarysta

Your loss of balance, was that before the gluten free and has that improved since gluten free? X

Carysta profile image
Carysta in reply to

Yes it was. The loss of balance was why the GP did the thyroid check. Once I got the antibodies checked I commenced a gluten free diet and since then I have been fine

greygoose profile image
greygoose in reply toCarysta

TPO antibodies don't attack anything. They are highly specific and only interested in the TPO that leaks into the blood during an immune system attack on the thyroid.

Carysta profile image
Carysta in reply togreygoose

I am not a doctor but as many doctors seem to have very little knowledge of this condition who knows . I had found the podcast very relevant to my situation and it made sense to me and others who had balance issues with Hashimotos

in reply toCarysta

I have balance issues for sure. My main symptoms are bad anxiety especially around my health, dizziness brain fog and fatigue x

Carysta profile image
Carysta in reply to

Stress does not help as I am sure you know. Focussing on your breath can be useful as can accepting your condition.

Know that your body is doing the best it can and if you can support it with mindfulness, meditation, exercise and diet it will help.

Don’t try to overdo the exercise but do try to do a little more than you think you can on your better days.

On the not so good days allow your body to stretch gently on an out breath, rest on the inbreath then repeat several times and doing that at various times during the day gives your body and mind a useful reset.

If you haven’t checked your vitamin levels that may be useful. Also reducing sugar in your diet and caffeine may alleviate some of your symptoms .

Good luck

Eskaayy profile image
Eskaayy in reply toCarysta

Hello Carysta - so cool to hear that. I am a vegetarian and vegan too and would be inclined to know how long you have been on gluten free diet to see your antibodies reduced. I am following gluten free diet. This forum is a blessing to all members. Thanks

Carysta profile image
Carysta in reply toEskaayy

Hi Eskaayy, my first antibody check was 3 years 9 months ago and almost immediately I commenced a gluten free diet, the next blood test 6 months later showed a reduction in antibodies and there has been continued reduction ever since until they finally became within normal range a few months ago

SlowDragon profile image
SlowDragonAdministrator

Your results 2 months ago show you were VERY under medicated

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Can see you did get dose increase in levothyroxine to 75mcg

Bloods need retesting 6-8 weeks after increase in dose

So likely ready for next increase in dose after you get test results back

What vitamin supplements are you taking

in reply toSlowDragon

Yeah I was given 75mcg and my TSH is now 1.08 x

This was 5 weeks ago

SlowDragon profile image
SlowDragonAdministrator in reply to

Retest thyroid and vitamin levels 8-12 weeks after increase

Just testing TSH is completely useless

You need TSH, Ft4 and Ft3 and test folate, ferritin and B12 at least annually

Test vitamin D twice year

Exactly what vitamin supplements are you taking

Unless extremely petite, likely to need further increases in Levo over coming months

in reply toSlowDragon

My b12 was high (I eat a lot of b12 containing foods)

I take selenium, vit C and magnesium along with a probiotic

SlowDragon profile image
SlowDragonAdministrator in reply to

Definitely test vitamin D, folate and ferritin at next test

in reply toSlowDragon

Ferritin was 42 (23-300)

SlowDragon profile image
SlowDragonAdministrator in reply to

Too low

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Links about iron and ferritin

irondisorders.org/too-littl...

davidg170.sg-host.com/wp-co...

Great in-depth article on low ferritin

oatext.com/iron-deficiency-...

drhedberg.com/ferritin-hypo...

This is interesting because I have noticed that many patients with Hashimoto’s disease and hypothyroidism, start to feel worse when their ferritin drops below 80 and usually there is hair loss when it drops below 50.

cks.nice.org.uk/topics/anae...

Serum ferritin level is the biochemical test, which most reliably correlates with relative total body iron stores. In all people, a serum ferritin level of less than 30 micrograms/L confirms the diagnosis of iron deficiency

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing.

It’s possible to have low ferritin but high iron

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

If taking any iron supplements stop 5-7 days before testing

Medichecks iron panel test

medichecks.com/products/iro...

RedShells profile image
RedShells

I am on NDT, and got my antibodies reduced by going gluten free and eating clean, very little processed food. I feel very well and definately have increased energy. ...I'm merely stating what has worked for me, may not be same for others as we all different My tpo antibodies are 3 r 4 above normal value.and were in the high 100s. I also take vit d, k2, selenium, zinc, b complex, fish oils and magnesium. As I've said, we all different hence what works for some may not work for others. My antibodies haven't increased in 6 years since my diet change.

in reply toRedShells

This is amazing and gives me hope! I do agree that the antibodies can be reduced with lifestyle changes. I’m a marathon runner so I’ve had to cut right back on that and from today will be going gluten free to see if it helps. Thank you

RedShells profile image
RedShells in reply to

I really hope it works for you, I do have gluten on occasions when eating out, but I get back to clean eating.

in reply toRedShells

I’ll keep you updated thanks so much! How long roughly did it take for you to notice any benefits? X

RedShells profile image
RedShells in reply to

Well, initially felt energy increase in couple weeks, also less brain fog.

Cup-cake7 profile image
Cup-cake7 in reply to

Ditto to above, it really helped me too - good clean eating & gf my antibodies now in range - after all, gluten is tough & stringy so at any level it puts stress on your system to digest. 😊. Sourdough is kinder too so I use that too. It's about the flour

... my gps won't even test antibodies - say there's nothing gained from it it takes a while to absorb that they aren't trained in thyroid other than TSH number, you are very lucky if a doc goes outside the box so to speak. Best wishes

in reply toCup-cake7

Is sourdough gluten free? That’s my favourite thing ever so I’ll be sad to see it go!! X

Cup-cake7 profile image
Cup-cake7 in reply to

I havnt read it up as trust my daughters knowledge. Says it's much kinder make up sorry not more pacific. But I just know it agrees with me as I don't get heartburn

Regenallotment profile image
RegenallotmentAmbassador in reply toCup-cake7

Sourdough contains gluten, unless the sourdough starter (natural yeast batter mix) and eventual bread is made with gluten free flours.

In the early days before I went GF I made spelt sourdough. it was delicious and I reacted much less to it than your standard white loaf or worse for me pastry or a Victoria sponge. I then moved onto my own homemade starter using rice and quinoa flours that I ground myself in a blender. That was OK but the bread is rather brick like 🤣 But…. After advice here I went all in and became 100% GF. Separate chopping boards/sides of the kitchen etc and am so much better for it.

Wwwdot profile image
Wwwdot

Hi Cab92

Great that greygoose has put your mind at rest.

My husband has Hashimotos and he tried a gluten free diet even though he is not celiac or gluten intolerant and it has made a big difference to him. Apparently, and bear with me as I am a complete no I e to this, but the absence of gluten allows better conversion of T3 to T4 or vice versa. Gluten can apparently inhibit this conversion. Please can someone more knowledgeable on this forum help me get my facts straight?

All I do know is that excluding gluten improved his symptoms with no change in medication.

🤗🤗🤗

in reply toWwwdot

Amazing I’m so pleased it helped him :)

Cup-cake7 profile image
Cup-cake7 in reply toWwwdot

😊 gluten puts stress on the system generally I get on quite well with food combining too- not mixing carbs and protein at same meal but it's quite a big ask ..... then you read you need to mix, 🤷‍♀️a Minefield at times

greygoose profile image
greygoose in reply toWwwdot

I'm sorry to contradict you, but if his symptoms got better when he went gluten-free, then he is gluten-intolerant.

T4 is converted to T3. I have never heard that gluten affects conversion, that's a new one to me. Lot's of things do affect conversion, but I don't think gluten does. :)

Wwwdot profile image
Wwwdot in reply togreygoose

Hi Greygoose

He is definitely not gluten intolerant - not clinically anyway as he had a blood test.

It was a private thyroid consultant who advised to omit gluten for a trial of 3 months to see if symptoms improved and conversion improved without changing his Levo dose.

After 3 months his symptoms had improved, and the conversion had improved but not as much as the thyroid consultant wanted. So removing gluten was only part of a solution for him. He is keeping off gluten because he says he feels better and as long as he has his sour dough and I make him gluten free cakes he is happy!!

🤗🤗🤗

greygoose profile image
greygoose in reply toWwwdot

You cannot test for gluten intolerance with a blood test. Coeliac Disease, yes, but you can have gluten intolerance without having Coeliac. And the only way to tell is if symptoms get better when you cut out gluten.

Without the gluten, he was probably absorbing nutrients better and that's what improved his conversion.

Wwwdot profile image
Wwwdot in reply togreygoose

Hi Greygoose

thank you. He tested negative for Coeliac Disease. So as you say he must be intolerant - I thought you had to be Coeliac to say you were intolerant.

thank you for the clarification.

🤗🤗🤗

greygoose profile image
greygoose in reply toWwwdot

You're welcome. :)

SlowDragon profile image
SlowDragonAdministrator in reply toWwwdot

Gluten and leaky gut

ncbi.nlm.nih.gov/pmc/articl...

Going gluten fee can improve absorption of thyroid hormone ……so same dose on gluten free diet can be more effective

Also Vitamin levels may slowly improve

Good vitamin levels can improve conversion rate

If gluten is crossing from gut into blood via leaky gut this can result in brain fog

Can take 6-12 months to see brain fog slowly improve

Wwwdot profile image
Wwwdot in reply toSlowDragon

hi SlowDragon

Yes, this is what the private Thyroid Consultant advised and it has helped my hubby but not enough to make the Thyroid Consultant happy! So he is on another dose/medication 3 month trial but hubby wants to keep gluten free because he says he feels better and has got to enjoy sour-dough!

thank you for your input, much appreciated.

🤗🤗🤗

Carysta profile image
Carysta

Having antibodies at consistently elevated levels cannot be good for the body.

I chose to lower mine and feel the benefit.

The change for me was taking gluten out of the diet and aiming to heal my gut. I was already on a dairy free diet.

Consequently my antibodies reduced bit by bit and are now at normal levels.

I continue on a gluten free diet

in reply toCarysta

Would you say going gluten free made a big difference to your symptoms x

Carysta profile image
Carysta

A huge difference as did taking other action later on to help heal the gut. If the gut is not working well then there will be malabsorption of vitamins that support our well being

Wwwdot profile image
Wwwdot in reply toCarysta

Hi Carysta

I am fascinated by you healing your gut as I am in that pathway too for B12 deficiency due to Pernicious Anaemia.

What actions did you take? Would you mind e landing please here or via private message.

Thank you in advance

🤗🤗🤗

Carysta profile image
Carysta in reply toWwwdot

I have sent you a private message

Cup-cake7 profile image
Cup-cake7

I just read Dr Westin Childs on gut health I'm sorry I can't send link. But made a lot of sense reminding of gut health and the whole affects of it on brain and thyroid A Bad gut not absorbing thyroid needs, worth consideration

dayoff profile image
dayoff

Hi, I went Gluten Free. I can't remember if it was this April or last but it reduced my antibodies from 190 to 130! It also cured 20 years of insomnia in 2 days and has never returned!

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