Calcium and Vit D: Morning All, I'm looking for... - Thyroid UK

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Calcium and Vit D

Kd21 profile image
Kd21
5 Replies

Morning All,

I'm looking for some feedback. After seeing the Endo and getting lots of tests done. I have been informed I have low calcium and very low vit d levels. I have been given Fultium D3 800 IU take 4 a day and Calceos take 2 a day. Is this the norm??

Endo has been discussing the fact that i have ME but I have argued that I felt I wasn't being given the correct treatment for my thyroid??

Thought please Thanks x x

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Kd21 profile image
Kd21
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sallylush profile image
sallylush

In the uk you have a normal vit d level if you are over the range of 50 , all the info i have read and went on a course run by Nutri says that your optimal levels should be above 80,I followed a n 8 week programe where i took 50,000iu of vit d dops a week in liquid form and then now take a maintenance dose of 3,00 iu a day ,Nutri do a liquid form and each drop is 1,000 iu real easy to take and better than tablets ,,hope this helps

sal

puncturedbicycle profile image
puncturedbicycle

Depending on how low your vitamin d was, you may need a loading dose. You can find out

more about it here:

icms.qmul.ac.uk/chs/Docs/42...

imperial.nhs.uk/prdcont/gro...

D levels can be difficult to supplement and what is considered a 'normal' daily supplement (which I think is what you've been given) may not help you.

Good luck!

Kd21 profile image
Kd21 in reply topuncturedbicycle

Thanks for your replies and the link. It was very informative. I'm on 6 tablets a day for initially 12 weeks. Which is 4000 IU of Vit D a day, is this a loading dose? I've been told that if it works I've to then take 800 IU vit D per day for life. I hope it is going to make a difference. I'm very tired, have sore muscles etc,. This keeps me awake at night. Thanks again :)

puncturedbicycle profile image
puncturedbicycle in reply toKd21

I'm not a health care professional, but for me that would not have been sufficient. My vitamin d levels were close to nil (10? 12?) and it took me many months to get them up to normal. Even then I struggled to keep them above 60.

I hesitate to say what dose I was taking because in truth I can't remember the strength of the capsules, but it was a very high daily dose (in keeping with recommendations I found from a reliable source) for three months. (I'm not being cagey, I just can't remember the details and I don't want to say the wrong thing.)

You can always have a go with these supplements and see how you get on. If your levels aren't better in a few months (it can take time for the levels to respond to supplements) maybe your gp would be willing to give injections.

I read in one of those links that "Up to 10000 UNITS per day is not toxic when given for up to 5 months."

Good luck!

dizzy864 profile image
dizzy864

I was diagnosed with fibromyalgia about 9 years ago after suffering for more than 7 years. I had been getting worse and worse each week. I reached the stage I couldn't walk more than a few yards, couldn't drive as no strength in my legs and incredible pain when I tried. Really tired and lethargic all the time. I couldn't function mentally. I needed a wheel chair when going on holiday as I couldn't walk around the airport. Remain in the home most of the time as couldn't walk anywhere.

Then April last year, I read on I/N that 80% of fibromyalgia diagnosis are wrong. Patients really have a Vitamin D deficiency. I asked doctor for a test. I was told my result was 10 when it should be 12 but most doctors agree it should be raised to 14.

I was prescribed 800 iu tabs a day. The difference to me is amazing. Within a week I was feeling so much better. After 10 days, I was able to clean my kitchen windowsill, reaching across my work tops for the first time in 10 years. A year on, I can walk miles. I find 800iu is enough when there's sun I can get into, but not enough in the cold months - I take 1400iu.

My problem is that my body can't store Vitamin D. i would be so much better on holiday in the sun and then return home and be very much worse for over a week. Apparently, I was suffering withdrawal from the sudden loss of Vitamin D.

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