Vit D: Hi. I have underactive thyroid three... - Thyroid UK

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Vit D

butty profile image
9 Replies

Hi. I have underactive thyroid three months ago I was given 100 levo from 75,had bloods done and vit d has come back as being low so gp wants to see me is this why am still not feeling better but I am better than I was is low vit d common with thyroid disease?

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butty
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Marz profile image
Marz

Make sure you obtain all your results with ranges - results that are legally yours. The treatment dose should be based on the result. Docs often prescribe too little and set you up for the long haul.

If your VitD is low then it is more than likely B12 - Folate and Ferritin will be too. Ensure you have them tested. All are often low when Hypo and can make you feel very unwell.

Do you have Hashimotos ?

We spoke about this topic on your post/thread of 3 months ago - have another read 🤔

butty profile image
butty in reply toMarz

Hi marz, I am going for a print out of my results tomorrow had a few done vit d was the only one that was low I don't know as yet if b12 was tested thanks for your reply I will post result when I get them, thank you

SlowDragon profile image
SlowDragonAdministrator

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin B12, folate and ferritin levels plus thyroid antibodies if these haven’t been tested yet

You may need to get full Thyroid testing privately as NHS refuses to test TG antibodies if TPO antibodies are negative

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Low vitamin D is EXTREMELY common when hypothyroid

ncbi.nlm.nih.gov/pubmed/286...

Vitamin D deficiency is frequent in Hashimoto's thyroiditis and treatment of patients with this condition with Vitamin D may slow down the course of development of hypothyroidism and also decrease cardiovascular risks in these patients. Vitamin D measurement and replacement may be critical in these patients.

endocrine-abstracts.org/ea/...

Evidence of a link between increased level of antithyroid antibodies in hypothyroid patients with HT and 25OHD3 deficiency may suggest that this group is particularly prone to the vitamin D deficiency and can benefit from its alignment.

Vitamin D

GP will only prescribe to bring levels to 50nmol. But improving to around 80nmol or 100nmol may be better

ncbi.nlm.nih.gov/pubmed/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, you may need on going maintenance dose to keep it there.

Test twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function

It’s trial and error what dose we need, especially with hashimoto’s we frequently need higher dose than average

Local CCG guidelines

clinox.info/clinical-suppor...

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Come back with new post once you get vitamin D result and update what GP has prescribed

butty profile image
butty in reply toSlowDragon

Thank you slow dragon, I have never been told if I have hashimoto or not, I will get results and put them on I had ferritin, calcium, vit d and a few others I will know more tomorrow but they said it was only vit d that was too low.

SlowDragon profile image
SlowDragonAdministrator in reply tobutty

About 90% of all primary hypothyroidism in Uk is due to Hashimoto's.

Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten.

So it's important to get TPO and TG thyroid antibodies tested at least once .

Medics often ignore relevance of antibodies

butty profile image
butty in reply toSlowDragon

Thank you for your reply slowdragon, I will ask if they will do a antibodies test 🙂

butty profile image
butty in reply toSlowDragon

Hi slowdragon, I've got my results can you look at them for me please to see if they are OK, B12,is 468, 197-771 00ngL, folate, is10.3, 2.50uhL, ferritin 201, 23. 00-400, vit d, 19, 25.00-150.00 nmol, I am now on vit d replacement for 8 weeks then on maintenance dose after that my tsh is now. 0.81, 0.30-4.50um/l, from 4.47 in October after increase to 100 from 75, so hopefully I will feel better when vit d is right, 🙂

SlowDragon profile image
SlowDragonAdministrator in reply tobutty

Clearly your vitamin D is extremely low

Presumably you are prescribed LOADING Dose of levothyroxine?

Local CCG guidelines

clinox.info/clinical-suppor...

Vitamin D, calcium and parathyroid should be tested at end of course

GP will only prescribe to bring levels to 50nmol. But improving to around 80nmol or 100nmol may be better

ncbi.nlm.nih.gov/pubmed/218...

vitamindsociety.org/pdf/Vit...

Once you Improve level, very likely you will need on going maintenance dose to keep it there. Often this needs to be higher than 800iu

Test twice yearly via vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Government recommends everyone supplement October to April

gov.uk/government/news/phe-...

Magnesium is important when on high dose vitamin D .....

Unless you have kidney issues magnesium may be beneficial

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Bone pain

easy-immune-health.com/pain...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

intechopen.com/books/cell-s...

If vitamin D is low, B vitamins may be too. As explained by Dr Gominack

drgominak.com/sleep/vitamin...

healthunlocked.com/thyroidu...

Recommend getting FULL thyroid and vitamin testing Via Medichecks in 2-3 months

butty profile image
butty in reply toSlowDragon

Thank you slowdragon❤️

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