GP referred me for CGT and requested "full" bloods which were taken in early May for recurring hypo symptoms (fatigue, memory fog, hypo brain, mood swings, irritability, poor quality sleep, stiff aching joints, dry flaky skin, brittle, lank hair, hair loss, itchy scalp, constipation & bloating, twitchy knees, hypoglycaemic symptoms, weepy eyes...) since dose dropped from 125mcg/day in Jan to 100mcg/day.
Took two weeks to get blood test appointment. Week later was told "all normal". Yesterday I had an appointment with the GP to ask for full copy and was stunned to see how healthy they all looked (liver & kidney function, renal, liver and bone profiles, B12, folate, FBC, ESR, cholesterol, blood glucose, even FSH says I'm nowhere near menopausal - yay!).
Then I could have wept. The lab had only tested for TSH (0.85mlU/l) despite my blood test form asking for T4/T3. GP told me they only test for T4 if TSH is outside normal range (0.27 - 4.2mlU/l). Am livid that they can be so unconcerned about this - if my T4 is at low end of normal range, I'd like to try increasing my thyroxine to 112.5mcg/day to see if that improves things, or to try T3 therapy if not. Historically I have records of it being around only 14 when TSH up at just over 5 so am sure that I can pull it up a bit further without going hyper.
His only suggestion? Having said that my TSH will fluctuate with my monthly cycle, he suggests I go back on the pill to manage my mood swings...! I was on Femedene from 19-late 20s. Diagnosed with Hashimoto's hypothyroidism early 30s but suspect it hid symptoms as I had slightly hyper symptoms in late teens. Was told they won't prescribe Femedene anymore, probably Yasmin or Cilest and I should go and discuss this with one of the female GPs as "with only four of the 13 GPs in the practice being men, we are a bit deskilled in hormonal issues!" Don't really want to take any more artificial hormones if I don't have to - especially having read others horrendous experiences as they interact with thyroxine?
Was so shocked I clean forgot (memory fog, hypo brain!) to ask if he thought my constipation / bloating symptoms may be a result of an ovarian cyst as one was spotted five years ago during an ultrasound post miscarriage. Am only marginally more concerned about these symptoms as linked to colon cancer if allowed to become permanent and this despite drinking at least 1.5l of water a day, cutting out tea and coffee unless decaff (2cups a day max), eating loads of fresh fruit and veg, low GI carbs etc. My only vice is being less active now I have to drive my son to school/self to work. I used to walk to/from tube 3-5 days/week but am planning to address that with a twice a week swim. Also have low blood pressure.
Should I ask for referral to an endocrinologist? Can anyone recommend one in the London area? Any advice would be appreciated, I really don't know what to do next!