I have CFs/ME and was diagnosed May 2004 following about 6 months of fighting for a diagnosis, it was a nightmare, then about 18 months ago my health took a serious turn for the worse and I have been asking for help since. Recently seen an endocrinologist who was no help whatsoever and his registrar was nothing short of rude and dismissive towards me. I am now obtaining a 2nd opinion where they actually sat there and explained things to me with respect to the thyroid, this was a bit better. When I explained all my symptoms that were quite clearly associated with the thyroid, they dismissed my question regarding hair loss, eyebrow and eyelash loss saying I should request to see a skin specialist, clearly they think I am not informed and do not understand my problems. I was told that even though my TSH, T3 and T4 levels were up and down they were all in acceptable range, I had all my bloods taken again for about the 20th time and am waiting for a scan on my thyroid and those results to come back but he as much as told me I will be referred back to my GP and monitored until they believe treatment is relevant. They are passing me of as a person with CFS/ME, what am I supposed to do, I am taking 400 units of Vitamin D, Calcium tablets and high strength Vitamin B complex and have been using Oestrodiol for some time due to low oestrogen levels, my doctor prescribed me all of these due to me being low on all of them. How do I get the treatment I deserve on the NHS, I do not want to complain but I do not know how much longer I can cope, most days I do not leave the house and have been unable to even attempt a return to work since 2008. Fatigue and pain, nausea, headaches, palpatations, anxiety to name just a few of my issues, you name it I have it, so cold, cannot get warm. One of the doctors at my surgery when I said I have thoughts of ending my life and I just want some help suggested I go in and talk about my mental health. Angry does not even come close to how I feel. I do not see any hope of treatment and feel totally devestated as now I am on about my 10th benefits review, the day after seeing the endocrinoligist another questionnaire from atos, I have only been in the support group for about 3 months after fighting the last decision to place me in the WRAG group, I want my life back or at least some of it, I don't expect miracles, just a little help to get me on a manageable level would be nice. Any suggestions greatly appreciated?
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