Apologies for the long post, was wondering if anyone can help me........I am in such a debilitating state at the moment, cant walk, absolute zero brain function and fatigued beyond belief. I've lost my business, partner, nearly my house because of this flipping disease.
I have normal thyroid results (according to the NHS) have been sent around the all the departments ie Nuerology, Heamatology, Endo and now Rheumatology just so I can claim my benefits whilst they search for my problems! The Rheumatologist told me after a 20 minute appointment that he thinks I have Lupus.I broke down and begged for hm to listen as when at the beginning of my thyroid issue journey several years ago explained that I had to seek private help after struggling with ill health for years, being turned away by doctors and within 6 weeks of being given Levo was jumping around like a kangaroo, I got my life back. The poor man died of a stroke and I was unable to carry my treatment with him.
The Reumatologist gave me a steroid injection which I wasn't happy about but felt so ill, cannot work, have 3 children (lone parent) fighting to keep my roof over my head, so gave in. Within a couple of hours I was floored, had to go to A&E with serious side effects! I went back to see him, said to him 'as you've nearly killed me, can you please listen and take me seriously about mine and my families history about thyroid issues. I asked him to submit the full thyroid testing, collected the results and the lab where I live have ignored his instructions as my TSH is normal. When I could afford to see another private Endo, she noticed my TSH level never changed no matter what level of Levo I was taking back then and Ive noted that although I havnt taken any now for over 4 months its still the same.
My question is, if my doctor, local endo or anyone else in the NHS for that matter doesnt recognise my health issues as thyroid related problems, what can I do?
The other problem I have is, as I feel so ill, I cant have a conversation with the doctors as my brain is not working at all!
My sister had the same issues with normal test results and was only diagnosed after thyroid eye disease kicked in.
Can someone please help, I am a single parent, completely house bound, is there anyone out there that can help me fight with the doctors to fight my case?