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Thyroid Cancer Support

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medullary thyroid cancer

my husband (61) got diagnosed with this rare and potentially aggressive cancer recently. He’s already battling metastatic prostate cancer. Looking for positive...

my husband (61) got diagnosed with this rare and potentially aggressive cancer r...

Jojoteacher

•26 days ago

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Hi took my first half dose (2.5mcg) of Morningside Liothyronine this morning and have felt dreadful all day. Normal? Should I persist pls?

18 months on Levo only following TT for FTC. Just been prescribed 10mcg T3 to go with 100mcg Levo.

18 months on Levo only following TT for FTC. Just been prescribed 10mcg T3 to g...

ecosushirsb

•27 days ago

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thyroid reMoval issue

after removal of thyroid , my arm felt painful? I it related?

Taiyuan

•3 months ago

1 Reply

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Raised Thyroglobulin ab

Hi. I had a total thyroidectomy and radio iodine treatment in 2016 for Papillary Ca. I've been having annual monitoring since with no concerns. My most recent...

Hi. I had a total thyroidectomy and radio iodine treatment in 2016 for Papillary...

Hattiem

•4 months ago

3 Replies

tsh keeps going up

hello my tsh is now at its highest 5.19 and keeps increasing. I wanted to know if thyroid cancer causes this and if there’s anything you can do to help bring...

hello my tsh is now at its highest 5.19 and keeps increasing. I wanted to know...

Jgoodwin977

•6 months ago

3 Replies

statins/tsh

I had a total thyroidectomy 20 years ago due to thyroid cancer, so my tsh levels are kept very low, usually 0.03 or sometimes even lower. As I have high...

I had a total thyroidectomy 20 years ago due to thyroid cancer, so my tsh levels...

Tabitha6

•8 months ago

1 Reply

Tall Cell Agressive Papillary Thyroid Cancer

Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total...

Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diag...

Portugal-2

•10 months ago

3 Replies

Wondering if I should get a Partial Thyroidectomy?

I have a nodule on the left side of my thyroid which grew from 11 x 5 x 7 mm to 14 x 9 x 7 mm over the last 6 months. My endocrinologist and ENT believe it’s...

I have a nodule on the left side of my thyroid which grew from 11 x 5 x 7 mm to ...

happycamper143

•10 months ago

3 Replies

T4 Reduction to increase TSH

In January I was taking 150 T4 daily and 2x5mg T3, my bloods were T4=18.1 (9-19) T3 4.98 (2.6-5.7) TSH <0.03(0.35-4.94). I have been taking T3 since Oct...

In January I was taking 150 T4 daily and 2x5mg T3, my bloods were T4=18.1 (9-19...

SassyMH

•1 year ago

2 Replies

need guidance

I need help. I recently lost my NP that monitored and subscribed my thyroid medication. I don’t have a thyroid. I had it removed in 2002 due to a thyroid...

I need help. I recently lost my NP that monitored and subscribed my thyroid med...

Hydejf66

•1 year ago

9 Replies

Biopsy

My sister has been told she has a TR5 highly suspicious 9mm thyroid nodule but they have just said as its not 10mm yet there just scan again in 6 months???

My sister has been told she has a TR5 highly suspicious 9mm thyroid nodule but t...

Miley-moo

•1 year ago

2 Replies

Hoarse voice after thyroid surgery

Hello - I am 28 years old and I had a diagnostic thyroid lobectomy (right side) 5 weeks ago, histology results found it was follicular thyroid carcinoma but...

Hello - I am 28 years old and I had a diagnostic thyroid lobectomy (right side) ...

Arby6

•2 years ago

4 Replies

Thyroidectomy

Hi I am due to have my thyroid removed as I have a multi nodular goitre. I do not have any issues with my thyroid function so am just wondering whether living...

Hi I am due to have my thyroid removed as I have a multi nodular goitre. I do no...

Miranda4243

•2 years ago

2 Replies

CT3M by Paul Robinson

Hi everyone, I have been reading plenty of information available about T3 and the right dosage. My Endo is not helping and my GP has tried but does not have...

Hi everyone, I have been reading plenty of information available about T3 and th...

Carlax

•2 years ago

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Feeling rubbish - plse. can I have some help with results?

I posted a little while ago, still feeling rubbish, still on thyroixine 125mg from Nov 22, but only just have my test results from monitor my health ( thx...

I posted a little while ago, still feeling rubbish, still on thyroixine 125mg ...

LittleMissTeapot

•2 years ago

4 Replies

Pain in neck, jugular notch and jaw after TT

Hi all, I’ve had Total Thyroidectomy in June 2022 - 6 months ago due Papillary cancer. There was 17 lymph nodes removed and thankfully there was no spread in...

Hi all, I’ve had Total Thyroidectomy in June 2022 - 6 months ago due Papillary c...

ShimaShima

•2 years ago

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calculator

Please can someone direct me to the calculator for thyroid results? For some reason I can’t seem to keep hold if it! Many thanks.

Please can someone direct me to the calculator for thyroid results? For some r...

Tabitha6

•2 years ago

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liquid radioactive iodine therapy

hello. I’m booked in at Mount Vernon hospital on November 14th for RAI. I’m totally rubbish at swallowing tablets so they have agreed to give it to me as a...

hello. I’m booked in at Mount Vernon hospital on November 14th for RAI. I’m to...

Titch121

•2 years ago

7 Replies

Menier's disease

Had any one developed this after a thyroidectomy or just ear issues in general?I feel like it's one thing after another.I see an ENT in a couple weeks to...

Had any one developed this after a thyroidectomy or just ear issues in general?I...

Sam3tu

•2 years ago

1 Reply

Salivary Glands Swollen 6 Months Post RAI

Hi everyone and thanks for reading! I had RAI treatment in October of 2021. My dose was 100 mci. I immediately had swollen and painful salivary glands which...

Hi everyone and thanks for reading! I had RAI treatment in October of 2021. My ...

PurpleButterfly7

•2 years ago

5 Replies

Can't sleep post total thyroidectomy :(

Hello I had a total thyrotecomy in December 2021 due to suspicious nodules which later turned out to be a micro papillary carcinoma. I was placed on...

Hello I had a total thyrotecomy in December 2021 due to suspicious nodules which...

Sam3tu

•2 years ago

1 Reply

When is this group going to get a moderator? People coming for support ( the group is even called thyroid cancer support) get no answer

I don’t have the knowledge to interpret, other groups seem to have moderators why not this support group?

I don’t have the knowledge to interpret, other groups seem to have moderators wh...

Sleepy101

•2 years ago

1 Reply

Dr Childs

Hello, I had my thyroid gland removed 21 years ago and take Levo 5 x 100 & 2 x 0.75. I would like to take NDT but cannot afford the prices and the sources seem...

Hello, I had my thyroid gland removed 21 years ago and take Levo 5 x 100 & 2 x 0...

Pepekins

•2 years ago

2 Replies

Latet blood results as of May 2022

Hello, Here are my latest results, perhaps someone could comment on them. I am suffering with awful thigh pain just now. I have no thyroid gland, take 5 x100...

Hello, Here are my latest results, perhaps someone could comment on them. I am s...

Pepekins

•2 years ago

1 Reply

Tall Cell Aggressive Papillary Thyroid Cancer TERT gene immunotherapy treatments available and successful?

Anyone with Tall Cell Aggressive Papillary Thyroid Cancer with BRAF 600v and TERT genetic mutation? Any found any immunotherapy or CART cell treatments that...

Anyone with Tall Cell Aggressive Papillary Thyroid Cancer with BRAF 600v and TER...

Portugal-2

•2 years ago

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Smile lopped sided

Hi I have hashimotos and all of a sudden my mouth at one side when I speak or smile is lopped sided . Is this a sign of anything sinister ? Thanks

Hi I have hashimotos and all of a sudden my mouth at one side when I speak or sm...

BeeGee1962

•3 years ago

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Advice needed about thyroxine levels

I was diagnosed with head and neck cancer 2 years ago and prescribed thyroxine since April this year. I follow the advice written here and take 50mcg every...

I was diagnosed with head and neck cancer 2 years ago and prescribed thyroxine s...

Hohasm

•3 years ago

2 Replies

A good thyroid surgeon or clinic?

Does anyone know a high volume thyroid surgery clinic/surgeon that they'd recommend?

Does anyone know a high volume thyroid surgery clinic/surgeon that they'd recomm...

menamerr

•3 years ago

5 Replies

TSH to suppressed, med change after 11 years -

Hi all, wasn’t certain where to to post this?. Firstly I would like to thank everyone within this community for the support and knowledge offered here. I...

Hi all, wasn’t certain where to to post this?. Firstly I would like to thank ev...

Frenchlil

•3 years ago

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tall cell

Anyone out there with tall cell who can give me hope that this can be managed???

Anyone out there with tall cell who can give me hope that this can be managed???...

kri312

•4 years ago

10 Replies

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Posts - Thyroid Cancer Support | HealthUnlocked

Thyroid Cancer Support

medullary thyroid cancer

Hi took my first half dose (2.5mcg) of Morningside Liothyronine this morning and have felt dreadful all day. Normal? Should I persist pls?

thyroid reMoval issue

Raised Thyroglobulin ab

tsh keeps going up

statins/tsh

Tall Cell Agressive Papillary Thyroid Cancer

Wondering if I should get a Partial Thyroidectomy?

T4 Reduction to increase TSH

need guidance

Biopsy

Hoarse voice after thyroid surgery

Thyroidectomy

CT3M by Paul Robinson

Feeling rubbish - plse. can I have some help with results?

Pain in neck, jugular notch and jaw after TT

calculator

liquid radioactive iodine therapy

Menier's disease

Salivary Glands Swollen 6 Months Post RAI

Can't sleep post total thyroidectomy :(

When is this group going to get a moderator? People coming for support ( the group is even called thyroid cancer support) get no answer

Dr Childs

Latet blood results as of May 2022

Tall Cell Aggressive Papillary Thyroid Cancer TERT gene immunotherapy treatments available and successful?

Smile lopped sided

Advice needed about thyroxine levels

A good thyroid surgeon or clinic?

TSH to suppressed, med change after 11 years -

tall cell

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