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Xtandi
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3 Years Post Diagnosis.
I was started onto
Xtandi
, which improved my symptoms, but a biopsy a few months later revealed that my prostate adenocarcinoma had morphed and was now 90% small-cell and 10% sarcomatoid. I had two TURPS in 2 months, to allow me to pee and I went from self-catheterising to 100% incontinent.
I was started onto
Xtandi
, which improved my symptoms, but a biopsy a few months later revealed that my prostate adenocarcinoma had morphed and was now 90% small-cell and 10% sarcomatoid. I had two TURPS in 2 months, to allow me to pee and I went from self-catheterising to 100% incontinent.
paulofaus
in
Advanced Prostate Cancer
5 years ago
Enzalutamide (Xtandi) vs Abiraterone (Zytiga) for mHSPCA
Good trial results for both of these for mHSPCa, combined with ADT. Anyone here know the pros/cons? Which has better pfs and os? Thanks. Randall
Good trial results for both of these for mHSPCa, combined with ADT. Anyone here know the pros/cons? Which has better pfs and os? Thanks. Randall
6357axbz
in
Advanced Prostate Cancer
5 years ago
Has anyone done docetaxel with ADT as a first line treatment?
Curious if anyone else has gone right to chemo instead of Zytiga/
Xtandi
or used it in conjunction as a first-line treatment? Also, are there any trials or studies right now for using these drugs prior to demonstrated castration-resistance?
Curious if anyone else has gone right to chemo instead of Zytiga/
Xtandi
or used it in conjunction as a first-line treatment? Also, are there any trials or studies right now for using these drugs prior to demonstrated castration-resistance?
CantChoose
in
Advanced Prostate Cancer
5 years ago
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Chemo again -- after all other treatments for advance PCa
In the first two years he went through just about everything (Xofigo, Provenge, then
Xtandi
, and squeezed a few months out of Zytiga). Bugger cells have found their work arounds. So what's up now?
In the first two years he went through just about everything (Xofigo, Provenge, then
Xtandi
, and squeezed a few months out of Zytiga). Bugger cells have found their work arounds. So what's up now?
Caring7
in
Advanced Prostate Cancer
6 years ago
Drug Prices
I simply cannot AFFORD to stay alive if I were to pursue many of the treatments I see enumerated here..... anyone on Medicare Part D alone and able to pay for say
Xtandi
???...... any medicare recipients here able to get Prescription Assistance from Manufacturers??
I simply cannot AFFORD to stay alive if I were to pursue many of the treatments I see enumerated here..... anyone on Medicare Part D alone and able to pay for say
Xtandi
???...... any medicare recipients here able to get Prescription Assistance from Manufacturers??
Tommyj2
in
Advanced Prostate Cancer
6 years ago
Per Request
Receiving radiation now, switching from Zytiga to
Xtandi
next week. We’ve been to UPMC Hillman Cancer Center in PGH. Then Cleveland Clinic, now Mayo, with a visit to MD Anderson in there for another opinion. They all say the same and always have. They don’t give us hope.
Receiving radiation now, switching from Zytiga to
Xtandi
next week. We’ve been to UPMC Hillman Cancer Center in PGH. Then Cleveland Clinic, now Mayo, with a visit to MD Anderson in there for another opinion. They all say the same and always have. They don’t give us hope.
Hidden
in
Advanced Prostate Cancer
6 years ago
Mrcp what to do
Been stable for a few months on
xtandi
. PSA rising 9-15-22-25-30. Have a Brica2 mutation. Talked to UCSF going into off label trialwith parp inhibitor Olaparib or rucparib?. Came back and went to my local OC for my Xcheva shot.
Been stable for a few months on
xtandi
. PSA rising 9-15-22-25-30. Have a Brica2 mutation. Talked to UCSF going into off label trialwith parp inhibitor Olaparib or rucparib?. Came back and went to my local OC for my Xcheva shot.
Goldberg
in
Advanced Prostate Cancer
6 years ago
PSA RISING
Started
Xtandi
. 4 weeks later he ended up with lymphadema left thigh. 10 months later the
Xtandi
is no longer working. First of all his PSA never went below 0.7. Once it reached that number it went to 1.15 then 2.14 and recently 2.95. Had CT scan of chest, abdomen, pelvis and bone scan.
Started
Xtandi
. 4 weeks later he ended up with lymphadema left thigh. 10 months later the
Xtandi
is no longer working. First of all his PSA never went below 0.7. Once it reached that number it went to 1.15 then 2.14 and recently 2.95. Had CT scan of chest, abdomen, pelvis and bone scan.
Hidden
in
Advanced Prostate Cancer
6 years ago
Whats the difference between the Axumin PET/CT and a regular bone scan and CT scan of pelvis and abdomen
in 2014 with Mets to bones and Gleason 9 he has been on Lupron every three months and xgeva, while still on those injections we started Provenge finished that still on shots but then PSA started rising in 2017 so put on Zytiga and Prednisone now Mar 2019 PSA elevated and doctor said no point to do
Xtandi
in 2014 with Mets to bones and Gleason 9 he has been on Lupron every three months and xgeva, while still on those injections we started Provenge finished that still on shots but then PSA started rising in 2017 so put on Zytiga and Prednisone now Mar 2019 PSA elevated and doctor said no point to do
Xtandi
Olivia007
in
Advanced Prostate Cancer
6 years ago
Xtandi for non MCRPC
I simply opted for
Xtandi
simply because the FAA is used to dealing with this drug. Has anyone gone to Erleada?
I simply opted for
Xtandi
simply because the FAA is used to dealing with this drug. Has anyone gone to Erleada?
pilot52
in
Advanced Prostate Cancer
6 years ago
New Chapter: Xofigo!
I think
Xtandi
took care of the rib pain I had. Last two measures showed my PSA stalled at 26. Hopefully the Xofigo will help to drive it back to undetectable. Meanwhile I will continue with the ranch work in a cautious manner and enjoy Spring 2019. Sunshine and flowers to you all!
I think
Xtandi
took care of the rib pain I had. Last two measures showed my PSA stalled at 26. Hopefully the Xofigo will help to drive it back to undetectable. Meanwhile I will continue with the ranch work in a cautious manner and enjoy Spring 2019. Sunshine and flowers to you all!
Shepard
in
Advanced Prostate Cancer
6 years ago
Where can my husband get a PSMA scan in the US without having had chemo?
He takes
Xtandi
which is currently effective. I have only been able to find PSMA studies that require previous chemo and progression on
Xtandi
. Thanks.
He takes
Xtandi
which is currently effective. I have only been able to find PSMA studies that require previous chemo and progression on
Xtandi
. Thanks.
Grumpyswife
in
Advanced Prostate Cancer
6 years ago
XTANDI worries
My 86 year old Father has been advised to begin taking
XTANDI
. At 62 his Prostate was removed, been in treatment since. Currently PSA is 5, Lupron injections every 3 months. I am worried about side effects, as he lives alone.
My 86 year old Father has been advised to begin taking
XTANDI
. At 62 his Prostate was removed, been in treatment since. Currently PSA is 5, Lupron injections every 3 months. I am worried about side effects, as he lives alone.
Advocatedaughter
in
Advanced Prostate Cancer
6 years ago
First post: Hazy with Xtandi - any experience/advice?
Advanced prostate cancer, Gleason 9, meta to spine; done bicalcutamide, Zytiga, docetaxel (stopped for severe reaction),
Xtandi
for 6 weeks and feeling hazy (slow, hard to concentrate). Last PSA check 0.6. Anybody share experience or advice? Much appreciated.
Advanced prostate cancer, Gleason 9, meta to spine; done bicalcutamide, Zytiga, docetaxel (stopped for severe reaction),
Xtandi
for 6 weeks and feeling hazy (slow, hard to concentrate). Last PSA check 0.6. Anybody share experience or advice? Much appreciated.
Walkingwell
in
Advanced Prostate Cancer
6 years ago
WHEN IT RAINS,IT POURS
Hey ,my hubby58,has stage 4 prostate cancer.he was diagnosed in July 2017.he has had the casodex,and
xtandi
,radiation and now today we were told that he has lesions on his bones,a spot on his liver,spa is over 41..he also has mestatic cancer lymph nodes swollen..please tell me what can I do to help my
Hey ,my hubby58,has stage 4 prostate cancer.he was diagnosed in July 2017.he has had the casodex,and
xtandi
,radiation and now today we were told that he has lesions on his bones,a spot on his liver,spa is over 41..he also has mestatic cancer lymph nodes swollen..please tell me what can I do to help my
Myhubby58
in
Advanced Prostate Cancer
5 years ago
Anyone Familiar With a Research Study JH17U01?
It involves combining
Xtandi
with a drug referred to as LY2157299. Its in phase II. My MO at Northshore referred me. The research is supported by Johns Hopkins and Eli Lilly. Right now it up to my insurance if I can participate.
It involves combining
Xtandi
with a drug referred to as LY2157299. Its in phase II. My MO at Northshore referred me. The research is supported by Johns Hopkins and Eli Lilly. Right now it up to my insurance if I can participate.
Hex40
in
Advanced Prostate Cancer
6 years ago
Xtandi fatigue and back pain
My question is: could this be from something other than
Xtandi
? Does it work to take a vacation? I am worn out going to the store with my wife. Most of you guys haven't seemed to have trouble, or does it get worse with time? Thanks for your input.
My question is: could this be from something other than
Xtandi
? Does it work to take a vacation? I am worn out going to the store with my wife. Most of you guys haven't seemed to have trouble, or does it get worse with time? Thanks for your input.
willshake
in
Advanced Prostate Cancer
6 years ago
How much to interact with care?
He is on Lupron and
Xtandi
but PSA is rising about 2pts a month and is now 20. I always go to his appts with him. I handle all the bills and the insurance issues. I asked his MO about clinical trials on lu 177 vs Xofigo as his next treatment option and was told I should stay off the internet.
He is on Lupron and
Xtandi
but PSA is rising about 2pts a month and is now 20. I always go to his appts with him. I handle all the bills and the insurance issues. I asked his MO about clinical trials on lu 177 vs Xofigo as his next treatment option and was told I should stay off the internet.
Hidden
in
Prostate Cancer Caregivers
6 years ago
Well..latest (03/22) PSA is up to 1.67 from 1.5(O2/22)...on the high test(concentrated) BIRM for 2 months now. Lupron & Xtandi.
Still feeling better than I did without it....even though it seems like I am feeling the build up of
Xtandi
issues...and now the added issues from Xgeva(a little bone pain in ribs)...Still keeping on keeping on.
Still feeling better than I did without it....even though it seems like I am feeling the build up of
Xtandi
issues...and now the added issues from Xgeva(a little bone pain in ribs)...Still keeping on keeping on.
greatjohn
in
Advanced Prostate Cancer
6 years ago
switching xtandi to nights ???
I'm taking 4
xtandi
( 160 mg ) in the morning and , as seen on the site ...I'd like to try switching to nights. how should I go about doing that. just wait until bedtime and take 4 more at night and continue with nights the following times.
I'm taking 4
xtandi
( 160 mg ) in the morning and , as seen on the site ...I'd like to try switching to nights. how should I go about doing that. just wait until bedtime and take 4 more at night and continue with nights the following times.
Kaliber
in
Advanced Prostate Cancer
6 years ago
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