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Xtandi
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Genomic and genetic testing
Husband currently on
xtandi
and ADT but down the line this might be useful so good to be prepared! Has anyone any knowledge of how/where to get this done in the UK? Our MO is dismissive because the NHS do not provide this testing , or any tx that might follow from it, outside trials.
Husband currently on
xtandi
and ADT but down the line this might be useful so good to be prepared! Has anyone any knowledge of how/where to get this done in the UK? Our MO is dismissive because the NHS do not provide this testing , or any tx that might follow from it, outside trials.
Proflac
in
Advanced Prostate Cancer
4 years ago
Docetaxal treatment #2 upcoming.
I have 4 new Mets after
xtandi
failed followed by a rapid PSA rise, although still under 4 at least a month ago before starting chemo. Gleason 9 rad prostectomy June 2016 37 session of rad and zytiga bliss 17 months to a short run of
xtandi
and now the chemo docetaxal road.
I have 4 new Mets after
xtandi
failed followed by a rapid PSA rise, although still under 4 at least a month ago before starting chemo. Gleason 9 rad prostectomy June 2016 37 session of rad and zytiga bliss 17 months to a short run of
xtandi
and now the chemo docetaxal road.
Costarica1961
in
Advanced Prostate Cancer
4 years ago
Bood in Urine With Xtandi
Hello Brothers, I started
Xtandi
2 days ago, Sat and Sunday. (4) 60mg each day. This morning when I urinated, there were some blood but no burning feeling. Has anyone experienced this after taking
Xtandi
. Is this common? Will it eventually go away? Nick
Hello Brothers, I started
Xtandi
2 days ago, Sat and Sunday. (4) 60mg each day. This morning when I urinated, there were some blood but no burning feeling. Has anyone experienced this after taking
Xtandi
. Is this common? Will it eventually go away? Nick
Nicnatno
in
Positive Wellbeing During Self-Isolation
4 years ago
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Advice concerning treatment and supplements
Does Xoladex and
Xtandi
prolong suppression of PSA? He also takes several supplements; berberine, quercetin, fenbendazole, curcumin, IP6, betaglucans, vit. K2 and broccolisprouts. So many questions, so much worry! All the best to you all!
Does Xoladex and
Xtandi
prolong suppression of PSA? He also takes several supplements; berberine, quercetin, fenbendazole, curcumin, IP6, betaglucans, vit. K2 and broccolisprouts. So many questions, so much worry! All the best to you all!
tasmanien13
in
Advanced Prostate Cancer
4 years ago
Wind
Hi Guys Any advice on Gut Winds, assume the
Xtandi
is causing it. and has a terrible stench to them as well..
Hi Guys Any advice on Gut Winds, assume the
Xtandi
is causing it. and has a terrible stench to them as well..
Andrevz
in
Advanced Prostate Cancer
4 years ago
Helping pay for Xtandi
Hello --- My medical oncologist says I have to take more
Xtandi
--- I looked at its cost and it is way unaffordable to me now. Does anyone know about this medications and how I might get help in paying for it.. Thanks alot...
Hello --- My medical oncologist says I have to take more
Xtandi
--- I looked at its cost and it is way unaffordable to me now. Does anyone know about this medications and how I might get help in paying for it.. Thanks alot...
ken12491
in
Advanced Prostate Cancer
4 years ago
Xtandi side effects?
It is really bothersome, lotions do not seem to help. ....Really hoping he's not allergic, he just started
xtandi
. Thank you guys for your input!! -Ellie
It is really bothersome, lotions do not seem to help. ....Really hoping he's not allergic, he just started
xtandi
. Thank you guys for your input!! -Ellie
ellie2211
in
Advanced Prostate Cancer
4 years ago
Why hasn't MO recommended Provenge? Ideas? He has extensive bone mets (is that it?)Almost no pain. Also 2 questions - clinical trial and PET
DESCRIPTION OF BARRY'S PC --- After docetaxel and enzalutamide failures, several consults plus our MO said Cabazitaxel is best option for husband Barry, who "failed" docetaxel and
Xtandi
. Therefore, he started Cabazitaxel last Tuesday plus Neulasta.
DESCRIPTION OF BARRY'S PC --- After docetaxel and enzalutamide failures, several consults plus our MO said Cabazitaxel is best option for husband Barry, who "failed" docetaxel and
Xtandi
. Therefore, he started Cabazitaxel last Tuesday plus Neulasta.
Barbara345
in
Advanced Prostate Cancer
4 years ago
Xtandi and ache in tailbone
Started
Xtandi
and about a week in to it I started have aching in my tailbone did not have it before and only bothers me when I sit. Feels as though I had been sitting on concrete and soreness afterwards. Would appreciate anyone,s input. Thanks Scootman
Started
Xtandi
and about a week in to it I started have aching in my tailbone did not have it before and only bothers me when I sit. Feels as though I had been sitting on concrete and soreness afterwards. Would appreciate anyone,s input. Thanks Scootman
Scootman
in
Advanced Prostate Cancer
4 years ago
Update on My Dad-Numbers Rising, Bone Marrow
My parents live in Ohio; Dad (age 83) found out through increasing pain (DX 2017-Zytiga, Zometa, Lupron,
Xtandi
and now Xofigo) and an MRI last week that the cancer is attacking among other spots right at a nerve in his spine that leads to his legs.
My parents live in Ohio; Dad (age 83) found out through increasing pain (DX 2017-Zytiga, Zometa, Lupron,
Xtandi
and now Xofigo) and an MRI last week that the cancer is attacking among other spots right at a nerve in his spine that leads to his legs.
missh2
in
Advanced Prostate Cancer
4 years ago
Xgeva experiences
Erleada, Casodex,
Xtandi
, Zoladex, Lupron. All have failed and my PSA is still rising. It recently went above 4. I am doing chemo for 10 sessions every three weeks. I finished the third one a week ago. I have only one lesion in my 7th cervical vertebrae that was just discovered.
Erleada, Casodex,
Xtandi
, Zoladex, Lupron. All have failed and my PSA is still rising. It recently went above 4. I am doing chemo for 10 sessions every three weeks. I finished the third one a week ago. I have only one lesion in my 7th cervical vertebrae that was just discovered.
dpowellnt
in
Advanced Prostate Cancer
4 years ago
Moving on to Xtandi
Can anyone tell me how long
Xtandi
last until it fails? Wishing everyone good health. I get treated at MD Anderson in NJ. Nick
Can anyone tell me how long
Xtandi
last until it fails? Wishing everyone good health. I get treated at MD Anderson in NJ. Nick
Nicnatno
in
Advanced Prostate Cancer
4 years ago
Free Zytiga and Xtandi
The Zytiga has an expiration date of 07/2020 (so only a few more months) and the
Xtandi
does not expire until April of 2021. I am happy to send them to anyone in need!
The Zytiga has an expiration date of 07/2020 (so only a few more months) and the
Xtandi
does not expire until April of 2021. I am happy to send them to anyone in need!
MeliaQuinn
in
Advanced Prostate Cancer
4 years ago
Reducing Xtandi costs
I recently saw a post reply that gave a link to find reduced costs for
Xtandi
. Thought I had saved it but no find. Does anyone know of procedures to obtain
Xtandi
at a reduced cost?
I recently saw a post reply that gave a link to find reduced costs for
Xtandi
. Thought I had saved it but no find. Does anyone know of procedures to obtain
Xtandi
at a reduced cost?
2dee
in
Advanced Prostate Cancer
4 years ago
Prostar trial results so far
Here are the results of my prostar trial with
Xtandi
and EZH2 inhibitor. Baseline labs : psa 7.72 and alkaline phos 368 Bone scan showed progression and ct scan was clear of lymph node Mets Started medicine on 3/13.
Here are the results of my prostar trial with
Xtandi
and EZH2 inhibitor. Baseline labs : psa 7.72 and alkaline phos 368 Bone scan showed progression and ct scan was clear of lymph node Mets Started medicine on 3/13.
Peterd110
in
Advanced Prostate Cancer
4 years ago
Low dose cabazitazel for bone marrow infiltration
Casodex, lupron, taxotere, Zytiga,
Xtandi
, Keytruda, cabazitazel + carboplatin, xofigo (1 dose). Adenocarcinoma and neuroendocrine. PC now in his bone marrow. Trying low dose cabazitazel. Anyone done the same? He so tired.
Casodex, lupron, taxotere, Zytiga,
Xtandi
, Keytruda, cabazitazel + carboplatin, xofigo (1 dose). Adenocarcinoma and neuroendocrine. PC now in his bone marrow. Trying low dose cabazitazel. Anyone done the same? He so tired.
Luv2fish
in
Advanced Prostate Cancer
4 years ago
What options after doctaxel failed, then Extandi failed after 6 weeks? Any treatments, med centers for consults, clinical trials?
Started
Xtandi
around March 1, PSA dropped and then kept rising. Still on
Xtandi
for now, scans scheduled next week. Have people used Jevtana, other things, any clinical trials, any other places Barry should consult? Conference with MO scheduled after scans.
Started
Xtandi
around March 1, PSA dropped and then kept rising. Still on
Xtandi
for now, scans scheduled next week. Have people used Jevtana, other things, any clinical trials, any other places Barry should consult? Conference with MO scheduled after scans.
Barbara345
in
Advanced Prostate Cancer
4 years ago
Failed Docetaxel, then Xtandi, what next?
Hoping to hear from anyone with experience in next treatment/step after docetaxel failed and
Xtandi
failed? Or places for further consults? Dear husband Barry first failed docetaxel (5 treatments), and then
Xtandi
failed after 6 weeks, PSA rising. Still on Lupron, continuing
Xtandi
for now.
Hoping to hear from anyone with experience in next treatment/step after docetaxel failed and
Xtandi
failed? Or places for further consults? Dear husband Barry first failed docetaxel (5 treatments), and then
Xtandi
failed after 6 weeks, PSA rising. Still on Lupron, continuing
Xtandi
for now.
Barbara345
in
Advanced Prostate Cancer
4 years ago
Medicare Part D - Erleada/Xtandi/Nubeqa
Hi all! My father will receive Medicare starting August and is currently on Erleada. The drug costs are astronomical and getting a Medicare replacement isn’t feasible due to networks/availability of physicians in his area. Any advice/guidance on how to make Erleada or any of the related drugs more affordable
Hi all! My father will receive Medicare starting August and is currently on Erleada. The drug costs are astronomical and getting a Medicare replacement isn’t feasible due to networks/availability of physicians in his area. Any advice/guidance on how to make Erleada or any of the related drugs more affordable
ncisc001
in
Advanced Prostate Cancer
4 years ago
Cabazitaxel vs Docetaxel
Now just over 2 years later, he’s done Zytiga, Xofigo and currently on
Xtandi
. PSA rising (although with COVID-19, we’ve had to skip a month of labs — go Monday). At our last visit, doctor talked about having Cabazitaxel as an option.
Now just over 2 years later, he’s done Zytiga, Xofigo and currently on
Xtandi
. PSA rising (although with COVID-19, we’ve had to skip a month of labs — go Monday). At our last visit, doctor talked about having Cabazitaxel as an option.
WVtwinsmama
in
Advanced Prostate Cancer
4 years ago
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