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Vanishing White Matter (VWM) disease
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Heart Pain
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
I wonder if somebody can assist with a question. I'm a 46 year old with a minor mitral valve prolapse. Possible sinus nerve damage on the lower ventricle but minor. I'm not on medication. There is no known 'major' issue or treatment plan suggested by cardiologist. I am very fit with low heart beat. Have
MathewHerbert
in
Atrial Fibrillation Support
1 month ago
passionflower
I’m now 70 and have had rheumatoid arthritis since I was a teenager this is in my family I went into remission at 15 married in my 20 ‘s had two children it came back when I hit the menopause and I’ve been on lots of medication and dmard the last being benipali injections that was very good until I contracted
I’m now 70 and have had rheumatoid arthritis since I was a teenager this is in my family I went into remission at 15 married in my 20 ‘s had two children it came back when I hit the menopause and I’ve been on lots of medication and dmard the last being benipali injections that was very good until I contracted
Passionflower
in
NRAS
6 months ago
advice for docetaxel
I have read several posts of those who have done docetaxel and done a little research on the Internet and YouTube to try to offset side effects. I am 51 years old and was diagnosed five years ago with advanced prostate cancer Gleason score 9 and a few spots to the bones. pelvic area, spine and ribs.
I have read several posts of those who have done docetaxel and done a little research on the Internet and YouTube to try to offset side effects. I am 51 years old and was diagnosed five years ago with advanced prostate cancer Gleason score 9 and a few spots to the bones. pelvic area, spine and ribs.
Oct18
in
Advanced Prostate Cancer
8 months ago
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PSMA scans and radiation of oligometastases
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
Horse12888
in
Advanced Prostate Cancer
8 months ago
Low BP in afib and covid
After all the years I have finally caught COVID. Had a headache for a couple of days which has gone now. Not much coughing, just feel a bit achy and weak.Unfortunately, it's sent me into an afib episode although my heart rate is staying below 100bpm in fact it's hovering around 70 to 80bpm. I was concerned
After all the years I have finally caught COVID. Had a headache for a couple of days which has gone now. Not much coughing, just feel a bit achy and weak.Unfortunately, it's sent me into an afib episode although my heart rate is staying below 100bpm in fact it's hovering around 70 to 80bpm. I was concerned
Karendeena
in
AF Association
6 months ago
Chemo Vs ADT
So this is possibly the dumbest question I have asked. But the knowledge on this forum is worth tapping into even for people like me who struggle with all the complexities of PC. So, - ADT suppresses PC but will not kill it. Chemo on the other hand finds the PC cells and kills them. So why do
So this is possibly the dumbest question I have asked. But the knowledge on this forum is worth tapping into even for people like me who struggle with all the complexities of PC. So, - ADT suppresses PC but will not kill it. Chemo on the other hand finds the PC cells and kills them. So why do
Mike58
in
Advanced Prostate Cancer
6 months ago
Hiccups update.
A little while ago I posted seeking advice on my having developed hiccups after upping my dose of B1 to 2ml jabs twice a week. The hiccups morphed into violent convulsions after a while. As I pointed out, the traditional treatment for hiccups is incompatible with Levadopa. The less effective alternates
A little while ago I posted seeking advice on my having developed hiccups after upping my dose of B1 to 2ml jabs twice a week. The hiccups morphed into violent convulsions after a while. As I pointed out, the traditional treatment for hiccups is incompatible with Levadopa. The less effective alternates
FoieGras
in
Cure Parkinson's
8 months ago
Healthy and high LPA
Hello 55 female, post meno, non smoker, low BMI and no other health issues but recent Afib issues (last year).I also have a small benign tumour and some white matter around it that has increased slightly, which MRI indicates is indicative of chronic microvascular disease. I am waiting for an ablation
Hello 55 female, post meno, non smoker, low BMI and no other health issues but recent Afib issues (last year).I also have a small benign tumour and some white matter around it that has increased slightly, which MRI indicates is indicative of chronic microvascular disease. I am waiting for an ablation
Krissy55
in
Cholesterol Support
6 months ago
PSA moving way too fast .
My prostate was removed 2002 at which time my PSA went to -0 . Five years later it came back and since than it kept on going up very slow till 2020 when I had COVID-19 which almost killed me . As soo as I started feeling better my PSA went from 12 to 25 in a very short time . I do check it every six
My prostate was removed 2002 at which time my PSA went to -0 . Five years later it came back and since than it kept on going up very slow till 2020 when I had COVID-19 which almost killed me . As soo as I started feeling better my PSA went from 12 to 25 in a very short time . I do check it every six
Bowmaster
in
Advanced Prostate Cancer
8 months ago
Some good news at last.
Some good news at last. Saw EP for 6 week follow up, 2 weeks ago, reduced Bisoprolol to 1.25mg but continue with heart failure meds and booked echocardiogram which I had yesterday. Sonographer was lovely, very chatty, I had my previous report from Late January 24 with me, Ejection Fraction 28%, severe
Some good news at last. Saw EP for 6 week follow up, 2 weeks ago, reduced Bisoprolol to 1.25mg but continue with heart failure meds and booked echocardiogram which I had yesterday. Sonographer was lovely, very chatty, I had my previous report from Late January 24 with me, Ejection Fraction 28%, severe
AmandaLouise77
in
Atrial Fibrillation Support
1 month ago
liver biopsy- what does it mean.
Oncologist doctor ordered the biopsy last year but never really explained it. He only said that the cancer was caused by the prostate cancer. Which was a good sign. Immunohistochemical stains demonstrate tumor cells are positive for NKX3.1, PSA, TTF-1 and focally for CK20, while negative for CK7
Oncologist doctor ordered the biopsy last year but never really explained it. He only said that the cancer was caused by the prostate cancer. Which was a good sign. Immunohistochemical stains demonstrate tumor cells are positive for NKX3.1, PSA, TTF-1 and focally for CK20, while negative for CK7
MouseAddams
in
Advanced Prostate Cancer
8 months ago
Chest pains & hypertension due to Interferon or Hydrea?
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
Hi all, My best wishes for a happy and healthier New Year to all you amazing and insperational people on this group! :) I wanted to ask if anybody else might have had the same issues that I am having. I have ET Jak2, now with PV as well. I took Interferon for the very first time a few months ago and
JustKeepSw1mming
in
MPN Voice
6 months ago
Confused about cancer
Hi everyone M partner was diagnosed with primary hcc cancer in liver ( as well as cirrhosis ). They are saying that he can have ablation on the lesion or possibly resection but first they need to speak to the surgeon who is at another hosital as they dont do resection at the Norfolk and Norwich hospital
Hi everyone M partner was diagnosed with primary hcc cancer in liver ( as well as cirrhosis ). They are saying that he can have ablation on the lesion or possibly resection but first they need to speak to the surgeon who is at another hosital as they dont do resection at the Norfolk and Norwich hospital
pussycat66
in
British Liver Trust
8 months ago
“Strategies for the Treatment of Parkinson’s Disease: Beyond Dopamine”
“[i]Therapies to date have been directed to the restoration of the dopaminergic system, and the prevention of dopaminergic neuronal cell death in the midbrain. This review discusses the physiological mechanisms involved in PD as well as new and prospective therapies for the disease. The current data
“[i]Therapies to date have been directed to the restoration of the dopaminergic system, and the prevention of dopaminergic neuronal cell death in the midbrain. This review discusses the physiological mechanisms involved in PD as well as new and prospective therapies for the disease. The current data
Gioc
in
Cure Parkinson's
8 months ago
Hyperplasia
I have been diagnosed with mild diffuse atrophic gastritis and and prominent foveolar hyperplasia. Returned to GP and no further follow up. GP prescribed Gaviscon , symptoms settled but 11 months later are back. Does anyone know if it is necessary to have follow up gastroscopies. I have had PA
I have been diagnosed with mild diffuse atrophic gastritis and and prominent foveolar hyperplasia. Returned to GP and no further follow up. GP prescribed Gaviscon , symptoms settled but 11 months later are back. Does anyone know if it is necessary to have follow up gastroscopies. I have had PA
Helliborous
in
Pernicious Anaemia Society
8 months ago
Atrial Trigeminy, PVCs and everything imbetween
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
I am now actually quite scared as for the past 24 hours I am showing I am having runs of Atrial Trigmeminy, not all the time I don't know if the anxiety is making it worse. I feel like light headed with worry but I don't know if it is the metoprolol as I upped the dose yesterday, but for the past 4
Iamfuzzyduck
in
AF Association
6 months ago
The Holidays can be hard!
Sometimes we dont think about the people that are alone during the holiday season. How difficult it can be with no one to reach out to. I know, l have been there. I knew l was loved, and so are you! MSAA is offering Talkspace, a private online therapy service. 🙂 Limited Space ! Dont do it alone
Sometimes we dont think about the people that are alone during the holiday season. How difficult it can be with no one to reach out to. I know, l have been there. I knew l was loved, and so are you! MSAA is offering Talkspace, a private online therapy service. 🙂 Limited Space ! Dont do it alone
Jesmcd2
CommunityAmbassador
in
My MSAA Community
6 months ago
Feeling Sad and scared.
Mick has been diagnosed with pancreatic cancer which the Medics think has spread too the Liver.I will give more details when I feel that I can cope. Regards Jenni uk
Mick has been diagnosed with pancreatic cancer which the Medics think has spread too the Liver.I will give more details when I feel that I can cope. Regards Jenni uk
very
in
CLL Support
6 months ago
Bisoprolol again!
following my last post I have now stopped Bisoprolol. I have noticed my heart rate increase from around 67 to 74 (normal range). what I am noticing is that I get palpitations but my heart rate is within the normal range - does anyone have experience of this? It isn’t overly fast but just pounding
following my last post I have now stopped Bisoprolol. I have noticed my heart rate increase from around 67 to 74 (normal range). what I am noticing is that I get palpitations but my heart rate is within the normal range - does anyone have experience of this? It isn’t overly fast but just pounding
Be-still-my-heart
in
AF Association
6 months ago
New therapy (I hope I am not repeating myself)
https://www.urologytimes.com/view/antibody-drug-conjugate-plus-docetaxel-shows-promise-in-metastatic-prostate-cancer The novel antibody-drug conjugate PDS0301 (M9241) in combination with docetaxel demonstrated promising safety and immune response signals in patients with metastatic castration-sensitive
https://www.urologytimes.com/view/antibody-drug-conjugate-plus-docetaxel-shows-promise-in-metastatic-prostate-cancer The novel antibody-drug conjugate PDS0301 (M9241) in combination with docetaxel demonstrated promising safety and immune response signals in patients with metastatic castration-sensitive
Maxone73
in
Advanced Prostate Cancer
8 months ago
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