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Vanishing White Matter (VWM) disease
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Still true that using same scan type is preferable to changing scan type?
Mr. Spouse 21, ten years since dx with Gleason 9 in 80% of cores, has only had bone and CT scans to track progression. That's how it was done in 2014. He's been stable since chemo with his current Eligard & Xgeva treatment--see full Profile for his record of Lupron, radiation, Zytiga (failed), Docetaxel
Mr. Spouse 21, ten years since dx with Gleason 9 in 80% of cores, has only had bone and CT scans to track progression. That's how it was done in 2014. He's been stable since chemo with his current Eligard & Xgeva treatment--see full Profile for his record of Lupron, radiation, Zytiga (failed), Docetaxel
spouse21
in
Advanced Prostate Cancer
8 months ago
Seeking support
Hello, I spent 4 weeks in ICU following mediastinitis/pleural and pericardial effusions/septic shock requiring thoractomy surgery. I had collapsed lung lobes therefore was supported by a ventilator. I have been home for 7 weeks now and am slowly recovering. My pending issues are pain at the surgical
Hello, I spent 4 weeks in ICU following mediastinitis/pleural and pericardial effusions/septic shock requiring thoractomy surgery. I had collapsed lung lobes therefore was supported by a ventilator. I have been home for 7 weeks now and am slowly recovering. My pending issues are pain at the surgical
Leenk8
in
ICUsteps
8 months ago
A List for Newly Diagnosed that My Wife did in 2022 please add to list if anything is missed or wrong or needs updating. TIA
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
I have to pack, moving trucks coming in AM…and Rest… She shared this on a farce book group page. This List Is Not Complete Please feel free to Message Chat Us with your Email as items on the listing example: ie: were deleted / removed by a healthunlocked admin. The original post keeps getting modified
Shorehousejam
in
Advanced Prostate Cancer
8 months ago
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rheumatoid arthritis
It’s been called arthritis but it’s not in joints but it’s a pain around my chest and back. X-ray and Ct scan have not reveal anything. GP says let’s try to control the pain first
It’s been called arthritis but it’s not in joints but it’s a pain around my chest and back. X-ray and Ct scan have not reveal anything. GP says let’s try to control the pain first
Bncc
in
PMRGCAuk
6 months ago
Adalimumab and covid vaccine
hi I am taking Adalimumab started about two months ago alongside Methotrexate injections. Does anyone know if I have to stop the Biologic for covid jab as I usually stop Methotrexate for tw weeks. ☺️
hi I am taking Adalimumab started about two months ago alongside Methotrexate injections. Does anyone know if I have to stop the Biologic for covid jab as I usually stop Methotrexate for tw weeks. ☺️
Amb1xkr
in
NRAS
8 months ago
I’m one of the 20%
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis. What would show up on the ultrasound scan to indicate hypothyroidism
20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis. What would show up on the ultrasound scan to indicate hypothyroidism
Dizzy444
in
Thyroid UK
6 months ago
advice for docetaxel
I have read several posts of those who have done docetaxel and done a little research on the Internet and YouTube to try to offset side effects. I am 51 years old and was diagnosed five years ago with advanced prostate cancer Gleason score 9 and a few spots to the bones. pelvic area, spine and ribs.
I have read several posts of those who have done docetaxel and done a little research on the Internet and YouTube to try to offset side effects. I am 51 years old and was diagnosed five years ago with advanced prostate cancer Gleason score 9 and a few spots to the bones. pelvic area, spine and ribs.
Oct18
in
Advanced Prostate Cancer
8 months ago
PSMA scans and radiation of oligometastases
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
I need some advice on a subject that I know has been covered before: PSMA scans and radiation of oligometastases. G4+5=9, RP in 2014. Positive margins, IMRT and ADT in 2015. PSA undetectable until 2019, now slowly rising at 0.40, doubling time 11 months. My questions/concerns about the scan
Horse12888
in
Advanced Prostate Cancer
8 months ago
Please check!
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Test results confusing
My mum has had an underactive thyroid for years...alongside type 1 diabetes. She was told she wasn't having enough levothyroxine, so the doctor wanted her to put it up to 100, but she asked to go on 75, as she felt 100 would be too much. The doctor agreed. She had a blood test on the 7th December and
My mum has had an underactive thyroid for years...alongside type 1 diabetes. She was told she wasn't having enough levothyroxine, so the doctor wanted her to put it up to 100, but she asked to go on 75, as she felt 100 would be too much. The doctor agreed. She had a blood test on the 7th December and
BFlying
in
Thyroid UK
6 months ago
Introduction
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Hello everyone, I am new to this site so let me introduce myself I live with my husband on the outskirts of Llandudno on the North Wales coast. I am very fortunate that both my children & grandchildren live locally. We have a 2 year old cavapoo who together with our 2 year old grand-twins provide
Ildivolover
in
Scleroderma & Raynaud's UK (SRUK)
22 days ago
passionflower
I’m now 70 and have had rheumatoid arthritis since I was a teenager this is in my family I went into remission at 15 married in my 20 ‘s had two children it came back when I hit the menopause and I’ve been on lots of medication and dmard the last being benipali injections that was very good until I contracted
I’m now 70 and have had rheumatoid arthritis since I was a teenager this is in my family I went into remission at 15 married in my 20 ‘s had two children it came back when I hit the menopause and I’ve been on lots of medication and dmard the last being benipali injections that was very good until I contracted
Passionflower
in
NRAS
6 months ago
Hiccups update.
A little while ago I posted seeking advice on my having developed hiccups after upping my dose of B1 to 2ml jabs twice a week. The hiccups morphed into violent convulsions after a while. As I pointed out, the traditional treatment for hiccups is incompatible with Levadopa. The less effective alternates
A little while ago I posted seeking advice on my having developed hiccups after upping my dose of B1 to 2ml jabs twice a week. The hiccups morphed into violent convulsions after a while. As I pointed out, the traditional treatment for hiccups is incompatible with Levadopa. The less effective alternates
FoieGras
in
Cure Parkinson's
8 months ago
AF and MAD
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
anyone else have AF and MAD (mitral annular disjunction) . It was picked up during cardiac MRI. The displacement is 5mm, mild mitral valve prolapse and regurgitation. Neither my cardiologist or EP have said anything about it apart from put me on another very long waiting list to see a more specialist
LoveRowing
in
Atrial Fibrillation Support
26 days ago
Chemo Vs ADT
So this is possibly the dumbest question I have asked. But the knowledge on this forum is worth tapping into even for people like me who struggle with all the complexities of PC. So, - ADT suppresses PC but will not kill it. Chemo on the other hand finds the PC cells and kills them. So why do
So this is possibly the dumbest question I have asked. But the knowledge on this forum is worth tapping into even for people like me who struggle with all the complexities of PC. So, - ADT suppresses PC but will not kill it. Chemo on the other hand finds the PC cells and kills them. So why do
Mike58
in
Advanced Prostate Cancer
6 months ago
Low BP in afib and covid
After all the years I have finally caught COVID. Had a headache for a couple of days which has gone now. Not much coughing, just feel a bit achy and weak.Unfortunately, it's sent me into an afib episode although my heart rate is staying below 100bpm in fact it's hovering around 70 to 80bpm. I was concerned
After all the years I have finally caught COVID. Had a headache for a couple of days which has gone now. Not much coughing, just feel a bit achy and weak.Unfortunately, it's sent me into an afib episode although my heart rate is staying below 100bpm in fact it's hovering around 70 to 80bpm. I was concerned
Karendeena
in
AF Association
6 months ago
PSA moving way too fast .
My prostate was removed 2002 at which time my PSA went to -0 . Five years later it came back and since than it kept on going up very slow till 2020 when I had COVID-19 which almost killed me . As soo as I started feeling better my PSA went from 12 to 25 in a very short time . I do check it every six
My prostate was removed 2002 at which time my PSA went to -0 . Five years later it came back and since than it kept on going up very slow till 2020 when I had COVID-19 which almost killed me . As soo as I started feeling better my PSA went from 12 to 25 in a very short time . I do check it every six
Bowmaster
in
Advanced Prostate Cancer
8 months ago
liver biopsy- what does it mean.
Oncologist doctor ordered the biopsy last year but never really explained it. He only said that the cancer was caused by the prostate cancer. Which was a good sign. Immunohistochemical stains demonstrate tumor cells are positive for NKX3.1, PSA, TTF-1 and focally for CK20, while negative for CK7
Oncologist doctor ordered the biopsy last year but never really explained it. He only said that the cancer was caused by the prostate cancer. Which was a good sign. Immunohistochemical stains demonstrate tumor cells are positive for NKX3.1, PSA, TTF-1 and focally for CK20, while negative for CK7
MouseAddams
in
Advanced Prostate Cancer
8 months ago
Portable air purifier for outdoor exercise with allergic asthma
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
It is the peak of spring allergy season here, as well as other great stuff like air pollution. So I just wanted to share the results of today's testing of my wearable air purifier for asthma. I am lucky to have wooded hills out of my door, so I do not have to scare people while walking there. The device
runcyclexcski
in
Asthma Community Forum
1 month ago
Healthy and high LPA
Hello 55 female, post meno, non smoker, low BMI and no other health issues but recent Afib issues (last year).I also have a small benign tumour and some white matter around it that has increased slightly, which MRI indicates is indicative of chronic microvascular disease. I am waiting for an ablation
Hello 55 female, post meno, non smoker, low BMI and no other health issues but recent Afib issues (last year).I also have a small benign tumour and some white matter around it that has increased slightly, which MRI indicates is indicative of chronic microvascular disease. I am waiting for an ablation
Krissy55
in
Cholesterol Support
6 months ago
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