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Hi all, latest appointment today with my local hospital and back to the revolving door of doctors.The good news platelets still great 298 liver 's be behaving!!! eyes responding to drops. So problems fatigue and stomach upsets. So we are repeating iron tests and B12 apparently they are a bit low (
Hi all, latest appointment today with my local hospital and back to the revolving door of doctors.The good news platelets still great 298 liver 's be behaving!!! eyes responding to drops. So problems fatigue and stomach upsets. So we are repeating iron tests and B12 apparently they are a bit low (
Spanelmad
in
MPN Voice
5 months ago
Peripheral neuropathy and neurology's response
Hi. I've posted a couple of times recently so I'll start with a precise and then my ask! I was diagnosed with Vitamin B12 deficiency in 2015 - I wasn't tested for PA. I have self-injected for 4 years (hydroxocobalamin) - and got my life back by injecting every other day (sometimes increasing to daily
Hi. I've posted a couple of times recently so I'll start with a precise and then my ask! I was diagnosed with Vitamin B12 deficiency in 2015 - I wasn't tested for PA. I have self-injected for 4 years (hydroxocobalamin) - and got my life back by injecting every other day (sometimes increasing to daily
LizWilsonpa
in
Pernicious Anaemia Society
2 months ago
hEDS and B12 comorbidity?
Possibly a bit of a long shot but does anyone here also have a diagnosis of hypermobile Ehlers-Danlos syndrome and/or joint problems related to hypermobility as well as PA? I recently saw a rheumatologist and whilst we’re waiting on test results to rule out other autoimmune diseases, I think she was
Possibly a bit of a long shot but does anyone here also have a diagnosis of hypermobile Ehlers-Danlos syndrome and/or joint problems related to hypermobility as well as PA? I recently saw a rheumatologist and whilst we’re waiting on test results to rule out other autoimmune diseases, I think she was
MindfulSquirrel
in
Pernicious Anaemia Society
5 months ago
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latest results & pericaridal effusion
currently on 75mcg of tirosint 6 days a week and 1 day 100mcg, also on NDT 1 1/4 grain. I do feel awful at the moment most days with extreme fatigue, hair loss, muscle weakness and spasms, pain. I have had terrible heart problems I already have PoTs but for the past year I have had pericardial
currently on 75mcg of tirosint 6 days a week and 1 day 100mcg, also on NDT 1 1/4 grain. I do feel awful at the moment most days with extreme fatigue, hair loss, muscle weakness and spasms, pain. I have had terrible heart problems I already have PoTs but for the past year I have had pericardial
Ajva
in
Thyroid UK
6 months ago
More information on Vitamin D
This article has a lot of reliable information about Vitamin D. It is from the National Institutes of Health.
https://ods.od.nih.gov/factsheets/VitaminD-Consumer/#h3
This article has a lot of reliable information about Vitamin D. It is from the National Institutes of Health.
https://ods.od.nih.gov/factsheets/VitaminD-Consumer/#h3
BettysMom
in
My MSAA Community
5 months ago
Fuming, daughter so ill
So was so hopeful before Christmas when daughters Doc suddenly px'd B12 loading doses and referred to Alder Hey for further investigations to cover all bases. After 6 th jab end December was told she would have to wait till end of March for next jab. I had contacted surgery Monday to ask if her next
So was so hopeful before Christmas when daughters Doc suddenly px'd B12 loading doses and referred to Alder Hey for further investigations to cover all bases. After 6 th jab end December was told she would have to wait till end of March for next jab. I had contacted surgery Monday to ask if her next
Polo22
in
Pernicious Anaemia Society
5 months ago
FUMING, Bloody GP's
posting as otherwise I will wind up having a hissy fit. Not really a thyroid issue but just shows how poor the system is. Had a smear December 14th, had had some niggling worries so thought right sort it out. Phoned GP's to ask for signposting to appropriate service. I was told we'll book you in
posting as otherwise I will wind up having a hissy fit. Not really a thyroid issue but just shows how poor the system is. Had a smear December 14th, had had some niggling worries so thought right sort it out. Phoned GP's to ask for signposting to appropriate service. I was told we'll book you in
Polo22
in
Thyroid UK
5 months ago
B vits pyridoxal-5-phosphate (vitamin B6)
What B vitamins do people take and what brands have pyridoxal-5-phosphate (vitamin B6) in? What else do people take other than potassium rich diet and B vitamins and what form do you take folic acid in? I've heard it should be folate as folic acid isn't very good? Thanks
What B vitamins do people take and what brands have pyridoxal-5-phosphate (vitamin B6) in? What else do people take other than potassium rich diet and B vitamins and what form do you take folic acid in? I've heard it should be folate as folic acid isn't very good? Thanks
Rachael887
in
Pernicious Anaemia Society
5 months ago
Starting medication advice
Hello Long story short, i was diagnosed Hashimoto's 2020, told to wait for TSH to rise before medication. I've been trying to conceive for years so went back to the GP this year when i found out TSH should be below 2.5 for this, not 5. Most recent tests are: 22/02/24: TSH - 5.01 (0.35- 5.50) T4 -
Hello Long story short, i was diagnosed Hashimoto's 2020, told to wait for TSH to rise before medication. I've been trying to conceive for years so went back to the GP this year when i found out TSH should be below 2.5 for this, not 5. Most recent tests are: 22/02/24: TSH - 5.01 (0.35- 5.50) T4 -
katyy94x
in
Thyroid UK
5 months ago
Rheumy exam/USA major university medical system - disappointed
I have severe RA - much joint damage in hands & feet. Good results with Rinvoq. Yesterday, I visited rheumy for 6 mth visit. I have been suffering with swollen ankles & major chronic fatigue. Tried prednisone, B12 - no relief. Rheumy did no physical exam. I showed her my ankles, hands & feet. She
I have severe RA - much joint damage in hands & feet. Good results with Rinvoq. Yesterday, I visited rheumy for 6 mth visit. I have been suffering with swollen ankles & major chronic fatigue. Tried prednisone, B12 - no relief. Rheumy did no physical exam. I showed her my ankles, hands & feet. She
Hisue
in
NRAS
5 months ago
Carnivore Diet - Can't solidly recommend it
I have been on the Carnivore Diet for 3 months or so, as part of my quest to ameliorate as much of my Young Onset Parkinsons Disease symptoms as possible. I'll sum it up a bit for you. 1. The diet consists of animal products and ideally no plant products. I ate mostly beef, eggs and butter, but
I have been on the Carnivore Diet for 3 months or so, as part of my quest to ameliorate as much of my Young Onset Parkinsons Disease symptoms as possible. I'll sum it up a bit for you. 1. The diet consists of animal products and ideally no plant products. I ate mostly beef, eggs and butter, but
bassofspades
in
Cure Parkinson's
5 months ago
B12 and Folate
hi everyone I’ve now decided after lots of help from the very knowledgeable people on this forum that I need Vit supplements Can I take B12 and Folate? My folate is really quite low but also need B12 Thanks in advance
hi everyone I’ve now decided after lots of help from the very knowledgeable people on this forum that I need Vit supplements Can I take B12 and Folate? My folate is really quite low but also need B12 Thanks in advance
wolthebuilder
in
Thyroid UK
2 months ago
Advice on recent tests please
Hi I've just had my results of recent tests back as follows:T4 14.5 pmol/L range 9 - 19 pmol/L TSH 5.3 miu/L range 0.35 - 4.94 miu/L Previous from 4 Dec 2023 T4 10.5 TSH 6.9 Had a text message from the surgery saying thyroid levels are improving test again in 2 to 3 months. Advice on next steps
Hi I've just had my results of recent tests back as follows:T4 14.5 pmol/L range 9 - 19 pmol/L TSH 5.3 miu/L range 0.35 - 4.94 miu/L Previous from 4 Dec 2023 T4 10.5 TSH 6.9 Had a text message from the surgery saying thyroid levels are improving test again in 2 to 3 months. Advice on next steps
Cabbages123
in
Thyroid UK
5 months ago
Folate
I did a full bloods Medichecks test. They have emailed me saying: Unfortunately, they were unable to process your folate biomarker. The results the lab were able to process, will be uploaded once they have been reviewed by a member of the medical team for you. I’m a bit non-plussed as I stopped taking
I did a full bloods Medichecks test. They have emailed me saying: Unfortunately, they were unable to process your folate biomarker. The results the lab were able to process, will be uploaded once they have been reviewed by a member of the medical team for you. I’m a bit non-plussed as I stopped taking
Loafinabout
in
Thyroid UK
5 months ago
Active b12 levels normal - can it still be PA??
Hello everyone, I am wondering if you can have normal or high active b12 levels but still have pernicious anemia?
Hello everyone, I am wondering if you can have normal or high active b12 levels but still have pernicious anemia?
Suffering_sunny
in
Pernicious Anaemia Society
5 months ago
thyroid and iron panel results
hi All, I would love to hear some comments about my results please. I have been recently diagnosed with Graves’ disease. 27 December (went to the A&E with heart palpitations), no ranges provided, I have just googled what nhs ranges are. I was put on propranolol 60mg. T4 - 19.2 (12-22) T3 - 9.8
hi All, I would love to hear some comments about my results please. I have been recently diagnosed with Graves’ disease. 27 December (went to the A&E with heart palpitations), no ranges provided, I have just googled what nhs ranges are. I was put on propranolol 60mg. T4 - 19.2 (12-22) T3 - 9.8
Kari55
in
Thyroid UK
5 months ago
Association between dietary thiamine intake and the risk of cognitive decline
What to make of this? https://gpsych.bmj.com/content/37/1/e101311
What to make of this? https://gpsych.bmj.com/content/37/1/e101311
Buckholt
in
Cure Parkinson's
5 months ago
GP call
Well quite a good discussion with my GP just now! Reiterated my symptoms of B12 deficiency, Folate deficiency, Hypothyroidism, vegetarian and having a gastric band 12 years ago a lightbulb came on! Oh so yes probably good idea for B12 injections! She said she will write to gastroenterologists (I thought
Well quite a good discussion with my GP just now! Reiterated my symptoms of B12 deficiency, Folate deficiency, Hypothyroidism, vegetarian and having a gastric band 12 years ago a lightbulb came on! Oh so yes probably good idea for B12 injections! She said she will write to gastroenterologists (I thought
Doris11
in
Thyroid UK
5 months ago
Buying Hydroxocobalamin in Spain
Hello, my GP did allow me a prescription (usually an annual one) but this time on 5 ampoules.. oh well. I'm off to Gran Canaria tomorrow, paddle boarding! I wonder if B12 can be bought OTC there? If I don't have enough B12, I become wobbly and fall of my board ;)
Hello, my GP did allow me a prescription (usually an annual one) but this time on 5 ampoules.. oh well. I'm off to Gran Canaria tomorrow, paddle boarding! I wonder if B12 can be bought OTC there? If I don't have enough B12, I become wobbly and fall of my board ;)
pinkpaddleboarder
in
Pernicious Anaemia Society
5 months ago
Folate test prep
I’ve been asked to retest my folate as this was rejected from my latest batch of blood tests, earlier this month. I’ve not had just folate tested before (only as part of a wider set of tests) please can you advise on any prep I need to do for just folate? Assuming I should stop Thorne Basic B
I’ve been asked to retest my folate as this was rejected from my latest batch of blood tests, earlier this month. I’ve not had just folate tested before (only as part of a wider set of tests) please can you advise on any prep I need to do for just folate? Assuming I should stop Thorne Basic B
SleepingDisco
in
Thyroid UK
5 months ago
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