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consultant Gastroenterologist
A phone call yesterday from a consultant Gastroenterologist was very unsuccessful! It lasted less than 5 mins! I explained my symptoms and what my last blood tests results were and I am indeterminate B12 deficient (as per March 24 N.I.C.E guidlines); I also explained it may be my gastric band that’s
A phone call yesterday from a consultant Gastroenterologist was very unsuccessful! It lasted less than 5 mins! I explained my symptoms and what my last blood tests results were and I am indeterminate B12 deficient (as per March 24 N.I.C.E guidlines); I also explained it may be my gastric band that’s
Doris11
in
Pernicious Anaemia Society
3 months ago
Injections
Hello everyone. I'm waiting for NHS appt with endo which is 20th May. I don't know how much longer I can stay in work feeling like i do atm. I'm exhausted all the time. I cant afford private treatment for B12. I already pay private consultants for menopause care so I just can't add on anymore.
Hello everyone. I'm waiting for NHS appt with endo which is 20th May. I don't know how much longer I can stay in work feeling like i do atm. I'm exhausted all the time. I cant afford private treatment for B12. I already pay private consultants for menopause care so I just can't add on anymore.
RedOne1
in
Pernicious Anaemia Society
3 months ago
milk thistle - t3 - conflicting reports
hi there my liver enzymes 151 alt max is 35 so very very high - last November were 48. AST 58 (max is 35) I read that milk thistle can help liver - and help conversion but also lowers t3 ? I’m Taking NAC 1800mg and inflammation is negligible. ESR 6 and CRP 0.6 ! 👌 ferritin 121 B12 902 and
hi there my liver enzymes 151 alt max is 35 so very very high - last November were 48. AST 58 (max is 35) I read that milk thistle can help liver - and help conversion but also lowers t3 ? I’m Taking NAC 1800mg and inflammation is negligible. ESR 6 and CRP 0.6 ! 👌 ferritin 121 B12 902 and
Chouchou1234
in
Thyroid UK
3 months ago
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Blood results- T3 levels consistent? Can I improve them?
Hello, Despite feeling overall better for some time I started feeling too regularly worse again. I suspected low T3 (perimenopause also possible). Yep, my T3 is on the lower end of ‘normal’. These are my results: TSH 1.53 mlU/L (norm 0.27-4.2) Free T4 15.6 pmol/L. (12.0-22.0) Free
Hello, Despite feeling overall better for some time I started feeling too regularly worse again. I suspected low T3 (perimenopause also possible). Yep, my T3 is on the lower end of ‘normal’. These are my results: TSH 1.53 mlU/L (norm 0.27-4.2) Free T4 15.6 pmol/L. (12.0-22.0) Free
Bluesadawg
in
Thyroid UK
3 months ago
commencing Armour NDT
Hi I am starting Armour as advised by a private Dr recommended via Thyroid UK Apparently from my bloods it appears I’m a poor converter and have been under treated. ( exactly what has previously been suggested on this site) My GP has only ever prescribed levothyroxine 50mcg since my diagnosis in
Hi I am starting Armour as advised by a private Dr recommended via Thyroid UK Apparently from my bloods it appears I’m a poor converter and have been under treated. ( exactly what has previously been suggested on this site) My GP has only ever prescribed levothyroxine 50mcg since my diagnosis in
Dukemaster
in
Thyroid UK
3 months ago
Feeling rather blue
So I've been at a fairly useless clinic for the past 5 years - managed 2xICI and 1 egg collection with 2 embryos at the end. All chemicals/ failures. I had a consultation with one of the consultants about my treatment. He dismissed any supplements other than folic acid and vitamin D. Said my AMH (12.07
So I've been at a fairly useless clinic for the past 5 years - managed 2xICI and 1 egg collection with 2 embryos at the end. All chemicals/ failures. I had a consultation with one of the consultants about my treatment. He dismissed any supplements other than folic acid and vitamin D. Said my AMH (12.07
Rubylou01
in
Fertility Network UK
3 months ago
ovulation
I have an irregular cycle due to PCOS. I have tried to use the LH strips with no success. Wonder what other people with PCOS have done to track ovulation? Background: TTC 12 months. Wait list for fertility clinic. On myoinositol, vit d, folic acid and co10q
I have an irregular cycle due to PCOS. I have tried to use the LH strips with no success. Wonder what other people with PCOS have done to track ovulation? Background: TTC 12 months. Wait list for fertility clinic. On myoinositol, vit d, folic acid and co10q
Melsunshine
in
Fertility Network UK
3 months ago
Seeking reassurance on fatigue and recovery
Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted to see if anyone has experienced something similar.
Onset
: Since December 2022, I had recurring, short episodes of fatigue. About once every month, I would feel it coming on (almost like a cold, but with no sinus/respiratory
Hi everyone, I've been managing a rollercoaster of symptoms lately and wanted to see if anyone has experienced something similar.
Onset
: Since December 2022, I had recurring, short episodes of fatigue. About once every month, I would feel it coming on (almost like a cold, but with no sinus/respiratory
chonkytonk
in
Pernicious Anaemia Society
3 months ago
Post thyroidectomy.
Am now three weeks past total thyroidectomy and removal of numerous lymph glands. First week on levothyroxine I felt great. The last week I have been sleeping around sixteen hours a day. I could sleep right now! Due to see my surgeon next week for first check up since operation. What should I ask? I've
Am now three weeks past total thyroidectomy and removal of numerous lymph glands. First week on levothyroxine I felt great. The last week I have been sleeping around sixteen hours a day. I could sleep right now! Due to see my surgeon next week for first check up since operation. What should I ask? I've
HelenaJ
in
Thyroid UK
3 months ago
Levo being reduced, but feeling under medicated.
Hi, I would greatly appreciate some input on my test results! I have been hypothyroid for over 17 years, and have always adhered unquestioningly to the doctor’s guidance, assuming that they were doing all they could. Having found this site, however, I am starting to wonder if there is more that can
Hi, I would greatly appreciate some input on my test results! I have been hypothyroid for over 17 years, and have always adhered unquestioningly to the doctor’s guidance, assuming that they were doing all they could. Having found this site, however, I am starting to wonder if there is more that can
Bbmamma
in
Thyroid UK
3 months ago
Some more results
I’ve had these results and all have back in range but wondered what people’s thoughts were as some were on the lower side. Thank you! Serum vitamin B12: 426 ng/L Normal range: 187 to 883 Serum folate: 5.2 ug/L Normal range: 3.1 to 20.5 Serum ferritin: 42 ng/mL Normal range: 20 to 235
I’ve had these results and all have back in range but wondered what people’s thoughts were as some were on the lower side. Thank you! Serum vitamin B12: 426 ng/L Normal range: 187 to 883 Serum folate: 5.2 ug/L Normal range: 3.1 to 20.5 Serum ferritin: 42 ng/mL Normal range: 20 to 235
Lollipop93
in
Thyroid UK
3 months ago
My thyroid results....advice!
Hiya Just got the results of my thyroid and wanted your input if i am in optimal range on t3 and t4. Pls advise! We're going to try again using FET in july and will be our last try. Appreciate to use Yr feedback I'm booked in to see private endo tmw. He has me on t3 for two months now and it's great
Hiya Just got the results of my thyroid and wanted your input if i am in optimal range on t3 and t4. Pls advise! We're going to try again using FET in july and will be our last try. Appreciate to use Yr feedback I'm booked in to see private endo tmw. He has me on t3 for two months now and it's great
sara0322
in
Thyroid UK
3 months ago
Results of my thyroid...advice!
Hiya Just got the results of my thyroid and wanted your input if i am in optimal range on t3 and t4. Pls advise! We're going to try again using FET in july and will be our last try. Appreciate to use Yr feedback I'm booked in to see private endo tmw. He has me on t3 for two months now and it's great
Hiya Just got the results of my thyroid and wanted your input if i am in optimal range on t3 and t4. Pls advise! We're going to try again using FET in july and will be our last try. Appreciate to use Yr feedback I'm booked in to see private endo tmw. He has me on t3 for two months now and it's great
sara0322
in
Fertility, Miscarriage & IVF Support
3 months ago
Hi all
I was PA negative and celiac negative in November 2023 but was having problems with B12 and folate Deficiency ( I am also Hypothyroid). My B12 serum was 226 ( >178ng/L) Folate 6 (>2.9ug/L So new (March 2024) N.I.C.E guidlines says indeterminate test result- possible B12 deficiency! I have a phonecall
I was PA negative and celiac negative in November 2023 but was having problems with B12 and folate Deficiency ( I am also Hypothyroid). My B12 serum was 226 ( >178ng/L) Folate 6 (>2.9ug/L So new (March 2024) N.I.C.E guidlines says indeterminate test result- possible B12 deficiency! I have a phonecall
Doris11
in
Pernicious Anaemia Society
3 months ago
Endo finally tested FT3! Thoughts?
At my last endo appt early Dec, the consultant kept his same stance that my blood tests were all in range and my symptoms were all due to perimenopause. He said there was slight room for a small increase in levothyroxine so ive gone from 125x5/100x2 to 125x6 /100x1 and told me to speak to my gp and
At my last endo appt early Dec, the consultant kept his same stance that my blood tests were all in range and my symptoms were all due to perimenopause. He said there was slight room for a small increase in levothyroxine so ive gone from 125x5/100x2 to 125x6 /100x1 and told me to speak to my gp and
JUUJOO
in
Thyroid UK
4 months ago
Any suggestions for how to improve my poos
Hello all. My apologies for the title of this post, but I didn’t know how to phrase it. I was diagnosed with GCA in January 2023 and have been on Prednisone ever since, along with other meds that are given to mitigate the side effects of the Pred. I also started Methotrexate this January. My first attempt
Hello all. My apologies for the title of this post, but I didn’t know how to phrase it. I was diagnosed with GCA in January 2023 and have been on Prednisone ever since, along with other meds that are given to mitigate the side effects of the Pred. I also started Methotrexate this January. My first attempt
Handloomweaver
in
PMRGCAuk
4 months ago
Do I need to increase folic acid/folate intake with B12 shots?
Hello all, I am within one week of taking daily b12 injections as a loading dose. A group on Facebook advise a protocol of taking 5mg of folic acid daily as it is a cofactor for b12. I get that part but I’m checking whether it’s necessary to take such a high amount of folic acid if, prior to starting
Hello all, I am within one week of taking daily b12 injections as a loading dose. A group on Facebook advise a protocol of taking 5mg of folic acid daily as it is a cofactor for b12. I get that part but I’m checking whether it’s necessary to take such a high amount of folic acid if, prior to starting
JazzSoprano
in
Pernicious Anaemia Society
4 months ago
Alcohol and B12/folate deficiency
Just wondering if any of you lovely people avoid alcohol? I haven't felt much like drinking recently but when I have, I feel absolutely awful the next day. Just wondering if it's just extra pressure on the body that makes me feel bad or if there's a proven connection I haven't come across yet? Thanks
Just wondering if any of you lovely people avoid alcohol? I haven't felt much like drinking recently but when I have, I feel absolutely awful the next day. Just wondering if it's just extra pressure on the body that makes me feel bad or if there's a proven connection I haven't come across yet? Thanks
ClaireWF1346
in
Pernicious Anaemia Society
4 months ago
Haematologists consultant
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Hi I’ve been trying to get help with my Pernicious anemia diagnosis which my mum & sister had they have both passed away now, but the drs are not helping I only got diagnosed through me asking for further tests after they initially told me my B12 was high 2000 so I wasn’t deficient!! , my dr didn’t
Windyway
in
Pernicious Anaemia Society
4 months ago
Goats milk kefir
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Hi, Does anyone drink Chuckling Goat kefir? I have had some on and off over the last few weeks, but not consistently so not sure if it helps. It is a very strong kefir that is full of B12. I am not sure yet if I have pernicious anaemia, or whether it is a gut dysbiosis problem as I do not appear to be
Chickens44
in
Pernicious Anaemia Society
4 months ago
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