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Vitamin B12 / Folic acid
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Zolendronic Acid Infusions
I know this treatment is for osteoporosis and not PMR but I’ve been offered this treatment as I’m over 65 and I’m on the cusp of being osteopenic and my bone fracture score is now just above 10.. Recently my rheumy said that the results of my dexascan were some of the best he had seen for someone on
I know this treatment is for osteoporosis and not PMR but I’ve been offered this treatment as I’m over 65 and I’m on the cusp of being osteopenic and my bone fracture score is now just above 10.. Recently my rheumy said that the results of my dexascan were some of the best he had seen for someone on
Janet57
in
PMRGCAuk
10 months ago
Designing new trial
I chose to stop my SL methylcobalamin and start injecting methylcobalamin. I started with 1 mg three times a day. After three days I found that sometimes I could feel that I had used up my B12 between injections and went to 1.5 mg three times a day and found that to be disruptive and decided that was
I chose to stop my SL methylcobalamin and start injecting methylcobalamin. I started with 1 mg three times a day. After three days I found that sometimes I could feel that I had used up my B12 between injections and went to 1.5 mg three times a day and found that to be disruptive and decided that was
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
My body did not get the memo.
I accept that a test had been done measuring the amount of Hydroxocobalamin and Cynocabalamin that can be measured in the urine at different times after the injection and that the numbers are likely repeatable. I do not know if any testing was done on a subject that was B12 deficient. I find it unlikely
I accept that a test had been done measuring the amount of Hydroxocobalamin and Cynocabalamin that can be measured in the urine at different times after the injection and that the numbers are likely repeatable. I do not know if any testing was done on a subject that was B12 deficient. I find it unlikely
WIZARD6787
in
Pernicious Anaemia Society
11 months ago
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Burning tongue "syndrome": nerve-related ?
I saw a different Oral Medicine consultant very briefly last week, who told me that nerve damage was the cause of my constantly burning tongue - and then offered me Amitryptyline as a six-month pain relief trial. I refused the offer of this antidepressant, but missed the opportunity to ask the obvious
I saw a different Oral Medicine consultant very briefly last week, who told me that nerve damage was the cause of my constantly burning tongue - and then offered me Amitryptyline as a six-month pain relief trial. I refused the offer of this antidepressant, but missed the opportunity to ask the obvious
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
11 months ago
Advice
Hi I have just checked my last thyroid results and my Free T4 is rising and TSH is low. My dose has been the same for 18 months and I haven't changed diet or been taking supplements. 26/04/22 Free T4 was 13.3 and TSH 6.2. My dose was increased from 75mcg to 100mcg. Since then trend has been: 09/06
Hi I have just checked my last thyroid results and my Free T4 is rising and TSH is low. My dose has been the same for 18 months and I haven't changed diet or been taking supplements. 26/04/22 Free T4 was 13.3 and TSH 6.2. My dose was increased from 75mcg to 100mcg. Since then trend has been: 09/06
HuskyBlue
in
Thyroid UK
8 months ago
Folic acid and b12
Hi all, I’m new here. I have low B12 (390 -180-900), but have been tested for pernicious anaemia and the test came back clear. I have low folic acid (3.4 -3.00-17.00) and was perscribed folic acid 5mg. I just read that taking folic acid when low in b12 can cause neurological symptoms. I was tested
Hi all, I’m new here. I have low B12 (390 -180-900), but have been tested for pernicious anaemia and the test came back clear. I have low folic acid (3.4 -3.00-17.00) and was perscribed folic acid 5mg. I just read that taking folic acid when low in b12 can cause neurological symptoms. I was tested
Angie10116
in
Pernicious Anaemia Society
8 months ago
Prednisolone and breathlessness
Hi everyone i hope you all had a lovely and hopefully pain free Christmas.M y 86 year old mums GCA journey so far has had a few challenges along the way since starting early March and after our last rheumy visit she has reluctantly let us continue following DL slow taper from 13mg to 12mg and my mum
Hi everyone i hope you all had a lovely and hopefully pain free Christmas.M y 86 year old mums GCA journey so far has had a few challenges along the way since starting early March and after our last rheumy visit she has reluctantly let us continue following DL slow taper from 13mg to 12mg and my mum
Buchanan16
in
PMRGCAuk
8 months ago
Am i on the right dose?
I posted my latest test results last night and just wondered if anyone can advise if i'm on the right dose of levo? I'm pretty sure my gp is going to ring to discuss the results and i want to make sure i know what to say. Should i start taking a B12? Also should i stay on the iron patches? 🤔 I should
I posted my latest test results last night and just wondered if anyone can advise if i'm on the right dose of levo? I'm pretty sure my gp is going to ring to discuss the results and i want to make sure i know what to say. Should i start taking a B12? Also should i stay on the iron patches? 🤔 I should
catpurple7
in
Thyroid UK
11 months ago
Make of B12
Sorry just a quick one.I usually use panpharma but this time round (last few months) I have been using Hevert due to jot being able to get the other. Would anyone know if Hevert are not as good as panpharma? I'm probably clutching at straws but thought I would ask. Next time round I shall go back to
Sorry just a quick one.I usually use panpharma but this time round (last few months) I have been using Hevert due to jot being able to get the other. Would anyone know if Hevert are not as good as panpharma? I'm probably clutching at straws but thought I would ask. Next time round I shall go back to
Sunshine1932
in
Pernicious Anaemia Society
11 months ago
Monitoring when starting Folic Acid and Ferrous fumerate
Hi guys, my Folate wa only midly low, been prescribed Folic Acid and GP just said I can make an appointment in a couple of months "if I want to" Reading on the NICE website, I see it says the following What monitoring is required after treatment for vitamin B12 or folate deficiency has started? Perform
Hi guys, my Folate wa only midly low, been prescribed Folic Acid and GP just said I can make an appointment in a couple of months "if I want to" Reading on the NICE website, I see it says the following What monitoring is required after treatment for vitamin B12 or folate deficiency has started? Perform
yewotc23
in
Thyroid UK
4 months ago
Exhaustion
Hi All Finally have a full set of results: FT3. 4.1 (range 3.1 - 6.8) FT4 22.2 (range 12 - 22) TSH 0.08 (range 0.27 - 4.2) Vit D. 113 nmol/L reduced supplements from 10000iU/wk to 6000/wk Anaemia HB 152 g/L Normal Ferritin 324 if/L Normal TSAT 40% Normal Active B12 51 pmol/L Normal Folate
Hi All Finally have a full set of results: FT3. 4.1 (range 3.1 - 6.8) FT4 22.2 (range 12 - 22) TSH 0.08 (range 0.27 - 4.2) Vit D. 113 nmol/L reduced supplements from 10000iU/wk to 6000/wk Anaemia HB 152 g/L Normal Ferritin 324 if/L Normal TSAT 40% Normal Active B12 51 pmol/L Normal Folate
DylanA
in
Thyroid UK
6 months ago
Why is iron over-range yet TIBC shows a need ro take more please?
I'm wondering if the following could be explained please?In past ferritin has been 48 ug/L & obv considered normal by Dr. On doing private iron profile results like the following have come up,on more than one occasion. Iron 24.19 (6,6,-22) Tibc 115.49 (41-77) Transferrin saturation 20.95% (20-55) Kind
I'm wondering if the following could be explained please?In past ferritin has been 48 ug/L & obv considered normal by Dr. On doing private iron profile results like the following have come up,on more than one occasion. Iron 24.19 (6,6,-22) Tibc 115.49 (41-77) Transferrin saturation 20.95% (20-55) Kind
Jo5454
in
Pernicious Anaemia Society
4 months ago
Hair loss
This question may have been asked before, if so I’ve missed the response. About two years ago my hair started falling out. I’d been in hospital with blood clots in my lungs so I put it down to ill health at that time. Sadly, it has continued and worsened. I’ve spent a small fortune on lotions and potions
This question may have been asked before, if so I’ve missed the response. About two years ago my hair started falling out. I’d been in hospital with blood clots in my lungs so I put it down to ill health at that time. Sadly, it has continued and worsened. I’ve spent a small fortune on lotions and potions
Twaddletop
in
Pernicious Anaemia Society
11 months ago
Aching Joints
Hi all. I started Levoxine in late August. Currently on 100mcg and T3 and T4 are now in range with TSH around 0.98. History previously hyper now hypo and positive TgAB). However I am getting aching joints a lot on and off and a lot of fatigue. Looking back a lot of these symptoms started just over one
Hi all. I started Levoxine in late August. Currently on 100mcg and T3 and T4 are now in range with TSH around 0.98. History previously hyper now hypo and positive TgAB). However I am getting aching joints a lot on and off and a lot of fatigue. Looking back a lot of these symptoms started just over one
Curious123
in
Thyroid UK
8 months ago
feeling worse and worse
since a couple days ago, I’ve had extreme fatigue, feeling low and a very bad headache. I just went for a walk with my mum and I felt horrible. I got hot flushes, fast heart rate, shakiness, covered in sweat and weakness. Now I’m laying on the couch, exhausted. There’s no way that hypo can cause you
since a couple days ago, I’ve had extreme fatigue, feeling low and a very bad headache. I just went for a walk with my mum and I felt horrible. I got hot flushes, fast heart rate, shakiness, covered in sweat and weakness. Now I’m laying on the couch, exhausted. There’s no way that hypo can cause you
Angie10116
in
Thyroid UK
8 months ago
Results
Hello everyone. Firstly I want to say a big thanks to everyone that helped me understand my mum's results and situation. I also got my wires crossed and gave some wrong info. My mum did have a test before they prescribed 25mg, TSH 8.58. They said as she was 'borderline' they would try levo before considering
Hello everyone. Firstly I want to say a big thanks to everyone that helped me understand my mum's results and situation. I also got my wires crossed and gave some wrong info. My mum did have a test before they prescribed 25mg, TSH 8.58. They said as she was 'borderline' they would try levo before considering
RedOne1
in
Thyroid UK
6 months ago
Timings for taking supplements
hi everyone Ive just received all my new supplements and want to make sure I’ve got my head round what I need to take, when. So from looking at previous posts, am I right in thinking: First thing - Levothyroxine With breakfast - b vitamins (start with b12 and a week later add b complex?) and vitamin
hi everyone Ive just received all my new supplements and want to make sure I’ve got my head round what I need to take, when. So from looking at previous posts, am I right in thinking: First thing - Levothyroxine With breakfast - b vitamins (start with b12 and a week later add b complex?) and vitamin
Smartypants1
in
Thyroid UK
6 months ago
Results
Hi everyone I posted a couple of weeks ago and was advised to have bloods done. These are my results so hoping for further advice in supplementing or adjusting doseage. I currently take 50mcg Levothyroxine and 25mcg T3 daily. I also have B12 injections every 12wks. Latest B12 injection given day after
Hi everyone I posted a couple of weeks ago and was advised to have bloods done. These are my results so hoping for further advice in supplementing or adjusting doseage. I currently take 50mcg Levothyroxine and 25mcg T3 daily. I also have B12 injections every 12wks. Latest B12 injection given day after
Pixie50
in
Thyroid UK
6 months ago
B12 Vitamin
hi Could someone be so kind as to interpret the vitamin B12, do I need to supplement this and if so what is recommended and best supplement. Thank you in advance
hi Could someone be so kind as to interpret the vitamin B12, do I need to supplement this and if so what is recommended and best supplement. Thank you in advance
Thesun
in
Thyroid UK
7 months ago
After 25 days back on prednisone...
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Biba5
in
PMRGCAuk
5 months ago
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