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CLL - Leukemia Cutis
Hello everyone. CLL Dx 2002, unmutated, Trisomy12, Notch 1. O+I 2 years, Off meds 2 years (heart surgery), WBC has been slowly rising ove4r the past 4 or 5 months, but I was never at MRD. A biopsy of a "rash" on my scalp shows Leukemia Cutis - most likely CLL related. Has anyone else had this? How
Hello everyone. CLL Dx 2002, unmutated, Trisomy12, Notch 1. O+I 2 years, Off meds 2 years (heart surgery), WBC has been slowly rising ove4r the past 4 or 5 months, but I was never at MRD. A biopsy of a "rash" on my scalp shows Leukemia Cutis - most likely CLL related. Has anyone else had this? How
misterbee
in
CLL Support
4 months ago
Monopost
Hi, has anyone experienced nightmares after taking Monopost eye drops? I have advanced glaucoma, and am about to be registered sight impaired. After many years of pressures being controlled by surgery, I've now had to start taking these eye drops daily, and have nightmares every night, unless I don't
Hi, has anyone experienced nightmares after taking Monopost eye drops? I have advanced glaucoma, and am about to be registered sight impaired. After many years of pressures being controlled by surgery, I've now had to start taking these eye drops daily, and have nightmares every night, unless I don't
Lottieruby
in
Glaucoma UK
7 days ago
wk7run3(revisited)
wow!! That wind!! I lay awake last night listening to it blow people’s recycling up and down the street and thought to myself “ I probably won’t run”. Then this morning the forecast said it was gonna die down so I ate breakfast and let that go down and then ran. I would have run yesterday but I do
wow!! That wind!! I lay awake last night listening to it blow people’s recycling up and down the street and thought to myself “ I probably won’t run”. Then this morning the forecast said it was gonna die down so I ate breakfast and let that go down and then ran. I would have run yesterday but I do
limberlou
Graduate
in
Couch to 5K
4 months ago
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Does Maxidex steroid add to Pred dose?
I had a new lens fitted on 2 April and have to use Dexamethasomex or Maxidex four times a day. Does this add to my total steroid intake with the Pred. Am on 10 mg after a flare and trying to get back to 7.5 as soon as possible. I also have a preventative asthma inhaler which is a steroid presumably
I had a new lens fitted on 2 April and have to use Dexamethasomex or Maxidex four times a day. Does this add to my total steroid intake with the Pred. Am on 10 mg after a flare and trying to get back to 7.5 as soon as possible. I also have a preventative asthma inhaler which is a steroid presumably
Motida
in
PMRGCAuk
4 months ago
Kerfufalmelodious
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
I was diagnosed as having PMR 12 months ago and was started on 15mg Prednisone which was changed to 20mg after a consultation with my Rheumatologist. I then gradually reduced my dose slowly down to 7.5. mg a day. My rheumatologist Is now tapering my with 7.5 and 6 mg every other day for 2 months the
Kerfufalmelodious
in
PMRGCAuk
4 months ago
Sun protection. Mineral sun lotion on a budget
Staying protected from UV rays is high on many peoples list this week, with layering and staying in the shade so important. I’ve read that mineral based sun lotion is better than chemical as it creates a barrier on your skin that reflects UV light so t hey don't absorb into the skin. Mineral sunscreens
Staying protected from UV rays is high on many peoples list this week, with layering and staying in the shade so important. I’ve read that mineral based sun lotion is better than chemical as it creates a barrier on your skin that reflects UV light so t hey don't absorb into the skin. Mineral sunscreens
IsleofWight1
in
LUPUS UK
19 days ago
Weight Training
Hi, After some advice or thoughts really. I have glaucoma in one eye, damage already done, had a couple of surgeries to help with pressure (MIGS) and am now 6 months removed from that last one. Is like to start building muscle as I am not getting younger (49 at the moment) and have read conflicting
Hi, After some advice or thoughts really. I have glaucoma in one eye, damage already done, had a couple of surgeries to help with pressure (MIGS) and am now 6 months removed from that last one. Is like to start building muscle as I am not getting younger (49 at the moment) and have read conflicting
Jeffvader
in
Glaucoma UK
4 months ago
Spirulina and Chlorella
Hi, i was diagnosed with Rheumatoid arthritis 5 years ago and I'm on methotrexate and hydroxycloroquine. I'm was hoping to start taking spirulina and chlorella as they have so many health benefits but I not sure of any drug interactions. I've tried Google but I'm getting conflicting advice, some say
Hi, i was diagnosed with Rheumatoid arthritis 5 years ago and I'm on methotrexate and hydroxycloroquine. I'm was hoping to start taking spirulina and chlorella as they have so many health benefits but I not sure of any drug interactions. I've tried Google but I'm getting conflicting advice, some say
Maple1981
in
NRAS
4 months ago
DVLA vision test
I am past 70 so needed to apply for license renewal. I know I have glaucoma in one eye so when I filled out the form online I ticked the box for eye conditions. I’m pretty certain that one of the questions was one or both eyes, I ticked one eye only. Few week later got the dreaded DVLA letter. This surprised
I am past 70 so needed to apply for license renewal. I know I have glaucoma in one eye so when I filled out the form online I ticked the box for eye conditions. I’m pretty certain that one of the questions was one or both eyes, I ticked one eye only. Few week later got the dreaded DVLA letter. This surprised
BadRob
in
Glaucoma UK
4 months ago
Drops affecting eyelashes
I'm 41, had a combined trab & lens replacement in right eye 2 years ago and just lens replacement in left eye a few months later. Now the only drops I take are Dorzolamide timolol in the left eye, twice a day.I switched to the preservative free drops a few months ago but I think it's negatively affecting
I'm 41, had a combined trab & lens replacement in right eye 2 years ago and just lens replacement in left eye a few months later. Now the only drops I take are Dorzolamide timolol in the left eye, twice a day.I switched to the preservative free drops a few months ago but I think it's negatively affecting
LyndseyMoo
in
Glaucoma UK
4 months ago
Travelling with interferon/pegasys
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Hi , I have just recently started on the pegasys weekly injections . I am travelling to Greece and wonder if anyone can recomend the best way to keep the medication at the correct temperature whilst flying and travelling. Is there a chargeable medication box which I could charge using a battery pack
Sunnyhunny
in
MPN Voice
5 months ago
Interferon and the liver
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
question to all my MPN people on here who are taking pegasys or besremi, how do you manage elevated liver enzymes? Do they cycle up and down? Is there anything we can do to bring them down? What is acceptable to y’all? My hematologist says not to worry until they hit 2-300.. My blood numbers actually
dbus1417
in
MPN Voice
5 months ago
EXCESSIVE WATERING EYES
I have had normal tension glaucoma for about 12 years, I’ve had a variety of eye drops for 10 years and a Deep Scleretomy operation on my right eye 18 months ago which now needs a Bleb adjustment. For the last few years I have had a real problem with watering eyes which has gone worse in my right eye
I have had normal tension glaucoma for about 12 years, I’ve had a variety of eye drops for 10 years and a Deep Scleretomy operation on my right eye 18 months ago which now needs a Bleb adjustment. For the last few years I have had a real problem with watering eyes which has gone worse in my right eye
Ella59
in
Glaucoma UK
5 months ago
IOP question
Last month,after a allergic conjuctivitis treatment which includes steroids drop,I measured my intraocular pressure,it's 16 in both eyes.Today,I measured it again and it's 18mmHg.My eye pressure was measured at 10am, why is there a difference?
Last month,after a allergic conjuctivitis treatment which includes steroids drop,I measured my intraocular pressure,it's 16 in both eyes.Today,I measured it again and it's 18mmHg.My eye pressure was measured at 10am, why is there a difference?
Our-poor-guys
in
Glaucoma UK
5 months ago
How accurate is a visual field test?
Hello I am new to this site but have been a member of Health Unlocked for some time. I have had glaucoma in both eyes for approximately 11 years and was well controlled until about 3.5 years ago when I developed uveitis in my left eye (my worse eye for glaucoma). It was treated as an acute emergency
Hello I am new to this site but have been a member of Health Unlocked for some time. I have had glaucoma in both eyes for approximately 11 years and was well controlled until about 3.5 years ago when I developed uveitis in my left eye (my worse eye for glaucoma). It was treated as an acute emergency
Mitziecat
in
Glaucoma UK
5 months ago
Edoxaban and dreams and nightmares
Hi all, Hope you all have a great Easter ... plenty of chocolate and bunnies ..... or even warm, sunny, dry weather ! Have any of you who take Edoxaban experienced the worst most sleep destroying nightmares of a violent topic ? Or even any nondescript dreams or nightmares. I did put a post on here
Hi all, Hope you all have a great Easter ... plenty of chocolate and bunnies ..... or even warm, sunny, dry weather ! Have any of you who take Edoxaban experienced the worst most sleep destroying nightmares of a violent topic ? Or even any nondescript dreams or nightmares. I did put a post on here
BenHall1
in
Atrial Fibrillation Support
5 months ago
cosopt preservative free
hello all, I have been on cosopt preservative free eye drops now since November…. previously I was on all sorts of drops after having a laser iridotomy, an enlargement and subsequently now have high eye pressures which the cosopt eye drops are controlling. With the eye drop my pressures at the latest
hello all, I have been on cosopt preservative free eye drops now since November…. previously I was on all sorts of drops after having a laser iridotomy, an enlargement and subsequently now have high eye pressures which the cosopt eye drops are controlling. With the eye drop my pressures at the latest
KBIOW
in
Glaucoma UK
2 months ago
Stopping Injections After 3 Loading Doses
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hi! I’m new here and learning so much from reading all of the posts here. I was diagnosed with low B12 levels earlier on this year, although my PA antibodies came back negative. I was put on injections, and was meant to have 6 over 2 weeks followed by 1 every 3 months, however my GP had to stop them
Hidden
in
Pernicious Anaemia Society
5 months ago
Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
5 months ago
Webinar: Is it possible to slow myopia progression in childhood and adolescence?
Dr Annegret Dahlmann-Noor, who is director of the children's service at Moorfields Eye Hospital, will be joining our second webinar of the month to talk about myopic macular degeneration (MMD). As well as the condition itself, Dr Dahlmann-Noor will discuss its prevalence, as well as her latest research
Dr Annegret Dahlmann-Noor, who is director of the children's service at Moorfields Eye Hospital, will be joining our second webinar of the month to talk about myopic macular degeneration (MMD). As well as the condition itself, Dr Dahlmann-Noor will discuss its prevalence, as well as her latest research
Carol_MacularSociety
Partner
in
Macular Society
5 months ago
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