Monopost: Hi, has anyone experienced nightmares... - Glaucoma UK

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Monopost

Lottieruby profile image
22 Replies

Hi, has anyone experienced nightmares after taking Monopost eye drops? I have advanced glaucoma, and am about to be registered sight impaired. After many years of pressures being controlled by surgery, I've now had to start taking these eye drops daily, and have nightmares every night, unless I don't put them in. Just wondering if this is a common side effect?

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Lottieruby
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22 Replies
Astilbe profile image
Astilbe

Hi Lottieruby I used monopost for many years before moving on to other drops then surgery. I can't remember a side effect of nightmares. Must be horrid for you.

Lottieruby profile image
Lottieruby in reply to Astilbe

Thanks Astilbe for your reply! Yes, it's distressing, probably need to speak to consultant.

Blindbatuk profile image
Blindbatuk in reply to Lottieruby

I’m on Monopost before bedtime in addition to Cosopt in the morning and evening. I’ve not had any noticeable nightmares.

Lottieruby profile image
Lottieruby in reply to Blindbatuk

Thanks for your reply, maybe it's just me? That's why I posted the question, just to ask all of you out there!

Reformer profile image
Reformer

I have Monopost one drop per eye every night - no nightmares here!

MataDAY profile image
MataDAY

Sorry to hear that….my nightmare is wondering WHAT HAPPENS when i regularly forget my one drop a night of Monoprost…can i catch up with doing it in the morning?

SoulFan profile image
SoulFan in reply to MataDAY

If you read the leaflet that's with drops it says if you miss a dose not to worry but just to use it at the usual time next day. Hope this helps 😊

Dorset22 profile image
Dorset22

I have had strange vivid dreams at night. I wondered if it was the Monopost drops or the statins I take. I don’t know how common this is. I have raised eye pressures. I will check if this is a side effect when I go for my next check up. I don’t know what the alternative would be if I stopped the drops. Not pleasant to have disturbed sleep.

Lottieruby profile image
Lottieruby in reply to Dorset22

Thanks for your reply, I also take statins. Wonder if it's a combination of the two?

Dorset22 profile image
Dorset22 in reply to Lottieruby

I take atorvastatin 10 mg. I have tried stopping the statin for a week to see if it was the statin but couldn’t see a great difference. I also find my moods are affected sometimes. Would love an expert opinion. I will also check with GP but don’t want to change medications and get worse symptoms. Good luck.

Lottieruby profile image
Lottieruby in reply to Dorset22

I also take Atorvastatin, but 40mg. That's made me think I need to check with GP as well! Hope we can get this resolved.

SoulFan profile image
SoulFan in reply to Dorset22

You will have a leaflet with your prescription which shows side effects. Nightmares aren't one of them 😊

Dorset22 profile image
Dorset22 in reply to SoulFan

Just checked atorvastatin advisory and nightmares are an unusual symptom but no mention on Monopost advisory. Lottieruby has experienced nightmares whilst recently taking Monopost and is also taking atorvastatin. Perhaps it is a combination of the two drugs that causes this.

Dorset22 profile image
Dorset22

I don’t really talk to my GP because he is so difficult to get hold of or get an appointment with. I don’t really have a lot of faith in his knowledge. I will raise it with the eye clinic and when I get my health check with surgery nurse. Please let me know if you find out if there is a connection.

Lottieruby profile image
Lottieruby in reply to Dorset22

I'm due to see glaucoma consultant in a few weeks, will let you know the outcome!

NewCardinal profile image
NewCardinal

I didn't have nightmares with monopost but I did with Azarga. But I do hae very vivid dreams with brinzolamide.

JustAmanda profile image
JustAmanda

I use them and, no, sorry,

countrygirl1 profile image
countrygirl1

Hi,

I have used Monopost for a year now with no nightmares. I hope you find a solution, good luck

SpanishFlea profile image
SpanishFlea

I started on Monopost in January and had terrible nightmares waking up screaming every night. But I blamed the Trusopt, which I had started at same time. Consultant later confirmed the Trusopt is probably to blame. After 2 weeks, nightmares largely stopped ( about 1 a month now). Not sure how long you've been on it, but if recently then it might br worth persisting.

Lottieruby profile image
Lottieruby in reply to SpanishFlea

I've been on monopost for 8 months now, after last surgery failed to reduce pressures, nightmares have increased as time has gone on. I understand when you say you wake up screaming, it's awful. It may not be the drops, but it is helping me to understand, reading the account you've shared, thankyou.

ODTAA profile image
ODTAA

If my eye drops caused nightmares, I would stop them completely for 10 - 14 days to see if that stopped the nightmares. If it did, I would then resume the drops to see if the nightmares came back. That way, you would have a very good idea if they were the cause. If so, I would then go back to the consultant ophthalmologist who prescribed the drops and ask for an alternative. When I started glaucoma treatment some years ago, I went through a whole gamut of eye drops, until eventually, the consultant said we had tried everything, and must now try surgical intervention. He inserted Xen implants into both eyes, and they did the trick. If I had known in advance, I would have asked for them at the beginning, rather than have all the bother of different drops. I don't think stopping your drops short term would cause damage to your eyes - but I am only a layman - but that is what I did more than once. I wouldn't bother with a GP. Go to the specialist.

Lottieruby profile image
Lottieruby in reply to ODTAA

Thankyou x

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