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Tuesday's Tip
[i]
According to Dr. Jones' book sometimes people will stop taking their Urso because their liver function tests have returned to normal. If your liver enzymes have returned to the normal range it just means that the Urso is working. The PBC isn't cured - it is just controlled.
[/i] [i]
We don't
[i]
According to Dr. Jones' book sometimes people will stop taking their Urso because their liver function tests have returned to normal. If your liver enzymes have returned to the normal range it just means that the Urso is working. The PBC isn't cured - it is just controlled.
[/i] [i]
We don't
DonnaBoll
Administrator
in
PBC Foundation
12 days ago
How much Iron Ferrous Sulfate?
My transferrin saturations is just at 20%. It was recommended I take Iron Ferrous Sulfate but confused at how much and how often. Would appreciate advice on this. Thank you!
My transferrin saturations is just at 20%. It was recommended I take Iron Ferrous Sulfate but confused at how much and how often. Would appreciate advice on this. Thank you!
CathyJoH
in
Restless Legs Syndrome
12 days ago
I am scared of colon cancer
hello everyone, I am scared that I might have colon cancer. I have changes in bowel movement . gas and burping that happens after a meal. The other night , I had diarrhea and went to the restroom 3 times within 2 hours. After this, I noticed bloody mucus in the toilet. I also have a gurgling stomach
hello everyone, I am scared that I might have colon cancer. I have changes in bowel movement . gas and burping that happens after a meal. The other night , I had diarrhea and went to the restroom 3 times within 2 hours. After this, I noticed bloody mucus in the toilet. I also have a gurgling stomach
Kvance424
in
Colon Cancer Connected
5 months ago
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I Panic when I drive
Been living with generalized panic disorder for almost 20 years. Started with a severe panic attack while I was driving. Took months to get back to driving on my own again, after psychiatrists, therapists, medications. Still I have had trouble driving. I recently decided to change medications to
Been living with generalized panic disorder for almost 20 years. Started with a severe panic attack while I was driving. Took months to get back to driving on my own again, after psychiatrists, therapists, medications. Still I have had trouble driving. I recently decided to change medications to
sunbaby71
in
Anxiety and Depression Support
15 days ago
Sore mouth and tongue with GCA
Quick question....anybody else experience a sore tongue and roof of mouth and gums with GCA? Along with mild numbness on lip and cheek area and the usual temporal headaches and scalp sensitivity?
Quick question....anybody else experience a sore tongue and roof of mouth and gums with GCA? Along with mild numbness on lip and cheek area and the usual temporal headaches and scalp sensitivity?
Bummed24
in
PMRGCAuk
16 days ago
sleep aid
just sharing a link that is a new product helpful for sleep. It was recommended by a very well know integrative doctor in California. I am not recommending it for restless legs, but my sister and her husband say it helps with sleep. https://lifewave.com
just sharing a link that is a new product helpful for sleep. It was recommended by a very well know integrative doctor in California. I am not recommending it for restless legs, but my sister and her husband say it helps with sleep. https://lifewave.com
RCHD
in
Restless Legs Syndrome
4 months ago
Dare and meds
has anyone read and tried the dare method and taking meds for anxiety and panic attacks? Did it help? Did anyone use it for agoraphobia?
has anyone read and tried the dare method and taking meds for anxiety and panic attacks? Did it help? Did anyone use it for agoraphobia?
Panicfree
in
Anxiety and Depression Support
16 days ago
Genetic testing and Second Opinion – A result!
Following on from my post last week about docetaxel not working, I had a frank conversation with my MO during which I said I strongly believe that genetic testing of my liver biopsy sample should be the next step and after some debate, to my surprise, he agreed and has put through the request. It’s still
Following on from my post last week about docetaxel not working, I had a frank conversation with my MO during which I said I strongly believe that genetic testing of my liver biopsy sample should be the next step and after some debate, to my surprise, he agreed and has put through the request. It’s still
Benkaymel
in
Advanced Prostate Cancer
8 months ago
B12 and Human Evolution
I found another interesting article about B12. https://www.discovermagazine.com/health/the-evolutionary-quirk-that-made-vitamin-b12-part-of-our-diet
I found another interesting article about B12. https://www.discovermagazine.com/health/the-evolutionary-quirk-that-made-vitamin-b12-part-of-our-diet
MoKayD
in
Pernicious Anaemia Society
5 months ago
change of mind from GP on blood in urine and possible UTI.
Messaged via e consult to GP and she has had change of mind prescribing Fosfomycin one sachet for UTI. However then had another message to say that she had decided to also prescribe Nitrofurantoin capsules, (antibiotics ) for one month. Interesting change of mind relating to the blood in urine.
Messaged via e consult to GP and she has had change of mind prescribing Fosfomycin one sachet for UTI. However then had another message to say that she had decided to also prescribe Nitrofurantoin capsules, (antibiotics ) for one month. Interesting change of mind relating to the blood in urine.
gillsky8
in
PMRGCAuk
17 days ago
Colon cancer?
I have stomach issues my entire life. Dairy just destroys me. Lately, ive beeb diagnosed with H. Pylori and i have lost about 10 pounds while taking the antibotics. Sometimes, I have a lot of mucus in my bowel movements and they can be thin and break off. I cant tell if there is blood because my stool
I have stomach issues my entire life. Dairy just destroys me. Lately, ive beeb diagnosed with H. Pylori and i have lost about 10 pounds while taking the antibotics. Sometimes, I have a lot of mucus in my bowel movements and they can be thin and break off. I cant tell if there is blood because my stool
Jb901
in
Colon Cancer Connected
5 months ago
b12 on the news
just a link to a B12 deficiency feature on the news …. here’s hoping it may increase awareness https://www.itv.com/news/2024-03-06/what-is-vitamin-b12-and-are-you-deficient?fbclid=IwAR3URhc-Qn8V6dV74L1aUNLD03ccDN4CppPn-iFBHQlxyg10TyqScT5Noac_aem_AT29FAvBgTQgFVLPyErTFR9m85dmbw_ukwOhdX1rL1GX_Bw5vD8VexWH7x6siuyKwCo
just a link to a B12 deficiency feature on the news …. here’s hoping it may increase awareness https://www.itv.com/news/2024-03-06/what-is-vitamin-b12-and-are-you-deficient?fbclid=IwAR3URhc-Qn8V6dV74L1aUNLD03ccDN4CppPn-iFBHQlxyg10TyqScT5Noac_aem_AT29FAvBgTQgFVLPyErTFR9m85dmbw_ukwOhdX1rL1GX_Bw5vD8VexWH7x6siuyKwCo
Delilahmy
in
Pernicious Anaemia Society
5 months ago
First treatment of Taxotere
I haven't posted in a long time. My husband is going to have his first chemo treatment of Taxotere in about a week. He has ben fighting metastatic stage 4 prostate cancer for five years. Thankfully it has stayed in the bones and not spread to any organs. For those who have had this treatment, can
I haven't posted in a long time. My husband is going to have his first chemo treatment of Taxotere in about a week. He has ben fighting metastatic stage 4 prostate cancer for five years. Thankfully it has stayed in the bones and not spread to any organs. For those who have had this treatment, can
MsHope
in
Advanced Prostate Cancer
8 months ago
Oculogyric crisis - eye/neuro symptom linked to B12 deficiency
Hi, Found this article about oculogyric crisis where eyes get stuck in a particular position. The patient had a low B12 result. https://www.eyenews.uk.com/features/ophthalmology/post/oculogyric-crisis-with-b12-deficiency
Hi, Found this article about oculogyric crisis where eyes get stuck in a particular position. The patient had a low B12 result. https://www.eyenews.uk.com/features/ophthalmology/post/oculogyric-crisis-with-b12-deficiency
Sleepybunny
in
Pernicious Anaemia Society
5 months ago
Has anyone had Fluanxol while being pregnant?
I suffer from anxiety and sometimes panic attacks. I started on Sertraline and now I’m taking 100mg. The doctor also gave me Fluanxol to give it a boost. I stopped Fluanxol and I’m feeling very anxious again and sometimes panic attacks. I think I might be pregnant as we tried for a baby last week. I
I suffer from anxiety and sometimes panic attacks. I started on Sertraline and now I’m taking 100mg. The doctor also gave me Fluanxol to give it a boost. I stopped Fluanxol and I’m feeling very anxious again and sometimes panic attacks. I think I might be pregnant as we tried for a baby last week. I
ivytina
in
Anxiety Support
19 days ago
Epithelial Haemangiendothelioma - has anyone else been diagnosed with this rare cancer please?
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
Hello, Having been diagnosed with CLL back in February 2002 (age 50) I was successfully treated with FCR from August 2009 to February 2010 and remain MRD negative as at present. Breast cancer followed in April 2016, then bowel cancer in September 2018. A five year surveillance period followed the
alipali
in
CLL Support
6 months ago
End of the road for PBS-available treaments for me.
Hi. I live in Adelaide, Australia and I'm anxious about possible treatments now. I was diagnosed at the end of 2016. Starting in 2019 I've had FCR, Nov 2022 splenomegaly and other leukemia symptoms so January 2023 I started on Ibrutinib, giving partial remission but with colitis side effects. Sept
Hi. I live in Adelaide, Australia and I'm anxious about possible treatments now. I was diagnosed at the end of 2016. Starting in 2019 I've had FCR, Nov 2022 splenomegaly and other leukemia symptoms so January 2023 I started on Ibrutinib, giving partial remission but with colitis side effects. Sept
Jotame
in
CLL Support
21 days ago
Is Cold Water Therapy (cold plunge) for metastasis to bones or lymph nodes beneficial or harmful?? Slow progression?
Any insight would be greatly appreciated. TA??
Any insight would be greatly appreciated. TA??
Longterm101
in
Advanced Prostate Cancer
7 months ago
this might help
i’ve had scabies for the last month and a half, and I have done as much research as possible. Couldn’t find anything that was working for me today I took petroleum jelly, mixed it with tea tree oil, smothered my body in. It sat around in it for five hours, watching the scabies pour out of my body, wiping
i’ve had scabies for the last month and a half, and I have done as much research as possible. Couldn’t find anything that was working for me today I took petroleum jelly, mixed it with tea tree oil, smothered my body in. It sat around in it for five hours, watching the scabies pour out of my body, wiping
Tina2479
in
BASHH
5 months ago
Swollen lymph node in my neck & armpit
I now have a swollen lymph node near my collarbone on my neck which is the size of a hard boiled egg and one under my armpit on the same side which is duck egg size. I’ve had three courses of chemo over the years: FCR, twice and not sure what the third dose was (CVR?) though it didn’t work anyway. 4
I now have a swollen lymph node near my collarbone on my neck which is the size of a hard boiled egg and one under my armpit on the same side which is duck egg size. I’ve had three courses of chemo over the years: FCR, twice and not sure what the third dose was (CVR?) though it didn’t work anyway. 4
Veebeegeebee
in
CLL Support
23 days ago
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