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PMR/GCA
Such a relief: doctor called and my ESR well below average as were other inflammation markers. Panic over, back to 5mgs a day and hopefully a lull in headaches and eye pain. Very relieved. Thank you everyone for the super support snd guidance. Have a good day!
Such a relief: doctor called and my ESR well below average as were other inflammation markers. Panic over, back to 5mgs a day and hopefully a lull in headaches and eye pain. Very relieved. Thank you everyone for the super support snd guidance. Have a good day!
Lollybygolly
in
PMRGCAuk
3 years ago
RA/GCA Emergency
A year ago I was diagnosed with RA, having ground to a halt physically was joyous that 30mgs Pred gave me my life back. Painted around 70-80 pictures this year. Five weeks ago headaches and eye pain started just after Vax so I ignored them. Had to call 111 in agony last night and today everything moved
A year ago I was diagnosed with RA, having ground to a halt physically was joyous that 30mgs Pred gave me my life back. Painted around 70-80 pictures this year. Five weeks ago headaches and eye pain started just after Vax so I ignored them. Had to call 111 in agony last night and today everything moved
Lollybygolly
in
PMRGCAuk
3 years ago
How do I accept the news of some vision loss?
7weeks ago I received a diagnosis of glaucoma in both eyes. Am in a state of utter shock & worry. A healthy 59yr old woman traumatised & very low (am usually chirpy). High pressures of 30 since 2018 & failed many field tests in right eye. My comments since 2019 to my optician of greyness in my right
7weeks ago I received a diagnosis of glaucoma in both eyes. Am in a state of utter shock & worry. A healthy 59yr old woman traumatised & very low (am usually chirpy). High pressures of 30 since 2018 & failed many field tests in right eye. My comments since 2019 to my optician of greyness in my right
Hidden
in
Glaucoma UK
3 years ago
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Double vision and 3D vision with wet AMD
Hello generous community, Have any of you with wet AMD (I have left wet and right dry...so far) experienced what feels like double vision and/or sort of 3D visual effects? Perhaps more pronounced following injections for wet? Can nicking of blood vessel in eye during injection process result in worsening
Hello generous community, Have any of you with wet AMD (I have left wet and right dry...so far) experienced what feels like double vision and/or sort of 3D visual effects? Perhaps more pronounced following injections for wet? Can nicking of blood vessel in eye during injection process result in worsening
riverpipes
in
Macular Society
3 years ago
Summary of my Blood Sugar readings during last 30 days.
My contour Plus Apps tracking my blood sugar Readings. The data gets transferred to the Apps through the blue tooth enabled Contour plus Glucometer. This is the summation of 21 readings including both Fasting & PP taken during last 30 days. The average reading during 30 days comes to 109 mg/dl ( Average
My contour Plus Apps tracking my blood sugar Readings. The data gets transferred to the Apps through the blue tooth enabled Contour plus Glucometer. This is the summation of 21 readings including both Fasting & PP taken during last 30 days. The average reading during 30 days comes to 109 mg/dl ( Average
namaha
Administrator
in
Diabetes India
3 years ago
Trab Surgery
Hello all, I am new here, and have had Glaucoma for a number of years, and take three different types of drops, which as far as I'm concerned are working fine, but apparently they are not, in my right eye. I woke up one morning a couple of years ago with the bottom third of my vision in the right eye
Hello all, I am new here, and have had Glaucoma for a number of years, and take three different types of drops, which as far as I'm concerned are working fine, but apparently they are not, in my right eye. I woke up one morning a couple of years ago with the bottom third of my vision in the right eye
floki7
in
Glaucoma UK
3 years ago
Health anxiety worried about numbing drops glaucoma
Hi I will be as brief as possible, I’m 51 I have bad health anxiety, but this time I wasn’t prepared to be told I had a health issue rather than thinking I had one. Went to spec savers my eyes were running as I had make-up on ... Pressure test fine, field of vision fine, then she totally freaked me
Hi I will be as brief as possible, I’m 51 I have bad health anxiety, but this time I wasn’t prepared to be told I had a health issue rather than thinking I had one. Went to spec savers my eyes were running as I had make-up on ... Pressure test fine, field of vision fine, then she totally freaked me
Athena123
in
Glaucoma UK
3 years ago
Starting Besremi
Hi, As Pegasys, Ruxolitnib and Hydroxy are no longer appropriate for my PV I have just started to transition to Besremi. The treatment consists of an injection every 2 weeks with a special syringe which I am finding easier to use than the Pegasys syringe as the needle is finer making for a painless
Hi, As Pegasys, Ruxolitnib and Hydroxy are no longer appropriate for my PV I have just started to transition to Besremi. The treatment consists of an injection every 2 weeks with a special syringe which I am finding easier to use than the Pegasys syringe as the needle is finer making for a painless
JohnSC
in
MPN Voice
3 years ago
HELP PLEASE! MEDICHECKS THYROID RESULTS BACK - TSH IS 9 (and I'm very hypo)
THYROID ULTRAVIT 22 FEB 21 : 8.20AM CRP HS 1.07 mg/L (Range: < 5) Ferritin 16.4 ug/L (Range: 13 - 150) Vitamin B12 - Active >150 pmol/L (Range: 37.5 – 187.5) Vitamin D 86.2 (Range 50-175 nmol/L ) Thyroid Hormones TSH 9.05 mIU/L (Range: 0.27 - 4.2) Free T3 3.75 pmol/L (Range: 3.1 - 6.8) Free
THYROID ULTRAVIT 22 FEB 21 : 8.20AM CRP HS 1.07 mg/L (Range: < 5) Ferritin 16.4 ug/L (Range: 13 - 150) Vitamin B12 - Active >150 pmol/L (Range: 37.5 – 187.5) Vitamin D 86.2 (Range 50-175 nmol/L ) Thyroid Hormones TSH 9.05 mIU/L (Range: 0.27 - 4.2) Free T3 3.75 pmol/L (Range: 3.1 - 6.8) Free
Redlester
in
Thyroid UK
3 years ago
Need Sjogren's advice
Hello everyone, UPDATE! I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville!!! Thank you everyone for sharing your information and experiences with me. Just knowing we are not alone helps so much ♡♡♡♡ I live in the US and I am currently away from my home and taking
Hello everyone, UPDATE! I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville!!! Thank you everyone for sharing your information and experiences with me. Just knowing we are not alone helps so much ♡♡♡♡ I live in the US and I am currently away from my home and taking
Piscesdreamer
in
Hughes Syndrome APS Forum
3 years ago
Need Sjogren's advice
Hello everyone, UPDATE! I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville!!! Thank you everyone for sharing your information and experiences with me. Just knowing we are not alone helps so much ♡♡♡♡ I live in the US and I am currently away from my home and taking
Hello everyone, UPDATE! I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville!!! Thank you everyone for sharing your information and experiences with me. Just knowing we are not alone helps so much ♡♡♡♡ I live in the US and I am currently away from my home and taking
Piscesdreamer
in
LUPUS UK
3 years ago
Need APS Specialist in Daytona Beach FL USA area
Hello everyone, I am up in the Daytona Beach/ New Smyrna Beach, Florida area caring for my 80 year old mother who injured her back. Can anyone recommend an APS Specialist in this area? I have new symptoms where my body is not producing enough saliva. I can only eat liquid foods, and losing weight,
Hello everyone, I am up in the Daytona Beach/ New Smyrna Beach, Florida area caring for my 80 year old mother who injured her back. Can anyone recommend an APS Specialist in this area? I have new symptoms where my body is not producing enough saliva. I can only eat liquid foods, and losing weight,
Piscesdreamer
in
LUPUS UK
3 years ago
Aps Specialist near Daytona Beach FL?
UPDATE: I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville! Hello everyone, I am up in the Daytona Beach/ New Smyrna Beach, Florida area caring for my 80 year old mother who injured her back. Can anyone recommend an APS Specialist in this area? I have new symptoms
UPDATE: I was able to get an appointment with a rhuemetologist at the Mayo Clinic in Jacksonville! Hello everyone, I am up in the Daytona Beach/ New Smyrna Beach, Florida area caring for my 80 year old mother who injured her back. Can anyone recommend an APS Specialist in this area? I have new symptoms
Piscesdreamer
in
Hughes Syndrome APS Forum
3 years ago
ICU Recovery
Hello, I am 27 years old. I’ve had brain tumor surgery, because of a surgical complication i stayed in the icu for almost 4 weeks mechanically ventilated, and then 2 more weeks in the ward, its been almost two months since i left the hospital at first i could barely sit on the bed now i can walk independently
Hello, I am 27 years old. I’ve had brain tumor surgery, because of a surgical complication i stayed in the icu for almost 4 weeks mechanically ventilated, and then 2 more weeks in the ward, its been almost two months since i left the hospital at first i could barely sit on the bed now i can walk independently
Abbas1
in
ICUsteps
3 years ago
Update to my recent post re bleed behind eye
I had retinal surgery today for a vitreous haemorrhage which caused a detached retina. I dont think it is related to taking anticoagulants but next week I will contact my GP to discuss, hospital thinks it was wear and tear and age related. So relieved I decided to seek help from Moorfields, they were
I had retinal surgery today for a vitreous haemorrhage which caused a detached retina. I dont think it is related to taking anticoagulants but next week I will contact my GP to discuss, hospital thinks it was wear and tear and age related. So relieved I decided to seek help from Moorfields, they were
Jeans1234
in
AF Association
3 years ago
Tsh level 8.4
Hi I’m a newbie here, my 19 year old son had not been well for over 8 months now , he’s very tired , bad eye floaters, feeling out of it all the time .we got eyes checked and all good , had bloods done and everything perfect apart from his tsh level was 8.3 . Doc wants to wait 3 months to check but his
Hi I’m a newbie here, my 19 year old son had not been well for over 8 months now , he’s very tired , bad eye floaters, feeling out of it all the time .we got eyes checked and all good , had bloods done and everything perfect apart from his tsh level was 8.3 . Doc wants to wait 3 months to check but his
Vincent512
in
Thyroid UK
3 years ago
Eye pain
To all GCA people! In my determination to get fitter, I’m having problems with pain behind my eyes when I try to push myself a bit further. Do others have the same body-response when trying to increase their fitness? I can walk, briskly, up hills for about 20 minutes and then a further 20 mins on
To all GCA people! In my determination to get fitter, I’m having problems with pain behind my eyes when I try to push myself a bit further. Do others have the same body-response when trying to increase their fitness? I can walk, briskly, up hills for about 20 minutes and then a further 20 mins on
PuttyPenguin
in
PMRGCAuk
3 years ago
Amsler Grid, lack of self-confidence, and reading tips
When I use the grid, I cannot see changes from day to day. I worry that I am missing something. The fear is made worse because I feel my reading ability is deteriorating. I live in the States and do not have to wait two weeks for an appointment. When I call and say I think I see a change, I am seen
When I use the grid, I cannot see changes from day to day. I worry that I am missing something. The fear is made worse because I feel my reading ability is deteriorating. I live in the States and do not have to wait two weeks for an appointment. When I call and say I think I see a change, I am seen
oldoakowl
in
Macular Society
3 years ago
Dry eyes
For the past 12 months my eyes have become quite dry so as many people I use eye drops daily to keep them hydrated. I did some research and found a supplement bought through Amazon called ‘Sea Buckthorn oil capsules’ with omega7 the make is Nature’s. Aid. I have taken these for about a month and my dry
For the past 12 months my eyes have become quite dry so as many people I use eye drops daily to keep them hydrated. I did some research and found a supplement bought through Amazon called ‘Sea Buckthorn oil capsules’ with omega7 the make is Nature’s. Aid. I have taken these for about a month and my dry
Annsandra13
in
Macular Society
3 years ago
Possibility of discontinuing Lucentis injections
I was diagnosed with wet AMD in my left eye 2 years ago, since then I’ve been receiving regular (4/5/6) weekly injections and scans. This morning I had a sight test and scan at the eye clinic and was told that my eye sight had got worse. The doctor explained that it was marginal that I would be able
I was diagnosed with wet AMD in my left eye 2 years ago, since then I’ve been receiving regular (4/5/6) weekly injections and scans. This morning I had a sight test and scan at the eye clinic and was told that my eye sight had got worse. The doctor explained that it was marginal that I would be able
buttercup1
in
Macular Society
3 years ago
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