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Are we going to hear back from the Georgetown University researchers?. Will there be a PHASE 3 TRIAL?
From what I'm hearing GU will not be going forward. They did find evidence of a vascular disorder that may be the root cause. Would hyperbaric oxygen therapy (HBOT) with Tasigna be worth a look?
From what I'm hearing GU will not be going forward. They did find evidence of a vascular disorder that may be the root cause. Would hyperbaric oxygen therapy (HBOT) with Tasigna be worth a look?
Isthistheone
in
Cure Parkinson's
3 years ago
Painful eyes
Hi all, happy š year. Hope 2022 is a better one, it had better be š¤āŗļø. I have blepharitis but of recently have had extremely dry, itchy and painful eyes. Does anyone think it's fibromyalgia causing this? Thanks š
Hi all, happy š year. Hope 2022 is a better one, it had better be š¤āŗļø. I have blepharitis but of recently have had extremely dry, itchy and painful eyes. Does anyone think it's fibromyalgia causing this? Thanks š
trytobehappytalking
in
Fibromyalgia Action UK
3 years ago
Why in Dutch guideline for PA and B12 deficiency emphasis is just on IM injection and SC injection not mentioned?
I'm wondering why in dutch guideline for PA and B12 deficiency there is no SC injection. Is there any difference between IM injection and SC injection results? Why frequency of injection is different than NGS NICE guideline? In my experience more retention of B12 is the only key factor in symptoms improvement
I'm wondering why in dutch guideline for PA and B12 deficiency there is no SC injection. Is there any difference between IM injection and SC injection results? Why frequency of injection is different than NGS NICE guideline? In my experience more retention of B12 is the only key factor in symptoms improvement
Hamayeshguy
in
Pernicious Anaemia Society
3 years ago
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Migraine and glaucoma. Scary !!!
Anyone got glaucoma and suffer with migraine auras. I find it very scary. Wondering how you cope if you suffer.
Anyone got glaucoma and suffer with migraine auras. I find it very scary. Wondering how you cope if you suffer.
Lancashirelass07
in
Glaucoma UK
3 years ago
Can secondary glaucoma worsen even though the eye pressure remains at a normal level?
Hi everyone This is my first post & would greatly appreciate your help & advice, please be gentle with me, my apologies if this question has been asked before. My background: Right eye lazy since childhood Left eye: Chronic Uveitis, Cystoid Macular Edema, Pars Plana/Vitrectomy, Cataract surgery, Secondary
Hi everyone This is my first post & would greatly appreciate your help & advice, please be gentle with me, my apologies if this question has been asked before. My background: Right eye lazy since childhood Left eye: Chronic Uveitis, Cystoid Macular Edema, Pars Plana/Vitrectomy, Cataract surgery, Secondary
Cockerspadge
in
Glaucoma UK
3 years ago
Support for blind elderly
I have several risk factors for glaucoma and my question is: if I go completely blind in later life, would I get any help and support? I have no family, and am terrified at the prospect of being dumped at home with noone at all coming in, basically left to starve to death. I don't want to sound melodramatic
I have several risk factors for glaucoma and my question is: if I go completely blind in later life, would I get any help and support? I have no family, and am terrified at the prospect of being dumped at home with noone at all coming in, basically left to starve to death. I don't want to sound melodramatic
Fran555
in
Glaucoma UK
3 years ago
FUNDUS FLUFLUORESCEIN ANGIOGRAPHY USING DYE
I am CKD stage 3 with creatinine 1.6. I have been diagnosed with Macular degeneration and the Retina doctor wants me to undergo a OCT+ICG+SPECTRALIS+FFA + OPDOS FUNDUS to decide the course of treatment. My concern is that since they are using dye injection for the Fundus Fluorescein Angiography
I am CKD stage 3 with creatinine 1.6. I have been diagnosed with Macular degeneration and the Retina doctor wants me to undergo a OCT+ICG+SPECTRALIS+FFA + OPDOS FUNDUS to decide the course of treatment. My concern is that since they are using dye injection for the Fundus Fluorescein Angiography
abaker
in
Early CKD Support
3 years ago
Treatment options
Hello all, I have some questions regarding treatment, just wondered if anyone can help. 1. Has anyone (in the UK) managed to get medication other than SSRI plus antipsychotic? Either NHS or private? If so, how? 2. Has anyone tried multiple SSRIs with little to no success, then tried another that does
Hello all, I have some questions regarding treatment, just wondered if anyone can help. 1. Has anyone (in the UK) managed to get medication other than SSRI plus antipsychotic? Either NHS or private? If so, how? 2. Has anyone tried multiple SSRIs with little to no success, then tried another that does
noname_squirrel
in
My OCD Community
2 years ago
Red eye and GCA
I have had a red eye for 3 days. No pain just uncomfortable and not affectiing sight. I have had GCA diagnosed since March (second time around) and now on 6 mg for the last month and staying on that for next month. Went to pharmacy who told me to ring 111 and see dr. After 1 hour on phone waiting for
I have had a red eye for 3 days. No pain just uncomfortable and not affectiing sight. I have had GCA diagnosed since March (second time around) and now on 6 mg for the last month and staying on that for next month. Went to pharmacy who told me to ring 111 and see dr. After 1 hour on phone waiting for
MaryHelen2
in
PMRGCAuk
3 years ago
Covid anyone?
For Christmas I received a positive Covid result. I am fully vaccinated and boosted. I had an inflamed spine from a long car ride. So i was on solumedrol 1000 mg once a month and PT(My DMT Copaxone). This was working for me. On December 20th another intravenous solumedrol. I became fatigued and had
For Christmas I received a positive Covid result. I am fully vaccinated and boosted. I had an inflamed spine from a long car ride. So i was on solumedrol 1000 mg once a month and PT(My DMT Copaxone). This was working for me. On December 20th another intravenous solumedrol. I became fatigued and had
TonyiaR7
in
My MSAA Community
3 years ago
Improvement seen after giving Vitamin B2 (Riboflavin)
Wanted to share this information with the board. I have been giving my mother Vitamin B2 (Riboflavin) for almost 2 months now and there is definitely improvement in her energy levels, balance and walking. She is getting 50mg dose once in hours, 3 times a day (for a total of 150mg/day). Giving it
Wanted to share this information with the board. I have been giving my mother Vitamin B2 (Riboflavin) for almost 2 months now and there is definitely improvement in her energy levels, balance and walking. She is getting 50mg dose once in hours, 3 times a day (for a total of 150mg/day). Giving it
John_morris71
in
Cure Parkinson's
3 years ago
IBS-C & Sibo
Iāve got IBS-C and have recently been diagnosed with Sibo , Iāve had a 2 week course of antibiotics, Rifaximin, but theyāve done nothing , in fact I feel worse now , my stomach is in turmoil, so Iām assuming I still have it , but I havenāt been re tested yet , so I canāt be sure . I gather from my consultant
Iāve got IBS-C and have recently been diagnosed with Sibo , Iāve had a 2 week course of antibiotics, Rifaximin, but theyāve done nothing , in fact I feel worse now , my stomach is in turmoil, so Iām assuming I still have it , but I havenāt been re tested yet , so I canāt be sure . I gather from my consultant
Gardenlover2020
in
IBS Network
3 years ago
Down to 6mg but feeling it! Shall I persevere?
I went to Cape Verde on holiday at the start of December and was worried I may have a flare. I was on 7.5mg pred and I was great. Since then Iāve gone down to 6mg which Iāve now been on for about 8 days and am feeling weak. I have some pain in my upper arms but not unbearable like when diagnosed and
I went to Cape Verde on holiday at the start of December and was worried I may have a flare. I was on 7.5mg pred and I was great. Since then Iāve gone down to 6mg which Iāve now been on for about 8 days and am feeling weak. I have some pain in my upper arms but not unbearable like when diagnosed and
MiloCollie
in
PMRGCAuk
3 years ago
Second ablation
I am also struggling with having a second ablation. While propafenone is stopping the AFIB, it is causing causing fatigue and weakness which is affecting my qol. I can not take anticoagulants so I have had Watchman device, pacemaker, and a first ablation. It was very successful for several years.
I am also struggling with having a second ablation. While propafenone is stopping the AFIB, it is causing causing fatigue and weakness which is affecting my qol. I can not take anticoagulants so I have had Watchman device, pacemaker, and a first ablation. It was very successful for several years.
N400033
in
AF Association
3 years ago
Sulforaphane, NAC, H2O2, and the Circadian Rhythm
I have no answers. Just questions. Questions about Sulforaphane, NAC, and their effects on the Circadian Rhythm.I recently stopped taking my Broccoli Sprout Tea as it boosts NRF2, and boosting NRF2 may amplify the Circadian Rhythm, but if you want to amplify the Circadian Rhythm you probably want to
I have no answers. Just questions. Questions about Sulforaphane, NAC, and their effects on the Circadian Rhythm.I recently stopped taking my Broccoli Sprout Tea as it boosts NRF2, and boosting NRF2 may amplify the Circadian Rhythm, but if you want to amplify the Circadian Rhythm you probably want to
Bolt_Upright
in
Cure Parkinson's
3 years ago
Thyroid and Breast implant illness
Hi all-Just went through this "explant" surgery two weeks ago. The surgeons assistant told me many many patients had huge improvements with hypothyroidism. Some said Hashimotos went away, and was proven on their labs. My endo has patients where she's seen this also. Anyone experience this ? Weird but
Hi all-Just went through this "explant" surgery two weeks ago. The surgeons assistant told me many many patients had huge improvements with hypothyroidism. Some said Hashimotos went away, and was proven on their labs. My endo has patients where she's seen this also. Anyone experience this ? Weird but
abartme
in
Thyroid UK
3 years ago
Does Glaucoma always spread to other eye?
I had suspected Glaucoma in c.2014 but after 2 years of regular hospital visits I was 'discharged' as they could not diagnose and the condition seemed stable. I have myopia (borderline for driving), congenital stationary night blindness (tested & diagnosed at Moorfields), plus something called congenital
I had suspected Glaucoma in c.2014 but after 2 years of regular hospital visits I was 'discharged' as they could not diagnose and the condition seemed stable. I have myopia (borderline for driving), congenital stationary night blindness (tested & diagnosed at Moorfields), plus something called congenital
t55ddy
in
Glaucoma UK
3 years ago
Will this interfere with my underactive thyroid?
Hi I wish to start taking a collagen supplement but it contains celadrin and bromelain. Does anybody know if these Ingredients could have any negative impact on my underactive thyroid? Any help much appreciated as quite often some supplements have things in them which can do more harm or undo the good
Hi I wish to start taking a collagen supplement but it contains celadrin and bromelain. Does anybody know if these Ingredients could have any negative impact on my underactive thyroid? Any help much appreciated as quite often some supplements have things in them which can do more harm or undo the good
TrishG67
in
Thyroid UK
3 years ago
Anyone had RAI or thyroidectomy for recurrent chronic thyroiditis?
Hello all and happy holidays. I donāt expect a reply as everyone will be busy but having had a 2 recent thyroid ultrasounds, the consultant radiologist said I had chronic thyroiditis which probably has been going on for quite a long time (donāt I know it- 2 months off work and still waiting for my body
Hello all and happy holidays. I donāt expect a reply as everyone will be busy but having had a 2 recent thyroid ultrasounds, the consultant radiologist said I had chronic thyroiditis which probably has been going on for quite a long time (donāt I know it- 2 months off work and still waiting for my body
Hidden
in
Thyroid UK
3 years ago
New lens in my glasses when they come. xx
Afternoon everyone and how are we all. I am here in my pjs now and resting, I have been and got my eyes tested now it has been four weeks since my cataract surgery. I am having a new lens in my right eye and they have ordered me a new lens for my regular glasses. Then it was a coffee and home as i
Afternoon everyone and how are we all. I am here in my pjs now and resting, I have been and got my eyes tested now it has been four weeks since my cataract surgery. I am having a new lens in my right eye and they have ordered me a new lens for my regular glasses. Then it was a coffee and home as i
sylvi
in
NRAS
3 years ago
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