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GCA Symptoms
Hello, I’m curious of those that have gone blind in one eye, or completely, from GCA…did you have any symptoms? We’re you misdiagnosed? If you had symptom, were they consistent, and present all the time? How long did you have symptoms before going blind? Was your blindness abrupt, or a slow loss of sight
Hello, I’m curious of those that have gone blind in one eye, or completely, from GCA…did you have any symptoms? We’re you misdiagnosed? If you had symptom, were they consistent, and present all the time? How long did you have symptoms before going blind? Was your blindness abrupt, or a slow loss of sight
Newcomer22
in
PMRGCAuk
2 years ago
Azathioprine hydroxychloroquine steroids and dental extraction
Hello lovely people. I am due to have a dental root extraction and are on the above drugs. I am finding it hard to get to see my rheumatologist so in the absence of a GP who understands lupus does anyone know if there is anything that I need to particularly be aware of or do before or after? I am
Hello lovely people. I am due to have a dental root extraction and are on the above drugs. I am finding it hard to get to see my rheumatologist so in the absence of a GP who understands lupus does anyone know if there is anything that I need to particularly be aware of or do before or after? I am
cakerbaker
in
LUPUS UK
2 years ago
Is it GCA or side effect of Prednisone
Has anyone had blurry vision in one eye, no jaw pain, no headaches and eye exam revealed nothing to worry about in regards to GCA. The blurry vision comes and goes. I am tapering down. Started at 60 mg for 1 day in ER due to PMR then 40mg for 2 days and then 20mg for 2 months. Now down to 13mg reducing
Has anyone had blurry vision in one eye, no jaw pain, no headaches and eye exam revealed nothing to worry about in regards to GCA. The blurry vision comes and goes. I am tapering down. Started at 60 mg for 1 day in ER due to PMR then 40mg for 2 days and then 20mg for 2 months. Now down to 13mg reducing
flygirl65
in
PMRGCAuk
2 years ago
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Very dry mouth
Since Covid in October 2022 I have had a dry mouth with a sore tongue and sore roof of mouth. I am now thinking it is nothing to do with Covid but maybe related to Mercury thyroxine? I have struggled for years trying to find a brand that agrees with me, ever since the original Eltroxin I by Glaxo disappeared
Since Covid in October 2022 I have had a dry mouth with a sore tongue and sore roof of mouth. I am now thinking it is nothing to do with Covid but maybe related to Mercury thyroxine? I have struggled for years trying to find a brand that agrees with me, ever since the original Eltroxin I by Glaxo disappeared
Goldpurple
in
Thyroid UK
2 years ago
Treadmill pace.
Hi guys. I started couch to 5K a few weeks back and have done weeks 3 and 4 (now 2 runs into week 4) on the treadmill. I set my walking pace between 3.5 - 4 mph and running at 6.5-7.5 mph. I'm managing the runs OK but am bathed in sweat when I get off - am I pushing too hard and likely to struggle with
Hi guys. I started couch to 5K a few weeks back and have done weeks 3 and 4 (now 2 runs into week 4) on the treadmill. I set my walking pace between 3.5 - 4 mph and running at 6.5-7.5 mph. I'm managing the runs OK but am bathed in sweat when I get off - am I pushing too hard and likely to struggle with
Leeg1974
in
Couch to 5K
2 years ago
glaucoma operation
I am having a glaucoma operation on my right eye this week and I’m terrified. I am having it with a local anaesthetic. I could not find anyone who has had it and could put my mind at ease . Is there anyone who has been through this please help me.
I am having a glaucoma operation on my right eye this week and I’m terrified. I am having it with a local anaesthetic. I could not find anyone who has had it and could put my mind at ease . Is there anyone who has been through this please help me.
Maryjane-s
in
Glaucoma UK
2 years ago
Interferons as the First Choice of Cytoreduction in ET and PV
»Interferons are a group of cytokines with immunomodulatory properties and were the first immune therapies used in the treatment of cancers, including hematologic malignancies. Use of standard interferon alfa-2b for MPN treatment has been limited by its difficulty in administration and adverse effect
»Interferons are a group of cytokines with immunomodulatory properties and were the first immune therapies used in the treatment of cancers, including hematologic malignancies. Use of standard interferon alfa-2b for MPN treatment has been limited by its difficulty in administration and adverse effect
Manouche
in
MPN Voice
2 years ago
Tiopex and night vision
I was diagnosed with glaucoma last March and prescribed Tiopex eye drops, one drop in each eye once a day. Since the nights have got darker I notice that my vision is poor when driving at night Yesterday in the cinema I could not read extracts from a notebook when they appeared on a screen - they were
I was diagnosed with glaucoma last March and prescribed Tiopex eye drops, one drop in each eye once a day. Since the nights have got darker I notice that my vision is poor when driving at night Yesterday in the cinema I could not read extracts from a notebook when they appeared on a screen - they were
Eyeworrier
in
Glaucoma UK
2 years ago
Eyelids swollen and TED suspected
My saga continues. I have Hashimotos and have been on 200mg levothyroxine for some years. For the last 2 years I have had eyelid swelling which has now affected my vision. I tried my GP for help but to no avail. This year whilst having an eyetest st Specsavers the optician also tested my field of
My saga continues. I have Hashimotos and have been on 200mg levothyroxine for some years. For the last 2 years I have had eyelid swelling which has now affected my vision. I tried my GP for help but to no avail. This year whilst having an eyetest st Specsavers the optician also tested my field of
A1Amber
in
Thyroid UK
2 years ago
Psp and cataracts.
Hi friends just wanted to ask if anyone has any experience with a loved one who has psp and has has cataracts. At long last my mum got an appointment with a optometrist at the hospital. They said she has cataracts in both eyes and will need to have surgery. The doctor was quite scary telling me the complications
Hi friends just wanted to ask if anyone has any experience with a loved one who has psp and has has cataracts. At long last my mum got an appointment with a optometrist at the hospital. They said she has cataracts in both eyes and will need to have surgery. The doctor was quite scary telling me the complications
Cinderella80
in
PSP Association
2 years ago
Dry eyes
Recently, I had an ANA speckled pattern 1:640. They ran all the little subtests and all came out negative. My eyes are so dry that I was thinking I might have sjogrens. Also, I have bad constipation that I take Linzess for. Optician said when I was getting tested for glasses that my glands were blocked
Recently, I had an ANA speckled pattern 1:640. They ran all the little subtests and all came out negative. My eyes are so dry that I was thinking I might have sjogrens. Also, I have bad constipation that I take Linzess for. Optician said when I was getting tested for glasses that my glands were blocked
Zelda5
in
Thyroid UK
2 years ago
Scalp SLE diagnosed April 2021, conflicting/contradictory medications - any advice?
Hi I've had a biopsy which confirmed SLE for scalp last year in France (where I live).Having suffered health issues due to serious overmedication here before, I was reluctant to start on 400mg of Plaquenil. Got a 2nd opinion in Spain in May2021, who prescribed Diprosone (topical steroid cream) which
Hi I've had a biopsy which confirmed SLE for scalp last year in France (where I live).Having suffered health issues due to serious overmedication here before, I was reluctant to start on 400mg of Plaquenil. Got a 2nd opinion in Spain in May2021, who prescribed Diprosone (topical steroid cream) which
carorueil
in
LUPUS UK
2 years ago
EMDR treatment
has anyone tried EMDR treatment for anxiety?
has anyone tried EMDR treatment for anxiety?
Agelesslass
in
Anxiety and Depression Support
2 years ago
GCA questions
Have been experiencing headaches for the past few days (but no other symptoms) and am wondering if GCA is more likely at the beginning of one's PMR experience or can it occur any time? Am also wondering if GCA is more likely at higher doses of prednisone or lower doses? Am lastly wondering if existing
Have been experiencing headaches for the past few days (but no other symptoms) and am wondering if GCA is more likely at the beginning of one's PMR experience or can it occur any time? Am also wondering if GCA is more likely at higher doses of prednisone or lower doses? Am lastly wondering if existing
Sojourn12
in
PMRGCAuk
2 years ago
Eye Drops
I think I have accepted that I need eye drops, I have been struggling with dry eyes for a few years now, but I was desperate to try and treat the cause rather than use drops. However even though intermittently they improve, they always return. I’m not sure if it’s related to my thyroid issues or menopause
I think I have accepted that I need eye drops, I have been struggling with dry eyes for a few years now, but I was desperate to try and treat the cause rather than use drops. However even though intermittently they improve, they always return. I’m not sure if it’s related to my thyroid issues or menopause
Spangle15
in
Thyroid UK
2 years ago
Excellent Letter in the Telegraph 24/8/22
I wish to express my thanks to Pam Perceval-Maxwell for her excellent letter in the Daily Telegraph 24/8/22, headlined "Living with the Anxiety of losing one's sight for want of an appointment for an essential injection". I meant to post sooner about this. This letter only echoes the Telegraph's
I wish to express my thanks to Pam Perceval-Maxwell for her excellent letter in the Daily Telegraph 24/8/22, headlined "Living with the Anxiety of losing one's sight for want of an appointment for an essential injection". I meant to post sooner about this. This letter only echoes the Telegraph's
fed13
in
Macular Society
2 years ago
nefopam and glaucoma
Hi I am a health care assistant and I have been diagnosed with arthritis in my hips. My GP prescribed nefopam and I thought nothing of it. Since starting the nefopam I have not been able to sleep. My main concern is that I have acute angle closure glaucoma and I am worried about what damage it might
Hi I am a health care assistant and I have been diagnosed with arthritis in my hips. My GP prescribed nefopam and I thought nothing of it. Since starting the nefopam I have not been able to sleep. My main concern is that I have acute angle closure glaucoma and I am worried about what damage it might
Sickofpain140
in
Pain Concern
2 years ago
Flare or not?
I have been reducing pred by 1mg per month. Reduced to 7mg on 1st August and 6mg on 1st Sept. I had a nasty virus a few weeks ago and have felt really bad since i.e.usual pain and stiffness at onset of PMR. To top it all last week was told I am not able to drive again because my eyesight has declined
I have been reducing pred by 1mg per month. Reduced to 7mg on 1st August and 6mg on 1st Sept. I had a nasty virus a few weeks ago and have felt really bad since i.e.usual pain and stiffness at onset of PMR. To top it all last week was told I am not able to drive again because my eyesight has declined
Esmeruth7
in
PMRGCAuk
2 years ago
Not sure I belong here
Not sure I belong here, as after 8 months waiting to be seen at the glaucoma clinic following a routine eye test that turned not so routine, I'm not sure if I have glaucoma or not. I was told in January that I had damage to the optic nerve in my right eye with matching visual field loss. The appointment
Not sure I belong here, as after 8 months waiting to be seen at the glaucoma clinic following a routine eye test that turned not so routine, I'm not sure if I have glaucoma or not. I was told in January that I had damage to the optic nerve in my right eye with matching visual field loss. The appointment
Elastilass
in
Glaucoma UK
2 years ago
supplements for teenage migraine
Hello, Can anyone advise which supplements are worth trying for migraines and how much? I saw on the Cleveland’s clinic site the mention of riboflavin, magnesium and coenzyme q10 but it didn’t say how much and if suitable for a 14 year old. My daughter has suffered migraines since the age of 3
Hello, Can anyone advise which supplements are worth trying for migraines and how much? I saw on the Cleveland’s clinic site the mention of riboflavin, magnesium and coenzyme q10 but it didn’t say how much and if suitable for a 14 year old. My daughter has suffered migraines since the age of 3
Sparklyjenson
in
National Migraine Centre
2 years ago
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