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Covid lupus
hi everyone I have had two nerve conduction tests done 2022 and 2023 and when I ask for results they have never sent me them I asked twice on both occasions seems odd first was private and second nhs I have have nerve issues since 2021 after covid and astra Zeneca jabs any advice please ? 🙏
hi everyone I have had two nerve conduction tests done 2022 and 2023 and when I ask for results they have never sent me them I asked twice on both occasions seems odd first was private and second nhs I have have nerve issues since 2021 after covid and astra Zeneca jabs any advice please ? 🙏
Geeforce99
in
LUPUS UK
2 months ago
Struggling with antibiotics on chemo
Hi all, following chemo last week I then started with cellulitis infection in my leg. I began taking co-amoxiclav antibiotics but found i couldn’t take them orally due to sickness. On Saturday ended up in a &e having injectable antibiotics. They sent me home with the same pills and told me to take
Hi all, following chemo last week I then started with cellulitis infection in my leg. I began taking co-amoxiclav antibiotics but found i couldn’t take them orally due to sickness. On Saturday ended up in a &e having injectable antibiotics. They sent me home with the same pills and told me to take
Lyndy
in
My Ovacome
5 months ago
Massive leap in heart rate following Covid vaccination - a coincidence?
I'm 80, diagnosed with persistent AF in 2020, and have lived carefully and happily with few symptoms. The excellent Bristol Heart Institute has organised two echos, an MRI and an angiogram showing, to my satisfaction, acceptable results. My heart rate is always low ranging from 30 to 55 beats per
I'm 80, diagnosed with persistent AF in 2020, and have lived carefully and happily with few symptoms. The excellent Bristol Heart Institute has organised two echos, an MRI and an angiogram showing, to my satisfaction, acceptable results. My heart rate is always low ranging from 30 to 55 beats per
vbonariensis
in
Atrial Fibrillation Support
2 months ago
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vita health group physio? & Simponi question
Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this messed up my injections, did my injection then injected again 3 weeks later as pain was horrific. I have knee problems and went to rheumatology
Hi I have ankylosing spondylitis and inject 100ml of Simponi every 4 weeks, I just had MOHs surgery for skin cancer on my nose. I got an infection so this messed up my injections, did my injection then injected again 3 weeks later as pain was horrific. I have knee problems and went to rheumatology
Km27
in
NRAS
2 months ago
How to interpret thyroid antibodies test ?
Hello , I do an annual private blood test with monitor my health and haven’t tested the antibodies for 4 years . I’ve been feeling really awful again , very achey and tired so want to check this aswell as after having 2 covid jabs and a booster in this time . Can anyone tell me how to interpret the
Hello , I do an annual private blood test with monitor my health and haven’t tested the antibodies for 4 years . I’ve been feeling really awful again , very achey and tired so want to check this aswell as after having 2 covid jabs and a booster in this time . Can anyone tell me how to interpret the
Blackpanther46
in
Thyroid UK
2 months ago
When on a weekly dose of Pegasys is it ok to occasionally alter the day you inject?
Hi everyone, I’m about to try Pegasys in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection. I forgot to ask my haematologist at my appointment
Hi everyone, I’m about to try Pegasys in a few weeks time on a weekly dose of 45. If I get any unpleasant side effects I wondered if occasionally it’s ok to put back the usual day of injecting by 24 hours if I had something special on the day of the injection. I forgot to ask my haematologist at my appointment
Na56
in
MPN Voice
5 months ago
COVID time again
Hubby got COVID jab on Saturday and on Sunday in bed and that's strange for him ,he's a big guy 6ft 2in and a good healthy build, sister also got her COVID and she was in bed as well, nurse told hubby it was stronger this time, puts me off a little with having PMR andGCA don't want to flare, any of
Hubby got COVID jab on Saturday and on Sunday in bed and that's strange for him ,he's a big guy 6ft 2in and a good healthy build, sister also got her COVID and she was in bed as well, nurse told hubby it was stronger this time, puts me off a little with having PMR andGCA don't want to flare, any of
Harrywogan
in
PMRGCAuk
2 months ago
Pain and stiffness in hand after covid booster
I was diagnosed back in 2020. Took a few months but the methotrexate kicked in and I greatly improved. Yet now I am getting pain and stiffness in one hand. I had the covid booster the other week and it made me feel rotten for days after. I do wonder if there is a link. Has anyone else experienced this
I was diagnosed back in 2020. Took a few months but the methotrexate kicked in and I greatly improved. Yet now I am getting pain and stiffness in one hand. I had the covid booster the other week and it made me feel rotten for days after. I do wonder if there is a link. Has anyone else experienced this
Fenella34
in
NRAS
2 months ago
Covid and PSP
My husband who has PSP has Covid now (for the first time). He is in our community hospital for IV fluids and antibiotics. They said Covid medication is arriving today. Recently he has had bad reactions to new medications tried and I’m concerned about these. Have any PSP people had medication for Covid
My husband who has PSP has Covid now (for the first time). He is in our community hospital for IV fluids and antibiotics. They said Covid medication is arriving today. Recently he has had bad reactions to new medications tried and I’m concerned about these. Have any PSP people had medication for Covid
Rose1sunflower
in
PSP Association
2 months ago
IBS/Covid/Stress - Help!
Hi, I've just come across this forum and I'm hoping that you kind folks can give me a virtual hug and some kind words. To sum it up as briefly as possible, I am 48 and have had IBS for 28 years. Its always there in the background but I used to get serious flare ups that lasted for months if there was
Hi, I've just come across this forum and I'm hoping that you kind folks can give me a virtual hug and some kind words. To sum it up as briefly as possible, I am 48 and have had IBS for 28 years. Its always there in the background but I used to get serious flare ups that lasted for months if there was
MidnightReader
in
IBS Network
2 months ago
Haemophilus influenzae
Has anyone been able to get immunised against haemophilus influenzae? I've just had a bad infection which has been hard to shake off and I don't want it again. I know there is a vaccine available for adults but my hospital seems never to have heard of it.
Has anyone been able to get immunised against haemophilus influenzae? I've just had a bad infection which has been hard to shake off and I don't want it again. I know there is a vaccine available for adults but my hospital seems never to have heard of it.
1234emc
in
CLL Support
3 months ago
Help me! behcet syndrome with tuberculosis
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hulusi
in
Behçet's UK
5 months ago
Covid spring booster
Wanted to thank all of you who replied to my earlier post about the covid spring booster,much appreciated and after a lot of thought about pros and cons , I paid for the phizer vaccine (obviously I would rather have not) so fingers crossed. I have had some technical difficulty in replying before.still
Wanted to thank all of you who replied to my earlier post about the covid spring booster,much appreciated and after a lot of thought about pros and cons , I paid for the phizer vaccine (obviously I would rather have not) so fingers crossed. I have had some technical difficulty in replying before.still
caroline_284
in
MPN Voice
2 months ago
Covid vax?
I’ve been invited for a COVID vax booster due to PMR/ Prednisolone. Anyone want to comment?
I’ve been invited for a COVID vax booster due to PMR/ Prednisolone. Anyone want to comment?
Oshmar
in
PMRGCAuk
2 months ago
Update on Covid/AF
Hi all, Last week I reported that despite my daily dose of medication (60mg x 2 Diltiazem) I was consistently going in and out of AF due to COVID. I increased my Diltiazem by 60mg as (PIP) to try and eliminate/reduce the episodes. However, I found despite helping, this was exacerbating my AF - episodes
Hi all, Last week I reported that despite my daily dose of medication (60mg x 2 Diltiazem) I was consistently going in and out of AF due to COVID. I increased my Diltiazem by 60mg as (PIP) to try and eliminate/reduce the episodes. However, I found despite helping, this was exacerbating my AF - episodes
Fight-the-good-fight
in
Atrial Fibrillation Support
2 months ago
COVID vaccine May 2024
I had my latest covid vaccine on Saturday and it’s now Monday and my side effects as usual are horrible. Vomiting, thumping headache, stomach pain. The lymph node on the side of my neck is swollen much more than normal. I wondered is it just me?
I had my latest covid vaccine on Saturday and it’s now Monday and my side effects as usual are horrible. Vomiting, thumping headache, stomach pain. The lymph node on the side of my neck is swollen much more than normal. I wondered is it just me?
Braveheart19
in
CLL Support
2 months ago
Steroid injection and surgery
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Hi all , I'm just wondering if anyone knows how long you have to wait after steroid injection in the bottom before having gallbladder removal I've been told operation will be in 2 to 3 mths unless a cancellation comes in. But a friend said I'll have to wait 3mths now
Trishfrog1
in
NRAS
3 months ago
covid plan
hello all. Further to my message yesterday about cold v flare, I have just tested positive for COVID so I am after advice. Rest, obviously but I am planning to add 5mg to my 4mg dose so 9mg altogether. Any other advice please? Last time I had covid I had a huge relapse which I have not recovered from
hello all. Further to my message yesterday about cold v flare, I have just tested positive for COVID so I am after advice. Rest, obviously but I am planning to add 5mg to my 4mg dose so 9mg altogether. Any other advice please? Last time I had covid I had a huge relapse which I have not recovered from
marionofnorwich
in
PMRGCAuk
2 months ago
long covid IBS
Does anyone else out there have chronic IBS or worsening IBS symptoms since covid my life has been severely affected in the last two and a half years or so. I have lived with IBS for years but never like this it has now become a chronic illness , I became unwell in 2021 having had covid twice before
Does anyone else out there have chronic IBS or worsening IBS symptoms since covid my life has been severely affected in the last two and a half years or so. I have lived with IBS for years but never like this it has now become a chronic illness , I became unwell in 2021 having had covid twice before
buggins55
in
IBS Network
2 months ago
flare and a cold - what do I do?
hello all. In year 4 of PMR which started April 2020 , had just got down to 3mg in April 2022 and then got COVID. I didn’t know about sick day rules (or this Forum) then so everything went haywire. I went back up to 8mg instinctively (no rheumatologist and no guidance from GPs I saw) then after that
hello all. In year 4 of PMR which started April 2020 , had just got down to 3mg in April 2022 and then got COVID. I didn’t know about sick day rules (or this Forum) then so everything went haywire. I went back up to 8mg instinctively (no rheumatologist and no guidance from GPs I saw) then after that
marionofnorwich
in
PMRGCAuk
2 months ago
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