Search
Search
About
Log in
Join
Experiences with
Venetoclax
Posts
Communities
1,052 public posts
Filter results
Treatment starts 9th July
Obinutuzumab and
Venetoclax
12 x 28 days Cycles. I will be at the Churchill in Oxford even though I live in Northants.
Obinutuzumab and
Venetoclax
12 x 28 days Cycles. I will be at the Churchill in Oxford even though I live in Northants.
TheFlyer
in
CLL Support
3 months ago
Doxycycline long term use
I’m on Ibrutinib with
Venetoclax
and it’s suited me well, and I’m really pleased that my bloods now appear to be normal. I’m also on Co-Trimoxazole antibiotic and Aciclovir antiviral to deal with any infections should they arise during my treatment and I don’t have any concerns about them.
I’m on Ibrutinib with
Venetoclax
and it’s suited me well, and I’m really pleased that my bloods now appear to be normal. I’m also on Co-Trimoxazole antibiotic and Aciclovir antiviral to deal with any infections should they arise during my treatment and I don’t have any concerns about them.
Smiley60
in
CLL Support
3 months ago
Sezary Syndrome.
After many months of fighting a complete body rash, I was visually diagnose with Sezary Syndome and had to discontinue my CLL treatment with
Venetoclax
, only did 8 months out of 24 months due to the rash condition. Is there anyone with knowledge of this or was there any previous postings?
After many months of fighting a complete body rash, I was visually diagnose with Sezary Syndome and had to discontinue my CLL treatment with
Venetoclax
, only did 8 months out of 24 months due to the rash condition. Is there anyone with knowledge of this or was there any previous postings?
Champlain
in
CLL Support
6 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
New Drug!!
My understanding is that this is super charged
Venetoclax
. https://finance.yahoo.com/news/innocare-announces-approval-clinical-trial-003700240.html
My understanding is that this is super charged
Venetoclax
. https://finance.yahoo.com/news/innocare-announces-approval-clinical-trial-003700240.html
Hidden
in
CLL Support
7 months ago
STEM CELL TRANSPLANT FINALLY SCHEDULED (WE HOPE)
After three cycles, another bone marrow biopsy did not show the results the Mayo doctor had hoped for, so more Vidaza was ordered with the addition of
venetoclax
. David has now received six cycles of vidaza and two of
venetoclax
.
After three cycles, another bone marrow biopsy did not show the results the Mayo doctor had hoped for, so more Vidaza was ordered with the addition of
venetoclax
. David has now received six cycles of vidaza and two of
venetoclax
.
dwolden
in
CLL Support
3 months ago
Majic trial arm "A"
For the Majic trail, arm "A", I would like to know if anyone has completed the first 15 cycles of Acalabrutinib and
Venetoclax
. Has your bone marrow testing showed below MRD indicating deep remission. My test comes up in June with my fingers crossed.
For the Majic trail, arm "A", I would like to know if anyone has completed the first 15 cycles of Acalabrutinib and
Venetoclax
. Has your bone marrow testing showed below MRD indicating deep remission. My test comes up in June with my fingers crossed.
JDG45
in
CLL Support
6 months ago
Steriods
Dennis Imbruvica discontinued due to Afib,
Venetoclax
for 2years, Obinituzimab quarterly
Dennis Imbruvica discontinued due to Afib,
Venetoclax
for 2years, Obinituzimab quarterly
Fant1924
in
CLL Support
2 months ago
MRD - Flow test compared to clonoSEQ
I j
ust got this result after a year of Acalabrutinib and
on the Majic trial.
I'm currently waiting for the clonoSEQ MRD6 results. Below are the FLOW test results. Are they comparable. If so, I have a long long way to go for MRD6.
I j
ust got this result after a year of Acalabrutinib and
on the Majic trial.
I'm currently waiting for the clonoSEQ MRD6 results. Below are the FLOW test results. Are they comparable. If so, I have a long long way to go for MRD6.
JDG45
in
CLL Support
4 months ago
A COLD AND VENETOCLAX
Hi all….has anyone had a cold and paused
Venetoclax
? Still waiting to hear back from my Oncologist. Thanks…Diana
Hi all….has anyone had a cold and paused
Venetoclax
? Still waiting to hear back from my Oncologist. Thanks…Diana
difor29
in
CLL Support
8 months ago
V&R Treatment
But yesterday he told me it was a misunderstanding from him. the Ritoximab infusions are over, but I have to continue with
Venetoclax
4 pills every day until October 2025.! I feel so depressed about it, I could hardly sleep last night 🙃. I never knew it could be so long.
But yesterday he told me it was a misunderstanding from him. the Ritoximab infusions are over, but I have to continue with
Venetoclax
4 pills every day until October 2025.! I feel so depressed about it, I could hardly sleep last night 🙃. I never knew it could be so long.
unairdefamille
in
CLL Support
5 months ago
Acalabrutinib, venetoclax and obinutuzumab in relapsed CLL: Phase 2 CLL2-BAAG trial results from the German CLL Study Group
[/i] [i]https://ashpublications.org/blood/article-abstract/doi/10.1182/blood.2023022730/515746/Acalabrutinib-
venetoclax
-and-obinutuzumab-in?
[/i] [i]https://ashpublications.org/blood/article-abstract/doi/10.1182/blood.2023022730/515746/Acalabrutinib-
venetoclax
-and-obinutuzumab-in?
AussieNeil
Partner
in
CLL Support
5 months ago
Anyone with CLL and Myelodysplasia
A month ago I was diagnosed with Myelodysplasia after undergoing a biopsy when I was at the end of the
Venetoclax
treatment.
A month ago I was diagnosed with Myelodysplasia after undergoing a biopsy when I was at the end of the
Venetoclax
treatment.
Priss69
in
CLL Support
7 months ago
Early results of the Pirtobrutinib, Obinituzumab, Venetoclax trial I'm on have just been published
published an oral abstract in advance of the European Hematological Association Congress June 13-16, 2024: https://library.ehaweb.org/eha/2024/eha2024-congress/422268/nitin.jain.combined.pirtobrutinib.venetoclax.and.obinutuzumab.in.first-line.html [i]
Abstract: S164 Title: COMBINED PIRTOBRUTINIB,
published an oral abstract in advance of the European Hematological Association Congress June 13-16, 2024: https://library.ehaweb.org/eha/2024/eha2024-congress/422268/nitin.jain.combined.pirtobrutinib.venetoclax.and.obinutuzumab.in.first-line.html [i]
Abstract: S164 Title: COMBINED PIRTOBRUTINIB,
SeymourB
in
CLL Support
5 months ago
Diagnosed with Richters
I started the Ibrutinib/
Venetoclax
trial at MDA in Jan 2017 achieving MRD U in April 2019. Clear sailing until April ‘22 when my blood test showed .07 CLL cells that doubled every 6 months. Showing no symptoms, my Doc did not recommend treatment.
I started the Ibrutinib/
Venetoclax
trial at MDA in Jan 2017 achieving MRD U in April 2019. Clear sailing until April ‘22 when my blood test showed .07 CLL cells that doubled every 6 months. Showing no symptoms, my Doc did not recommend treatment.
Louie_CC
in
CLL Support
1 month ago
saw pimento
can you take saw pimento whilst on chemo Ibrutinib and
Venetoclax
? I use it fire enlarged prostate ?
can you take saw pimento whilst on chemo Ibrutinib and
Venetoclax
? I use it fire enlarged prostate ?
clifflee
in
CLL Support
8 months ago
Hearing Problem
Hi Everyone Interested to know has anyone had trouble with their hearing while taking Ibrutinib and
Venetoclax
. I'm around 6 months into taking the combined tablets, around 1 month ago I noticed a difference with my hearing, never had a problem with my hearing before I was diagnosed with CLL.
Hi Everyone Interested to know has anyone had trouble with their hearing while taking Ibrutinib and
Venetoclax
. I'm around 6 months into taking the combined tablets, around 1 month ago I noticed a difference with my hearing, never had a problem with my hearing before I was diagnosed with CLL.
wolfe1963
in
CLL Support
7 months ago
splashsplash
UK based, CLL for 15 years, Treatments: FC, FCR, Ibrutinib,
Venetoclax
for 2.5 years, 6 month break now back on
Venetoclax
UK based, CLL for 15 years, Treatments: FC, FCR, Ibrutinib,
Venetoclax
for 2.5 years, 6 month break now back on
Venetoclax
splashsplash
in
CLL Support
9 months ago
Food poisoning.
I am in the middle of
Venetoclax
treatment for my cll, I contactedfood poisoning Sunday. I am still quite ill. I assume my cll is affecting my recovery? Hopefully this gets better?
I am in the middle of
Venetoclax
treatment for my cll, I contactedfood poisoning Sunday. I am still quite ill. I assume my cll is affecting my recovery? Hopefully this gets better?
Lisbon2022
in
CLL Support
7 months ago
Continued Journey
Venetoclax
worked well for me for some time. I did experience digestive distress and at times various bowel movement issues, diarrhea and smaller multiple times a day. Imodium would take care of diarrhea.
Venetoclax
worked well for me for some time. I did experience digestive distress and at times various bowel movement issues, diarrhea and smaller multiple times a day. Imodium would take care of diarrhea.
FiArt12X
in
CLL Support
3 months ago
short term memory
Hope everyone is well Has anyone here experienced some memory issues while on ibruvica and
venetoclax
treatments Unfortunately my mother can only handle 100mg of
venetoclax
a day for a couple months now and I see she’s forgetting more easily or she seems a little off I had taken her for a brain
Hope everyone is well Has anyone here experienced some memory issues while on ibruvica and
venetoclax
treatments Unfortunately my mother can only handle 100mg of
venetoclax
a day for a couple months now and I see she’s forgetting more easily or she seems a little off I had taken her for a brain
Eirinik
in
CLL Support
8 months ago
1
2
3
4
...
53
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
CLL Support
1006 results
CLL America Support
24 results
Leukaemia Support
10 results
View top 10 communities
Sort by
Most Relevant
Newest