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Experiences with
Venetoclax
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Cramp!
Hi All ,I’m on ibrutinib and
venetoclax
and I am having terrible cramp ,has anyone else experienced this ?
Hi All ,I’m on ibrutinib and
venetoclax
and I am having terrible cramp ,has anyone else experienced this ?
Workers
in
CLL Support
6 years ago
Venetoclax plus Rituximab
Hi, I'm new to this forum and am wondering if anyone knows of any trials of
Venetoclax
plus Rituximab for MZL Lymphoma ?? Can only find data from the Murano Trial for CLL. I've been offered BR treatment after Rituximab monotherapy failed, and am not so keen on starting on chemo road. Andrew
Hi, I'm new to this forum and am wondering if anyone knows of any trials of
Venetoclax
plus Rituximab for MZL Lymphoma ?? Can only find data from the Murano Trial for CLL. I've been offered BR treatment after Rituximab monotherapy failed, and am not so keen on starting on chemo road. Andrew
greenvert
in
CLL Support
6 years ago
Clinical trial for Imbruvica/Ibrutinib , Gazyva/Obinutuzumab +/- Venclexta/Venetoclax at 97 sites USA
Giving ibrutinib, obinutuzumab and
venetoclax
may work better in treating patients with chronic lymphocytic leukemia.
Giving ibrutinib, obinutuzumab and
venetoclax
may work better in treating patients with chronic lymphocytic leukemia.
lankisterguy
Volunteer
in
CLL Support
6 years ago
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Venetoclax side effects
I've been on
Venetoclax
for 2 months. Have been getting blister-like skin eruptions on my feet and lower legs that are painful to the touch and show swelling of the surrounding tissue. Biopsy and blood tests are negative for autoimmune reaction. Anybody else with the same experience?
I've been on
Venetoclax
for 2 months. Have been getting blister-like skin eruptions on my feet and lower legs that are painful to the touch and show swelling of the surrounding tissue. Biopsy and blood tests are negative for autoimmune reaction. Anybody else with the same experience?
kudoc
in
CLL Support
6 years ago
Venetoclax and rituxinib
I will be starting
Venetoclax
and rituxinib.
I will be starting
Venetoclax
and rituxinib.
rlyndecker
in
CLL Support
6 years ago
NICE approves venetoclax (VENCLYXTO) with rituximab for previously treated chronic lymphocytic leukaemia (CLL) patients
The NICE recommendation to make
venetoclax
plus rituximab available was based upon MURANO Phase 3 clinical trial data. The trial compared
venetoclax
plus rituximab treated patients to bendamustine plus rituximab treated patients.
The NICE recommendation to make
venetoclax
plus rituximab available was based upon MURANO Phase 3 clinical trial data. The trial compared
venetoclax
plus rituximab treated patients to bendamustine plus rituximab treated patients.
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
On a trail of Imbrutinib and venetoclax for CLL 11q deletion. Just ramped up to 400mg of venetoclax a few weeks ago. Fatigue has kicked in.
Is this normal because I've no real side effects up till now?
Is this normal because I've no real side effects up till now?
Jonboy64
in
CLL Support
6 years ago
Tick vaccination
Hello After
Venetoclax
and Obinutuzumab I am mrd- both in PB and marrow. I would like to get vaccination against ticks (TBE). Has anybody experience if it will work in CLL patients. Many thanks Reinhard
Hello After
Venetoclax
and Obinutuzumab I am mrd- both in PB and marrow. I would like to get vaccination against ticks (TBE). Has anybody experience if it will work in CLL patients. Many thanks Reinhard
Reinhard
in
CLL Support
6 years ago
Flair Trial 7 months in...
I’ve been on Ibrutinib and
Venetoclax
since May and all in all have been feeling great. Last weekend I had something new, in that my resting heart rate was 160+ and no beta blocker could slow it down below 120 and then only for an hour or two.
I’ve been on Ibrutinib and
Venetoclax
since May and all in all have been feeling great. Last weekend I had something new, in that my resting heart rate was 160+ and no beta blocker could slow it down below 120 and then only for an hour or two.
Kods
in
CLL Support
6 years ago
My Dana-Farber Trial Update
Today, I completed my first dose of
Venetoclax
at 400 mg after titrating up for a month. Maybe a little bit of tiredness last week, which also could be due to the pace of weekly four-hour drives to Boston and back for a month. A touch of nausea last week. Was that related? Who knows. Who cares.
Today, I completed my first dose of
Venetoclax
at 400 mg after titrating up for a month. Maybe a little bit of tiredness last week, which also could be due to the pace of weekly four-hour drives to Boston and back for a month. A touch of nausea last week. Was that related? Who knows. Who cares.
Lily_Pad_Master
in
CLL Support
6 years ago
90 days on Ibrutinib
I am also observing the results of the trial of Ibrutinib and
venetoclax
which seem to be quite dramatic.
I am also observing the results of the trial of Ibrutinib and
venetoclax
which seem to be quite dramatic.
Mick491
in
CLL Support
6 years ago
Untreated CLL with 17 p deletion
Dr Wierda recommended me the clinical trial on Acalabrutinib,
Venetoclax
and Gazyva. I also on my own found out that they have another clinical trial with just one drug: Zanabrutinib.
Dr Wierda recommended me the clinical trial on Acalabrutinib,
Venetoclax
and Gazyva. I also on my own found out that they have another clinical trial with just one drug: Zanabrutinib.
Anita1
in
CLL Support
6 years ago
I'm tired
I'm hoping that I'll be okay on
Venetoclax
if that proves necessary next. But what if that causes bad reactions as well - is that it? What next? Sorry - feeling really low today.
I'm hoping that I'll be okay on
Venetoclax
if that proves necessary next. But what if that causes bad reactions as well - is that it? What next? Sorry - feeling really low today.
UKfulloflife
in
CLL Support
6 years ago
AVO clinical trial for CLL
Just started the AVO (Acalabrutinib,
Venetoclax
, Obinutuzmab, clinical trial at Dana Farber just last week. Anyone else out there on this same trial?
Just started the AVO (Acalabrutinib,
Venetoclax
, Obinutuzmab, clinical trial at Dana Farber just last week. Anyone else out there on this same trial?
Pete9876
in
CLL Support
6 years ago
CLL Society Alert (newsletter for USA patients)- Video Interviews with Dr. Furman, Dr. Koffman- Educational Forums & Support Groups - USA
- Genentech’s Patient Connect Program Genentech is seeking patients who are being treated with VENCLEXTA® (
venetoclax
) and who may be interested in participating in Genentech’s Patient Connect program and sharing their experience with other patients, caregivers, and healthcare professionals.
- Genentech’s Patient Connect Program Genentech is seeking patients who are being treated with VENCLEXTA® (
venetoclax
) and who may be interested in participating in Genentech’s Patient Connect program and sharing their experience with other patients, caregivers, and healthcare professionals.
lankisterguy
Volunteer
in
CLL Support
6 years ago
cll w/ a twist - Stem cell
I'm on
venetoclax
w/ rhituxin and have my levels good for first time in over a year (3 months at sloan). Just had a bone marrow test yesterday so no results yet. they feel i'm going to have to do the stem cell transplant. Anyone go through this???
I'm on
venetoclax
w/ rhituxin and have my levels good for first time in over a year (3 months at sloan). Just had a bone marrow test yesterday so no results yet. they feel i'm going to have to do the stem cell transplant. Anyone go through this???
chemosuxs
in
CLL Support
6 years ago
Why do people get cancer?
Interestingly, the animations were made at the Walter and Eliza Hall Institute of Medical Research - where landmark research discovery eventually led to the development of
!
Interestingly, the animations were made at the Walter and Eliza Hall Institute of Medical Research - where landmark research discovery eventually led to the development of
!
AussieNeil
Partner
in
CLL Support
6 years ago
After Venetoclax
Then, in April 2018, they started me on
Venetoclax
. The doses were upped according to protocol, but when i was on 400 mgr after 4 weeks my blood counts went down dramatically, so the dosis was lowered to 200, which I am still on now.
Then, in April 2018, they started me on
Venetoclax
. The doses were upped according to protocol, but when i was on 400 mgr after 4 weeks my blood counts went down dramatically, so the dosis was lowered to 200, which I am still on now.
Tosti
in
CLL Support
6 years ago
A set-back
I asked about
Venetoclax
, and was told that it isn't approved yet. When I asked about trials, she said let's not try to rush into something else - let's just stay on track, and see what happens, and how fast, or slow, it happens.
I asked about
Venetoclax
, and was told that it isn't approved yet. When I asked about trials, she said let's not try to rush into something else - let's just stay on track, and see what happens, and how fast, or slow, it happens.
jaysearch
in
CLL Support
6 years ago
Xtandi + Venetoclax For crPCa
Venetoclax
is a BCL-2 inhibitor. One of the best supplements to block BCL-2 is Luteolin https://www.news-medical.net/news/20180907/Research-team-identifies-new-therapeutic-target-for-castration-resistant-prostate-cancer.aspx https://www.ncbi.nlm.nih.gov/pubmed/28264627
Venetoclax
is a BCL-2 inhibitor. One of the best supplements to block BCL-2 is Luteolin https://www.news-medical.net/news/20180907/Research-team-identifies-new-therapeutic-target-for-castration-resistant-prostate-cancer.aspx https://www.ncbi.nlm.nih.gov/pubmed/28264627
gusgold
in
Advanced Prostate Cancer
6 years ago
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