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Venetoclax
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Burning tongue and metallic taste .
Had FCR, Ibrutinib, and
Venetoclax
. I am on
Venetoclax
now for 18 months after 6 times of V+O. A year ago I lost my taste sense and everything tastes metallic,but the worse is a burning tongue sensation. Does it have any connetion to CLL or
Venetoclax
?Gidi
Had FCR, Ibrutinib, and
Venetoclax
. I am on
Venetoclax
now for 18 months after 6 times of V+O. A year ago I lost my taste sense and everything tastes metallic,but the worse is a burning tongue sensation. Does it have any connetion to CLL or
Venetoclax
?Gidi
GIDI
in
CLL Support
3 months ago
Covid
I have Covid, and wondered if I should still take my
Venetoclax
I have Covid, and wondered if I should still take my
Venetoclax
flippingnora1
in
CLL Support
1 month ago
Very worried about Mom
She had stopped taking
venetoclax
since Sunday. They are giving her antibiotics but her blood counts are out of whack. Rbc are all low and her wbc is slightly high. So I have a couple of questions. Her doctor said to immediately stop the
venetoclax
(which she did before he told us).
She had stopped taking
venetoclax
since Sunday. They are giving her antibiotics but her blood counts are out of whack. Rbc are all low and her wbc is slightly high. So I have a couple of questions. Her doctor said to immediately stop the
venetoclax
(which she did before he told us).
Hidden
in
CLL Support
4 months ago
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Long, but much needed post about calquence vs venetoclax
Infections on
venetoclax
? Risk percentages? Bless you all.
Infections on
venetoclax
? Risk percentages? Bless you all.
Hidden
in
CLL Support
4 months ago
2nd gen BCL-2 inhibitor in trials and looking promising -- Sonrotoclax (BGB-11417)
Zanubrutinib given for 8-12 weeks prior I would think to lessen the chance of TLS, and there were 0 reports of TLS, so seems like a good strategy 1) 100% ORR 2) 100% PFS 3) 10x the potency over
venetoclax
4) 4 hour half-life -- this is a very short half life compared to 26 hours of
venetoclax
.
Zanubrutinib given for 8-12 weeks prior I would think to lessen the chance of TLS, and there were 0 reports of TLS, so seems like a good strategy 1) 100% ORR 2) 100% PFS 3) 10x the potency over
venetoclax
4) 4 hour half-life -- this is a very short half life compared to 26 hours of
venetoclax
.
PulsedTherapy
in
CLL Support
2 months ago
End of the road for PBS-available treaments for me.
Fourth line of treatment
Venetoclax
and Rituximab. 6 rounds of Rituximab commenced Feb 2024, and
Venetoclax
commenced April 24.
Fourth line of treatment
Venetoclax
and Rituximab. 6 rounds of Rituximab commenced Feb 2024, and
Venetoclax
commenced April 24.
Jotame
in
CLL Support
27 days ago
Update on FIL -Venetoclax as a Monotherapy, Pancytopenia and Myelodysplasia
There is no CLL in the bone marrow so the
venetoclax
obviously did its job. However, because his need for transfusions hasn't improved and the Myelodysplasia appears to have got worse they are not putting him back on the
venetoclax
.
There is no CLL in the bone marrow so the
venetoclax
obviously did its job. However, because his need for transfusions hasn't improved and the Myelodysplasia appears to have got worse they are not putting him back on the
venetoclax
.
JoeMcDote
in
CLL Support
2 months ago
Real-world incidence and prevention of tumor lysis syndrome (TLS) in chronic lymphocytic leukemia (CLL) treated with venetoclax. From MSK
We aimed to determine the incidence of and risk factors for TLS among patients with CLL/small lymphocytic lymphoma (SLL) who received treatment with
venetoclax
at our institution from 1/1/2016 to 12/31/2020. We included 616
venetoclax
escalations among 136 pts with CLL.
We aimed to determine the incidence of and risk factors for TLS among patients with CLL/small lymphocytic lymphoma (SLL) who received treatment with
venetoclax
at our institution from 1/1/2016 to 12/31/2020. We included 616
venetoclax
escalations among 136 pts with CLL.
AussieNeil
Partner
in
CLL Support
13 days ago
Next Game Changer??
Will the next CLL drug that will be a “game changer” be a BTK inhibitor that lasts longer, a more powerful version of
Venetoclax
that provides longer and deeper remissions, a combination of an existing drug and a new version of
Venetoclax
, or an entirely new class of CLL drug such as a degrader?
Will the next CLL drug that will be a “game changer” be a BTK inhibitor that lasts longer, a more powerful version of
Venetoclax
that provides longer and deeper remissions, a combination of an existing drug and a new version of
Venetoclax
, or an entirely new class of CLL drug such as a degrader?
Hidden
in
CLL Support
5 months ago
Brave young kiwi woman
A Young Mom Confronts “Skyrocketing White Blood Cell Counts”
https://www.patientpower.info/video/chronic-lymphocytic-leukemia/a-young-mom-confronts-skyrocketing-white-blood-cell-counts
Kylie's blog about her
+ obinutuzumab trial https://www.courageloveandlegacy.com/
A Young Mom Confronts “Skyrocketing White Blood Cell Counts”
https://www.patientpower.info/video/chronic-lymphocytic-leukemia/a-young-mom-confronts-skyrocketing-white-blood-cell-counts
Kylie's blog about her
+ obinutuzumab trial https://www.courageloveandlegacy.com/
Kiwidi
in
CLL Support
21 days ago
low white cells
Has anyone any idea how taking reduce doses of
venetoclax
will effect my chances of putting the cll in remission at the end of the year.(48 weeks).
Has anyone any idea how taking reduce doses of
venetoclax
will effect my chances of putting the cll in remission at the end of the year.(48 weeks).
Farleytiff
in
CLL Support
4 months ago
Obinutuzumab and Venetoclax update
Started the
Venetoclax
20mg all good , had an Infusion and 50mg
Venetoclax
, on Tuesday all good no issues. Next week will be 100mg then a week of 200mg and finally a week of 400mg. I have been going to the Ambulatory Care Unit at the Churchill Oxford.
Started the
Venetoclax
20mg all good , had an Infusion and 50mg
Venetoclax
, on Tuesday all good no issues. Next week will be 100mg then a week of 200mg and finally a week of 400mg. I have been going to the Ambulatory Care Unit at the Churchill Oxford.
TheFlyer
in
CLL Support
8 days ago
Richter's and Novel Treatments/Combinations
From the limited data available in this study, patients with prior
venetoclax
exposure for CLL had lower likelihood of achieving CR than those who were
venetoclax
naïve (13% vs 40%). Survival outcomes remained poor overall.
From the limited data available in this study, patients with prior
venetoclax
exposure for CLL had lower likelihood of achieving CR than those who were
venetoclax
naïve (13% vs 40%). Survival outcomes remained poor overall.
Jm954
Administrator
in
CLL Support
4 days ago
Question
If one responds well to rituximab/
venetoclax
w/o relapse, why stop the drug at two years? Thanks, Bud
If one responds well to rituximab/
venetoclax
w/o relapse, why stop the drug at two years? Thanks, Bud
Agiledog
in
CLL Support
5 months ago
continuing the journey
It involved Ibrutinib and
Venetoclax
.
Venetoclax
had not been approved in the USA as yet. It was a fixed duration study (15 months) to see if they could obtain remission results with the combinations and be able to stop the oral medications. There were 289 patients nationwide.
It involved Ibrutinib and
Venetoclax
.
Venetoclax
had not been approved in the USA as yet. It was a fixed duration study (15 months) to see if they could obtain remission results with the combinations and be able to stop the oral medications. There were 289 patients nationwide.
FiArt12X
in
CLL Support
3 months ago
Neutropenia
My
Venetoclax
will be reduced if I go below. This is first hiccup in my treatment. Has this happened to anybody else? How worried should I be. Every other number was great and I no longer have anemia.
My
Venetoclax
will be reduced if I go below. This is first hiccup in my treatment. Has this happened to anybody else? How worried should I be. Every other number was great and I no longer have anemia.
PennyLane2024
in
CLL Support
26 days ago
Waldenstrom
Does anyone know if my prognosis is similar to CLL or am I on the correct treatment even of Ibrutinib and
Venetoclax
. Not much info out there on this condition. Plus am I now in the right group.
Does anyone know if my prognosis is similar to CLL or am I on the correct treatment even of Ibrutinib and
Venetoclax
. Not much info out there on this condition. Plus am I now in the right group.
Guinness4822
in
CLL Support
1 month ago
Bendamustine
No further cycles because of hemolyse. 2024 Now possibly
Venetoclax
+ ? Appointment with oncologist next friday. Not much of a help. Best regards, Dick
No further cycles because of hemolyse. 2024 Now possibly
Venetoclax
+ ? Appointment with oncologist next friday. Not much of a help. Best regards, Dick
dickcll
in
CLL Support
4 months ago
Complex Genetics Query
Hi EveryoneMy husband starts his
Venetoclax
on Thursday this week. His consultant sent a letter to his GP saying he is starting treatment. However it also says he has progressing CLL with complex genetics. SF3B1 mutated with genetic complexity Can anyone tell me what this means?
Hi EveryoneMy husband starts his
Venetoclax
on Thursday this week. His consultant sent a letter to his GP saying he is starting treatment. However it also says he has progressing CLL with complex genetics. SF3B1 mutated with genetic complexity Can anyone tell me what this means?
Sanders9
in
CLL Support
3 months ago
Quite the CLL journey
(not yet FDA approved) 15 months Ibrutinib combined with
Venetoclax
12 months.
(not yet FDA approved) 15 months Ibrutinib combined with
Venetoclax
12 months.
FiArt12X
in
CLL Support
3 months ago
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